Does anyone have a child that had/ has a submucousal cleft palate? My 7 yo was born with a complete cleft lip and palate but now I am wondering if my 6 week old has a submucousal cleft...He chokes at every feeding.

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Karen - posted on 10/31/2008

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My daughter (now 17 months old) was born with a soft palate cleft. We were lucky enough that the nurse who cleaned her up saw it right away. I don't know if her cleft would be categorized as submucousal but it was a very small hole in the soft palate where the uvula would be, the muscle and tissue did not close over properly. Since we caught it right away we went to using the Pigeon Bottles and nipples and when she was used to them she ate fine. She would often get discharge out her nose - the milk would come out. She did not gag very often until she went to solid foods. Does your child get any discharge out the nose? Were/are you able to breastfeed. I was unable to breastfeed because she could not muster the suction needed.

Did your 7 yr old have surgery? Could the team who treated your 7 yo see the baby. You should have an ENT or cleft palate specialist evaluate your 6 week old. My daughter had surgery at 10 months and the cleft was completely repaired. We now work with a speech therapist. Good Luck. I hope all goes well for you and yours.

Rachel - posted on 10/31/2008

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If you're worried talk to your pediatrician. He/she can check or refer you to an ENT. He may also have reflux or a strong gag reflex. Talk to his doctor and get it diagnosed.

Heather - posted on 10/27/2008

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ono but i have a 10 month old no matter what i feed her she is always chocking.

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