Just some questions

Amy - posted on 08/07/2010 ( 5 moms have responded )

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I have a 3year old daughter who was recently diagnosed as Autistic with Global Developmental Delay, she is non-verbal. I don't completely understand what Global Developmental Delay is, as it was an entirely new term to me and the more I research it the more confused I get. But here are a couple of my questions. How do you know if the are "mild" "severe" or "high functioning"? Does that come with time and it's too early to tell? How do you know when they're ready to potty train? I started working with her when she turned 2, but it's not happening for us/her. What did you do to help them once they were ready to start potty training? Any insights would be great.

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Amy - posted on 08/23/2010

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We have a Pedatric Developmental Specialist, an Occupational Therapist, and a Speech Therapist...Tuesday I am going to meet with a General (?) therapist. Her Motor skills appear just fine, but at 3 language is so tied to everything that she scores usually a "0" and that pulls all of the other scores down too. She can walk a straight line, but you can't ask her to walk a straight line...she has no idea what you're saying. I'm incredibly nervous about this Dr. appointment on Tuesday. But I'm generally nervous about all of them. Not really sure why because they are generally very nice to her and tend to listen to me, but still...it's there.

Karen - posted on 08/22/2010

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Hi Amy,

Global Development Delay refers to the development (motor skills) of the entire body. My nephew (3) has verbal apraxia, but there is such a thing as global apraxia where it affects the entire body. A therapist should be able to differentiate between mild and severe--do you have a therapist, yet? If her body is globally delayed, potty training may take a while. You are welcome to email me at karen.mccabe@hotmail.com and I can share more insight with you and exactly what we did with my nephew to bring about tremendous success in all aspects of his development.

Karen

Amy - posted on 08/08/2010

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Thank you for your response. My daughter's motor skills have not ever been a problem, and she doesn't have a major temper. I mean she does have the temper tantrums where I'm just convinced she's hurting and doesn't know how to tell me. I think I may hold off on the potty training again until she is really into the speech therapy a little ways (maybe that will help a little), and like your sons, she doesn't have an understanding or concept of a reward system either. Thanks so much for the encouraging words! :)

Stephanie - posted on 08/08/2010

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I have twin boys - diagnosed at 2 years with Autism and GDD, the outlook was not good (diagnosed as mild to severe GDD) I was told there was a high probability that they wouldn't walk / talk or even go to school . . . we started toilet training when they turned 4 because they have to be aware of what is happening and actually relate to a reward. For us it was Thomas Tank Engine undies and stickers etc and it has taken almost a year and we are still working on it. Both boys are now walking with some words and one son will be starting school at the end of this month with a teacher aide. My other boy has major temper / behaviour issues and we are hoping in the New Year he may have improved anough to go to school. Patience is the key and keep your sense of humour because some days you will feel you are racing backwards instead of moving forwards. Good luck and think positive :)