7 year old son

Jessica - posted on 07/08/2013 ( 13 moms have responded )

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My son was originally diagnosed with Asbergers by the time he was 3, we played the medication rollercoaster until I found a different psychologist to re evaluate because I didn't feel that the original diagnosis was spot on.
Currently he has a dual diagnosis of Combined ADHD and PDD.
He is very sociable, loving yet extremely hyperactive, tendency of throwing violent tantrums that can last for over an hour sometimes longer.
The entire school year for 1st grade we focused on using a non-stimulant, Strattera. .. It was extremely difficult with the lack of focus the lack of concentration yet academically he excelled higher than student w/o any disability.
Yet now the meds have been changed again to Vyvanse and he's getting to be even more difficult.
I need a network I can turn to for support and helpful advice. We return to a new psychiatric/ psychologist tomorrow and I'm so nervous to hop back on some rollercoaster that won't help. Any helpful thoughts of advice would be greatly appreciated

MOST HELPFUL POSTS

Kelly - posted on 07/14/2013

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My almost 5 year old son has been diagnosed with Asperger's and ADHD. We have been on several medications since 4 and we are currently on Intuniv and its working wonders besides the first few days of sleepiness... But we also started ABA therapy at an amazing facility here when he turned 3 and has been the best decision we ever made. He has made huge strides that medication alone could never do. Also, your description of your son is exactly how my son acts so I know exactly where you are coming from. Just remember that medication alone will not solve all issues. I would suggest social skills therapy, ABA and in home parent training which had been a huge help for us. Having someone come into the house and teach us exactly how to deal with the meltdowns, etc has been the best thing for us. Good luck!!!

Lisa - posted on 07/14/2013

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Just wanted to post that there is absolutely no proof that vaccinations cause or are linked to autism. In fact, the only study that showed a link has been proven to have been falsified and the doctor has has his license removed.

Sherri - posted on 07/14/2013

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My son is probably on the spectrum. He is 6 but has other issues. I do ABA/VBA and something called precision program www.aimsinstruction.com. These programs have worked wonders. The precision - they may be able to help, especially with the tantrums. I have been doing this with my son for over 3 yrs and I highly recommend it. I also went to a developmental MD. He tested my son for gluten, soy, casein as well as his metal levels. He is gluten free and casein free and what a change that has made over a couple of years. Does your son go to therapy - OT? They can help with the hyper part - for example sensory shirts (tight like getting a hug all the time) and simple things like wheel barrel walking, deep pressure or vestibular input. All of these things have helped my son. The brushing thing only lasted so long then he was over it. Good luck. Hugs!

Cindy - posted on 07/14/2013

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My son was also diagnosed with ADHD and PDD early on. I hated the thought of medicating for behavior and the normal stimulant medications made him feel yucky. We had a very good, involved family doctor who did some research and found Focalin. My son did great on it and didn't have any major side effects. We continued with counseling and patient, involved parenting and my son is now 19 years old, has graduated from high school, has a full time job, and doesn't take any meds. He has learned how to remove himself from certain situations if he feels like he is getting agitated and he knows how to ask for clarification if he doesn't understand something. He lives a very healthy, happy, normal life. Hang in there.

Lynda - posted on 07/12/2013

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I was a language therapist and worked with many children on the autism spectrum. I have to applaud you for going with your gut and trusting in your own feelings regarding the needs of your son. Have you read any of Temple Grandin's books? She is an adult autistic woman who has learned to cope with many challenges. Her insights into her issues may help you see beyond what the doctor's see. You spend more time with your son than anyone else. Have you tried any other alternative therapies such as herbs or acupuncture or massage. I was a foster care Mom for a young autistic man. We discovered many of his "behaviors" were tied to digestive issues. He could not describe for us how he felt in a way that helped diagnose what was wrong. Best of luck to you.
Again trust your feelings.
Lynda

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Moari - posted on 07/17/2013

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Hi Jessica my son is 8 and was diagnosed with PDD. He is a very smart, loving, and sociable boy. However, he is still able to function in a regular classroom. His father and I have agreed to not put him on any medicine because we really believe he would just walk around drugged. His main problem is when his pattern is broken and when he becomes frustrated he is either passive or aggressive. We are working on him finding the medium.We have also opted not to have him "officially label" him. It is not easy at times but we are willing to see him through. My opinion is not to use any meds. God bless!

Christina - posted on 07/16/2013

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I love Dr. Temple Grandin's books. Look her up by name on YouTube. She also has a few educational and insightful YouTube presentations - wow! That lady is a fearless speaker :) - and a ray of hope.

Sherri - posted on 07/14/2013

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The study done on the link to autism you are correct is was a lie. The person doing the small study was investigated and agreed he lied for the drug companies. However there is a gene/chromosome problem that does react to the immunizations. If you look it up, someone in the US won some sort of issue by suing. But understand the study was small and false. If worried look up the gene/chromosome problem and have your child tested. Keep in mind, autism is usually diagnosed at the time the shots are given.

Jennifer - posted on 07/14/2013

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know his blood type there are diets tailored to it. have him checked for high levels of metal...possibly from any vaccine or exposure from playgrounds, etc

Terrie - posted on 07/12/2013

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A BA like anything else works for some and not for others. It did not work for my son. We have him on a combination of meds that work for him. You will get lots of advice, but what works for one child may not work for another. I have nothing against people who use herbs and I do not down them for it, But Medicaid does not pay for it and we live pay check to pay check around here. Also, to many things to take at once and sometimes your child smells like what they take. A friend of mine gave her child fish oil. He constantly hurled up a fish odor. But again, I am broadening her, she was doing what she thought best for her child and essentially that is what you will have to do.

Lisa - posted on 07/11/2013

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I would be careful with herbal remedies. There are no real regulations with testing them and when they do spot checks, they often find that what is in them isn't what the label says.

I agree also about how difficult it can be getting the correct medicaion.

We have found a huge difference with our 6 year old Aspie because of ABA therapy. We run a home program and right now, he is also in a summer camp. He is making huge strides and rarely has a full blown meltdown any more. Shorter ones, yes.

ABA is the only therapy that has been proven through controlled trials to help autisitc children.

Christina - posted on 07/08/2013

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Be careful with such meds! Many psychologists and psychiatrists will admit when questioned that their business is more an art than a science, that prescribing for behavioral issues is a guessing game. Sometimes it works and sometimes it does not, yet it's often dangerous to quit these meds abruptly and can cause psychotic episodes. If I may be of any help, I recommend herbs. A bit of research and just a few dollars is all that is needed as most herbs will run $15-$30 per pound - that's a lot of herb! I would suggest detoxifying (dandelion, red clover, lots of garlic) combined with herbs for focus (rosemary, peppermint, St. John's Wort, etc.) and relaxation (skullcap, chamomile, passionflower, kava root: very bitter but wonderful, not to be overdone with children). I hope this helps. Enjoy!

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