hi im emma

Kayla - posted on 04/19/2009

Hi Emma,



My son has HLHS. He's 8 months old now, but I'm so sorry to hear about your son. It has to be rough. People need to be aware of heart defects, and sadly, no one is! Everyone worries about the "common" defects, but no one knows just how common heart defects really are!



We live knowing the fact that we don't know when our last day with Oliver might be. They say that since he did well with his Norwood, our we shouldn't worry as much. We protect him from the world, take lots of pictures, and everytime he makes a funny sound, we run him to the doctor.



Again, I am so sorry to hear about your son. Did you know before he was born that he had HLHS or did you find out after?

Leah - posted on 04/13/2009

Hi Emma! Thanks for the note! I havent done much on here and it was nice to have a note of welcome! I am soooo sad to hear about your little man, what a sad tragic loss for you and your family! Both of our kids would be about the same age. I have a Dec 2006 and Aug 2008.

Ashleigh - posted on 04/11/2009

Hi Emma,

Im so sorry to hear about your brave little man. Be strong for your daughter and cherish every moment with her. Your little boy is an angel xx

Leslie - posted on 04/11/2009

Hi Emma,

Sorry to hear of your loss...

Casey - posted on 04/11/2009

Hey Emma,

Yeah he is a happy and content little boy his growing so fast though he changes all the time, it's a bit scary.

It must be hard for you to have no-one to talk to about your loss, I think talking about things is the best way to deal with it, but it would be hard for other people too because they wouldn't know what to say. A friend of mine lost her baby at birth and I remember just feeling so much pain for her but I couldn't talk to her about it, it just seemed wrong to talk about it and I didn't want to upset her anymore then she already was, but after a while she just started talking about it and now we talk about her baby all the time and I think it has really helped her. I hope eventually your friends and family will see that talking about your beautiful baby boy is not a bad thing, maybe you need to get the ball rolling by bringing him up in conversations and let them know that you want to talk about him. But even if you don't want to talk to them about what has happened and how you are feeling you can talk to me, my email address is flutterbye3858@hotmail.com. Talk to you soon, love Casey.

Emma - posted on 04/11/2009

thank you 4 replying cassey yr baby looks lovely he looks really happy and content there and as 4 my heart healing it will never heal fully i just got to get on with my life 4 the sake of my 2 and a half hear old if it wasnt 4 her i dont now where id be and its as though she plays and talks to her brother cos she says ahh a brother looks at his picture and says there he is and then says to me a playing which im glad of cos other than her nobody speaks about him just incase they hurt m,y feelings it hurts more though with no one talking about him thinking that everybody forgot about my speciel brave little boi sorry to put this on u just somtimes i feel so alone and wen i start i cant stop                                                                                my advice to u is make every second / minete count with yr bby boi u never now wats around the next corner i hope nothing happens now    soz lol  god bless u and yr lovely plesant little boi ahhh hes so cute

Casey - posted on 04/11/2009

Hi Emma,

I am so sorry to hear about your tragic loss, I can't imagine what it feels like to lose a child. I also had a baby in August 2008 and I would be lost without him.

I hope one day your heart heals and eventually you have another baby because there is no greater delight in the world, thankyou for making me aware or this terrible thing and thankyou for being brave enough to tell your story.

Love Casey.