Kimberly - posted on 02/04/2009 ( 5 moms have responded )
I'm sorry I haven't been active yet in this group. I started it to hopefully find more moms going through this and have gotten very busy.
I'm a 33 year old mother of a 12 (almost 13...yikes!) year old daughter with Alopecia Universalis. She was 3 yrs old when it started thinning and getting bald spots. Within 3 months she was totally bald. We tried the creams and sprays (minoxydil) but nothing worked. We decided to let it go and see what happens.
Just before kindergarten started, it grew back a little but shortly thereafter fell out again and has been gone ever since. I think the fact that she was so young when it happened helped alot! She never had any real problems with the kids in school...they only knew her without hair. She has had occasional problems with mean kids picking on her but has done very well with it.
She pretty much always wore hats in elementary school. We even got a cute one with hair attached (www.hatswithhair.com) which she absolutely loved! As she got older she really wanted a wig so we looked in Locks of Love. She received her first Locks of Love wig when she was about 9 and she is on her 2nd one right now. She is very active in sports and has no problems. It is great!!
I look forward to being able to keep up with this group more now. Thanks!!