suspicion of aspergers/dyspraxia raised in daughter

Valerie - posted on 12/21/2009

Hang in there and hopefully you will find out something soon!

Tracy - posted on 12/19/2009

i think tha as emma isnt diagnosed with anything yet the school are just watching her, the special needs lady said they had observed her and had spotted things, but didnt go into detail, i think the reason for her iep is because she is being bullied. its a shame that she dosent react to the bullies the way she does her sister and i. its come to the point where i virtually do everything for her and ask her to do nothing as it keeps the peace, even down to going shopping unless i can find someone to watch her i just dont go, thank heavens for internet shopping.
even the the epilepsy test seem to have come to a stop but due to the test allready done are shedding no reasons for her seizures i am hoping its just related to puberty and she will outgrow them so far touch wood there has been no more for a few monthes.

Valerie - posted on 12/17/2009

Yea we are fighting for the IEP right now too. So far, we've gotten as far as a 504 and that was just done yesterday. It is a painful slow process. You might want to talk to the school district head person incharge of special education or whom ever is incharge of the IEP/504 committee. They might be able to clear up what is going on and where you really are in the process.

Have you checked out one of the Parent Advocate Agencies? We found one locally that has been most helpful in explaining what is going on and what is the best way to go about the whole ordeal.

Tracy - posted on 12/17/2009

hi valarie
sounds like your on your way to getting things sorted for your daughter and the rest of the family.
so far the most we have had done is the iep to help emma build her confidence,
i also had a lady come round one night to have me sign some paperwork to pass on to childrens services, and thats been it.
its hard trying to work out whats going on with the iep as i ask her and she either says she forgets or just says like tonight "made cards",
sometimes i do think its just more bad behaviour and her being troublesome as i know she can be good and the fact she dosent have the craving for tidiness or organisation as regards her stuff for school.
because i work in the same school kitchen i normally take her lunch with me and pass it to her when she comes to me,but i have now been told i must not do it as its against the health and safety rules and then someone said she will never learn to take care of her own stuff, so both girls have been told when we restart in january they will be responsible and just hope all goes well otherwise the boss will put in a position of does emma get fed or not

Valerie - posted on 12/17/2009

I'm sure you are well under way with finding out what is going on, but that sounds just like my 8 yr old little girl. She was very violent, had tons of tantrums, really just a very unhappy camper and nothing we did was ever right. She was an absolute angel in school, but wow at home...



Since we've gotten the diagnoisis and started up weekly therapy sessions, she has really turned the corner. We do use medication to help fight her depression issues and help her maintain a more stable mood. Her emotions are within range for a "normal" child, she still has tantrums, but nothing like they were. The screaming in the middle of the night is getting ALOT better.



What triggered the diagnois for her, was her flinging herself on the floor in the middle of a department store throwing a tantrum, nonstop screaming, and her grades started declining. We started out with getting anger management counseling, which turned into a referral for a therapist, which turned into a pyschologist and a pediatrician who just happens to do testing for autism. We even initiated the school to do testing for a learning disablity. Currently we are working on getting in classes for social skills, ABA, and getting her the help she needs at school. We started this process Spring 09, so as you can see it takes a while and alot of persistance. We've still got along way to go, but at least we know what it is.



Hang in there and I wish you much luck in getting to the bottom of it!