The Gluten free diet

Alexis - posted on 08/13/2009 ( 33 moms have responded )

12

13

1

So I keep hearing that Gluten free diets are the way to go. My daughter is 4 and was just diagnosed with ADHD. I cant stand the idea of having her put on meds yet. Any thoughts or experiences would be helpful! THANKS

MOST HELPFUL POSTS

Anna - posted on 01/15/2010

10

1

1

I was very worried about putting my son on meds, but it has turned out to be the best decision I ever made. It has improved his life dramatically. I just realized I was not doing him a service by not treating his condition. There is no proof that Gluten free diets work and they can rob kids of valuable nutrients that assist in their growth and development. I felt like a horrible mother, putting my son on meds, but he was falling so behind and such a mess in his class, that I realized I was horrible for not acting. I know people make absurd comments about medicating children, but if our kids had diabetes no one would react for giving them medication. ADHD is a medical condition like any other and should be treated as such. I agree with another mom and suggest that you see a developmental ped. I did and she was a life saver. Only you know what is best for your child and I am sure you will make the decisions that are best for your daughter. If you do decide meds, don't feel guilty! There are a lot of us out here to support you!

[deleted account]

I wouldn't do a gluten free diet unless my child had been tested and diagnosed as being gluten intolerant. Please learn all you can about ADHD! The area of the brain that controls attention is UNDER stimulated in people with ADHD, thus the reason stimulant medication works so well. Medication is not always the first option - usually behavioral management and good classroom planning can be effective. Medication can be a wonderful addition if the child is affected in the classroom (and other settings like church and home). Please look for a developmental pediatrician with experience in this area. Your regular pediatrician may want to help, but they are grossly undertrained in the appropriate management of ADHD.

Stephanie - posted on 11/18/2009

15

41

3

GO GLUTEN FREE!! It's an amazing change in both of my children's ADHD. The gluten breaks down in their bodies into sugar. What does sugar do to a ADHD kid? Makes them hyper.
We've started off by buying low gluten products. Sourdough bread, pasta, etc...Now they are on gluten free, and it's amazing! They focus better, not so hyper, and they don't have the stomach aches they did. I've also found out that by giving them children's doses of Fish Oil, that's helped a world of difference too.

Shannon - posted on 09/11/2013

2

0

0

My son is still off his Meds and on a gluten free diet. He is doing so well. We are thrilled! His teacher said she sees no reason that he needs to go back on Meds. He will regress when eating food that's full of dyes and processed. We try and strike a balance with his diet. He gets gf donuts some times and other treats when he is consistently sticking to the gf diet. Good luck! We take vemma as our vitamins and we think they are pretty good for vitamins.

Shannon - posted on 08/19/2013

2

0

0

My son was diagnosed with adhd when he was 8 and now he is 11. We had some success with medication, his grades came way up. But his personality changed severely as well as his eating and sleeping habits. He was having night terrors and also extreme anxiety. We read a blog where a woman talked about trying gluten free with her son who had a sever case of adhd. She had great success with the diet so we thought we would also try it. After a couple of weeks of taking my son off of his medicine and keeping him off of gluten we saw amazing results. He was much more calm, and he actually had self control. Instead of being argumentative he was agreeing to help me with his chores the first time I asked him. Not normal for him at all. Many people are reluctant to believe the benefits from his gluten free diet -including grama. But we see a huge difference even though it's hard to believe we could get such great results just from the diet change. It is still a struggle to keep him on the diet because he misses eating whatever he wanted-but we remind him this is instead of taking medicine-(which he hated how it made him feel) so we just tell him he has to stick to it!!! hope this helps.

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

33 Comments

View replies by

Amber - posted on 09/11/2013

2

0

0

Hi, I just read your post. My 8 yr old sounds a lot like your son. Have you seen improvement? If so what have you tried. It's heart breaking to watch my baby be excluded and the older he gets the larger the gap seems between him and his peers. Any advice or things you find helpful would be great!

Amber - posted on 09/11/2013

2

0

0

Hi, my son is ADHD also and we are just beginning GFCF. I've been looking for reputable supplements and vitamins. Can you recommend any? Thank you.

Rachael - posted on 07/16/2013

1

0

0

My son has been gfcf for a year and a half. He is 4 years old. He accidentally ate icecream cake and caramel corn within 2 days. Since then he is regressing... No talking (which was little to begin with). He has reverted back to stimming from a year ago, along with some new Stims. He also has NO focus. Is this ironic or does this gfcf getting in his system causing this!!!!!?????

Donna - posted on 05/31/2013

1

0

0

I am raising two granddaughters. (Hope that qualifies me for this forum) I have a grandson who was diagnosed with ADHD, Aspergers, Severe Epilepsy, and Sensory Integration Disorder at age 7. A year after diagnosis, my daughter tried him on a gluten/casein free diet. He had immediate dramatic changes and six months later the diagnosis of ADHD, Aspergers and Sensory Integration Disorder were removed. His epilepsy on EEG also dramatically reduced from severe to mild. He is very sensitive to any trigger. She even had to make sure art supplies at school gluten free. In the process of trying to figure out his issues, she also had a sleep study done and his O2 saturation level with down to 65% with lots of apnea episodes. He had surgery and T & A removed. His tonsils which looked ok on a visual exam were recessed and extremely large. So combination of this treatment and dietary changes (also avoids soy) has created huge differences. He also no longer suffers from frequent croup, behavior problems or stimming. As a result of his success, my daughter age 30 (also very sensitive to gluten and cannot use any make-up with gluten in it), son age 32, one granddaughter age 9, myself age 57, and two cousins ages 58 and 67 have all started gluten and casein free diets for intolerance and/or celiac disease. We all have had amazing results and improvement in life-long health problems. The 9 year old granddaughter that lives with me still has some issues. She also had sleep apnea and improvement seen after T & A. She had a major problem in third grade when she ate several meals at school (even though it was in computer not to give her any cafeteria food). She flunked every subject 3rd quarter and it took all quarter for her to recover. Did well with accommodations in her 504 plan and passed everything 4th quarter. We are considering Straterra trial because of remaining symptoms but trying other dietary changes and supplements first. I am so thankful my daughter started us all on this journey by doing her own research and figuring out her son's problems.

Van - posted on 04/22/2013

1

0

0

Here is a link where you can access for an exclusive interview with Arjan
Kuipers on the increasingly negative effects we see of gluten on children with ADHD and Autism in particular.

https://docs.google.com/file/d/0BzqRDoZtZXYWVjFqbmJnMUpfdlE/edit?usp=sharing

Arjan Kuipers is a chiropractic neurologist and has been a practicing clinician for over two decades. He is the founder and chief innovator of Brain Building Company and ADHD & Autism Training, which provides easy-­‐to-­‐use training programs for parents and professionals that are developed to facilitate a positive, lasting change in children with ADHD and autism.

Brandi - posted on 03/14/2013

1

0

0

My daughter was sick for months before we figured out what was making her sick. she had headaches stomach issues and severe reflux. we took her off gluten and dairy and in two months drastic changes in over all health and behavior. my son is five and has always had asthma attacks...... same diet, no problems. the biggest problem is she will eat things at school even when I pack her lunch that she cant have and we end up at the doctor for days. I have had to cut back a 65 hour work week to 20 and affording the correct food for my whole family has been a task but it is worth it. we have avoided behavioral medicines for the three younger kids just by diet change. most doctors will push medicine to you saying that its the only answer but simply watching what you put in your body can prove to be an amazing thing. its rough at first but you can get it....its natural.

Josefina - posted on 12/28/2012

2

0

0

For some people who tried gluten free diet/casein free diet and think it does not work it's because they need to give it some time for it to work. You have to make it a strict diet in order for it to work.

Josefina - posted on 12/28/2012

2

0

0

Their are many alternatives to treat adhd Symptoms. My son was diagnosed with ADHD and autism. I don't think medication is the solution. He was diagnosed at age 5 and he has been on a gluten free/casein free diet for four years. He also had ocupational therapy, counseling, and omega 3, multi vitamins, and focus attention supplements. His symptoms have improved over time. It's not as hard as people think. It's even harder if you don't treat it don't do anything about it.

Samantha - posted on 12/07/2012

1

0

0

My son is 10 and was diagnosed with add when he was 8. I lean toward not medicating him unless absolutely necessary. He has very good grades in school and has an amazing memory.(wish I did lol) although he has all this going for him, socially he is suffering. He is overwhelming to other kids and takes over everything. I can tell he doesn't mean to but... His teachers tell me how bright he is but does not listen to instruction and does

what he wants. Also doesn't respect others feelings. Although he's a really sweet kid. He has two as tested and has allergy to gluten. He has been gluten free and it is hard for him. But it does help a lot. Just not enough. I'm not sure if I should medicate him. I feel like he is left out a lot because of his behavior. It really makes me sad. To medicate or not?

Sara - posted on 10/20/2012

8

1

0

Alexis, My son has ADHD and was diagnosed at 4. He is now almost 8. When he was younger he had asthma and after two years of inhalers and meds I took him to a naturapath who suggested I take him off of dairy. Not only did his asthma go away (never another attack or cough! and off all meds within weeks) but he calmed down some. I finally tried meds for the ADHD in first grade with his teachers strongly suggesting it and he became distant and depressed and severely self conscious. It was awful. He also began having 'processing problems' in school! so his grades actually went down even though his behavior there improved (if you can call being withdrawn improvement!) I have had his food sensitivity testing done. I am told he needs to come off gluten as much as possible. I am trying to wean him slowly and see what happens. His father and I are separated and he is largely non compliant with any of these interventions, so it is hard to implement them totally, but I have noticed some change in his activity level...as has his teacher. Also, I have tried to clean up his diet as well. stay away from artificial dyes, preservatives, flavors, etc. these are all just chemicals that hype these kids up. This has made a huge difference in my son.

hope this helps! good luck.

Marlena - posted on 10/19/2012

1

8

0

Hello All



I have a son that is 8 years old with ADHD. I'm having a hard time with this the medications and diet. What I'm having a hard time with is finding the gluten free stuff like noodles and pancakes mixes. I need to know where to get these things. Manys stores I shop at doesn't have all of/or nothing of the items I'm looking for. Does any one know of a medication for a ADHD children with less side effects. My son also has Elipsy so he can not taken any medication. Any help or suggestion would be helpfully..



Thanks

Shannon - posted on 09/10/2012

4

0

0

Hi Alexis, email me (Carl or Shannon on shannonwellness@gmail.com and we will help you.

Kiki - posted on 09/09/2012

5

0

0

My child reacts very strongly to gluten, and becomes hyperactive whilst eating it. I don't think it's necessarily the cause for all children, but researching it, found research that a portion of children with ADHD are reacting to food sensitivities. we are doing a two month gluten trial to test if his intolerance is coeliac or non coeliac (which btw they can't test for--they give that label to people who are intolerant to gluten, but test negative for coeliac).

The first month was fine, but after that his behavior has become more and more challenging. I was reading that gluten can affect the absorption of EFA's (essential fatty acids) in some people. so that may be part of it. or, that children just feel crummy when they are allergic to something. but he is definitely far worse following a meal with gluten in it.



I highly highly recommend What's Eating Your Child by Kelly Dorfman.

She has made me realize that my eldest is very Zinc deficient (got a home test kit which confirmed it) which contributes to slow growth, picky eating, etc.

and she has two chapters on ADHD. Every parent should read this book!



If you go gluten free, try to avoid replacing it with low GI processed foods. There are great brown rice pastas, quinoa, wholegrain breads... but unfortunately many foods are full of sugar and low protein flours that quickly turn to sugar which can't help behavior.

Once we are off the gluten again I intend to try cutting out soy to see if that helps further (we've been gluten free / dairy free for several years now, but I wonder if soy could be a trifler as well). He's definitely also sugar sensitive so I'm keen to get him off all sugar as well whilst we clear the gluten out of his system.

Sarah - posted on 06/02/2012

1

0

0

Check out www.feingold.com Great resource! We have removed all artifical dyes, fragrances, arificial flavors, preservatives, etc...from our sons dies and we saw a HUGE improvement within a 24 hours! It has been a life saver!!!

Tammi - posted on 05/18/2012

2

12

0

I too was like you and totally against medication for my son when he was diagnosed back in Kindergarten (he is now in 8th grade); I will admit I was ignorant in the sense that I felt that parents medicated their children because they can't handle them; I found out real quick I was wrong. We did over 2 years of behavioral counseling because I refused to "dope" him up. My counselor finally said to me, which I loved and trusted, that the only person I am hurting his my son by not medicating him~that really opened my eyes and made me sit back and take a long look. Needless to say; we started medication and there was a world of difference in him. He was on a very low dose and we tried different ones until we found the right one. I can now say that he is off medication and has learned to deal with it on his own and does not need the meds to help him. My youngest (5 years old) just had a well check and we were talking about some concerns (I think he had ADHD too) that I have had and his Pre-K teachers have brought to my attention; they are sending us to a neurologist and ADHD specialist to have him evaluated. My MIL said to me; you are not going to medicated him are you? My feeling is I will do what I have to if it will help him; she mentioned she heard about a gluten free diet would help but I am a little skeptical to be honest and with him being a picky eater anyway; I am not even sure if it is something that we could do for him. Wish you the best with your daughter~ your her mom and will do what you feel is the best for her; that is what all mom's do :)

Amy - posted on 04/22/2012

140

0

12

A gluten free diet can be a much healthier one!! There is NOTHING about processed foods that are good for your child! A great book to read, called "Processed Child." Love it.

I have been gluten free for two years and have never been healthier. There are other HEALTHY grains out there that are so much better for you than wheat! Try Quinoa, amaranth, flaxseed, sorghum, etc. They are MUCH healthier and don't cause an unhealthy spike in blood sugar that in turn causes hyperactivity, impulsiveness, etc.

If you choose not to go gluten free, then a high protein diet certainly helps! No pancakes w/ syrup for breakfast, or sugary cereals. Then mac-n-cheese for lunch. Then pizza for dinner. No wonder so many kids act crazy. I would too if I ate junk all day. Whatever happened to fruits & veggies?

Kolbee - posted on 04/04/2011

12

27

0

i understand what ur saying about no meds,but really they work,my son was not getting good grades in school,i keeped him off meds for a long time,but really his grades and his ability to learn in school has improved sooo much,i now feel bad i never put him on them sooner,believe me iv tryed everything,give them a chance,u can always take her off of them

Kara - posted on 03/30/2011

5

9

0

my daughter i s 6 and has adhd i put her on meds and now i want to try this gluten free receipes i can help in any way

Theresa - posted on 01/22/2010

2

22

0

I have researched this subject and I saw a neurologist that was recommended by the school. He was evaluated by the school at my request. His performance in school was affected. He was placed in a group of students with smaller ratio and his teacher was assigned to special needs. He was given a 504 plan which is what they do if they don't find anything else besides ADHD. The doctor recommended caffine pills for him to focus.I looked into some other methods and I decided to try omega 3 and DHA vitamin supplements. Stay away from sugary sweets as much as possible and the dyes in fruit juices and red and blue are the most disagreeable. He wasn't tested for food allergies yet. Until he is I won't change his diet because he needs the nutrients found in the milk and breads. Have your child evaluated by the school system. It doesn't cost anything and you may be surprised at some of the other things you will discover. For us it was an eye opener. We found out that he needed glasses! After all of the modifications we made at home and at school he is doing much better. God Bless!

Shanon - posted on 01/19/2010

64

5

9

my daughter is turning 14 next month. we ave been battling this sence 2nd grade.. I have finaly decided that i must act apon it. she is not hyper but can't focus so we are trying the no suger or as low as we can the bread is suger free but still bread so breaks down to suger.. but she is on Attend and dha fish oil pills. we are going to try the glutin free stuff as much as posible she has only been on it for a week. so not much change except she has energy not hyper but she feel beter.. I am praying that this has the change we are looking for .. I do not want to do the meds..going to try everything..med last resort... wishing you all the best..God Bless

Kathleen - posted on 01/16/2010

4

3

1

Hi Alexis,

This book has been very helpful to me. I'm not sure where you live, but many of the "big chain" food stores have great natural food resources. Wild by Nature is the one of Long Island I used to shop at. However, in Florida (where I live now) Fresh Market and Publix have a great selection of the flours you may want to buy.
http://search.barnesandnoble.com/The-ADD...
My son is 12 years old.
He is a horrible eater. I've supplemented "food" with food source shakes as well.
Nature's Plus Source of Life Energy shake (Whole food concentrate) is a powder that I mix with a few ice cubes, vanilla yogurt, fruit (your choice), and either milk or apple juice.
You'll experiment and see what works best for you.
Also, DHE fish oils, (Omega 3&6) are great brain activity pills. There are great choices available for children. This works great also.
***I am also unaware if your child has any food allergies, so these are only my recommendations for what works well for my son.

I hope some or all of these help you.

Kathleen

Andrea - posted on 01/15/2010

7

30

1

Tried the gluten free diet for six months and there was no change in my son. This was before he went onto medication. Good luck if you do try it.

Diane - posted on 01/12/2010

10

52

1

hi my son was 5 when thay put him on med.but changing his diet helped a lot. he is not on gluten free just low sugger ans salt .

Ellie - posted on 12/02/2009

1

19

0

i used to not want my daughter on meds , i am a holistic health practitioner, and very against medicating her. but i found even with diet changes she fell farther and farther behind other kids her age. she is 10 now and starting to catch up but only because of medicine.

Danielle - posted on 11/20/2009

69

17

7

I have not tried the gluten free diet, but I have learned other foods cause problems also. One big one in our family is the red dyes in foods. I had read and then learned first hand red dye and ADHD are not a good combination. I don;t remember exactly I will have to see if I can locate the article again, but it is something about the chemicals in their brains and the dye that makes a bad outcome. No more red things in my house I tell ya.

Lisa - posted on 10/29/2009

14

23

3

sorry i tried the gluten free diet with my son and it didnt work 4 him but i hope it does 4 ur daughter!!!

Stephanie - posted on 10/28/2009

1

5

0

I've also heard that the gluten free diet can help. I did however decide against it because my son is so skinny to begin with and they do tend to drop weight on the gluten free diet. Also if you do choose to medicate you can't do both because of weight loss. Good luck :)

Anna - posted on 10/23/2009

3

9

3

Hello there,

Never heard before that a gluten-free diet would help. What I did hear is that one should cut away all dairy products.



For us this havent helped a bit. Then again my 14 year old son is allergic to both. So he couldnt eat it anyway, even if he wanted to.

He was around 7 when we discovered the gluten intolerens. And 8 when we found out about the milk protein.

If it made any change to the ADHD?

No not at all... Now its worse than ever. That I guess could have to do that he is going into his teens.

But the again. Who knows what he would be like today if he still ate both gluten and milkprotein.



Not sure this was any helpful. But good luck :)

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms