Angels with Angelman Syndrome

Support and help for moms/families with kids who have Angelman Syndrome and health concerns that go along with it.

14

Updates and appologies

Dear fellow angel moms, Sorry it has been so long since I last was on here and that I lost contact with everyone. I have been taking some time for myself to get mentally...

1

Depakote! Help

I'm so beyond frustrated and worried about my angel, Gabriel. He is 28 months old and last week the neuro wanted to have him try depakote. Nothing we have tried thus far is...

2

Frustrated

Hello everyone! I just wanted to vent a little bit. I'm so frustrated about my angel's condition. Gabriel is 28 months old and has not made any progress in the last year. He...

1

1st Grand Mal seizure

My angel had his first Grand Mal seizure yesterday. I went into a panic. He was eating his lunch when it started. Although I was home alone and started screaming and crying I...

1

EATING

My angl won't eat......she hardly eats anything, one day she'll eat ok then the next she doesn't want to eat at all. She'll always eat brown sugar oatmeal, but thats about it....

0

High Calorie Diets

Annie needs to be on a high calorie diet to help her gain weight. We don't give her sweets like candy or soda. She eats the occasional cookie and more often then not its an...

8

our Story

hello everyone! I can't tell you how happy I am to have found this group. My name is Heather, and our son, Jacob is an angel. He's 6 yrs old, and just diagnosed as being on the...

3

bed and walker

we finally got approved for the enclosed bed for olivia. it only took forever. we also got approved for a strider walker, she has the kid walk walker, but the strider is more...

3

relationships

hello everyone sorry it has been a few months since i have been on here. my guy and i have split up and i have been dealing with that. he says its just a break but i am not sure...

4

Ketogenic Diet for seizures

Hello everyone. I guess I haven't been on in a while but thought that I would post. My angel, Gabriel, is having serious issues with his seizures. It seems every medicine we...

0

problems

Hi All, I think I've been accepted, I've been able to post and reply to ppl. But now is says my membership's pending. i can't see any conversations, or see when people reply to...

3

Hello everyone!

Sorry I have been so absent from our community...It has been very hectic with Lily getting sick, taking her the therapys (wow) and setting up a fundraiser for donations to our...

1

Hello Mommies

First off to all our new mommies, I'm Stephanie Ward and I started angels with angelman. I have a three year old daughter named Annie who is an angel. Welcome and please feel...

3

are all angels the same!

i have been having a hard time with this because some angels i see look and act much better then makayla is ther different types of angelman . some angels stand better eat...

3

Meds for seizures

Hello everyone, I went to the neuro today finally since it had been scheduled since October last year! Anywho I already had the MRI from the hospitalization and she an EEG a...

3

Excessive Drooling

Hi, everyone! Gabriel is now 22 months and recently he has been drooling so very much that it drips from his mouth at times. He is also biting his lower lip with his upper...

29

Bowel movements

Does anyone's angel have trouble using the bathroom? I've had to help my kid go #2 since she was about 3 months. Stools come out hard as rocks and huge! I have no idea how it...

3

Angel contacts

Previously a few of us have posted the area that we live in. Now that this community is private and only members can join I would like to personalize this even more. This is...

2

hey

Just wanted to check in with everyone, see how everyone and their angels are doing. Annie was fitted for bilateral SMO's this past week, hopefully she'll get them sooner than...