advise needed please

Laura_ruddy - posted on 06/30/2012 ( 11 moms have responded )

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hi. looking for advise

my son is 20 months old
has been sent for all the test need to see what level of autism he has to get the help that he needs .

i have a few question please to the mothers and fathers of children with autism .

1. does your child have pronation of the feet ,, looks like they walk on ankle bones rather than soles of feet

2. has anyone every change the diet for child and see a response with cutting out dairy and gulten products ?

3. my child says 4 words .but they mean nothing he just says them he cant chew foods if they are to solid he gags and this can lead to vomit,

4. never pointed . nor hand gestures. ,, but am i crazy to think that most of us anyway talk with our hand as we do with our mouths ... ??

5. he can play few games ... like chasing - hide and seek (but he wont hide haha he is in clear view then when we find him then he jumps on the floor) lol .. .. sometime he laughs very hard for no reason ,, and laughs when we make him ..

i am sure i can have more questions etc .. as i only found out 3 days ago.. so still a bit in limbo land ...

now this will never mean i love him less, treat him any differently that i have done everyday of his life to date only help him more & love him loads more ...........

thank you kindly

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Anaquita - posted on 06/30/2012

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I agree with Neva. Also the website Wrong Planet is helpful. Keep in mind with the symptoms you see, won't be the same with every kid on the spectrum. Every kid is unique and different on how it presents in them.

Anyhow to your numbered points:

1. Most kids on the spectrum, if they have an odd walk it's usually on the balls of their feet. But that doesn't mean your kid's odd walk isn't odd and like it's on the ankles. My son walks fairly normally, but it's when he runs it gets a bit odd.

2. I only suggest cutting out dairy or gluten if the kid has symptoms of an allergy or intolerance. Look up the symptoms. If he has any, then get him tested first. It's estimated that about 3 million (or more) people have celiacs or an intolerance to gluten, but only 300k are diagnosed. I'm sure it's similar for the dairy allergy, and a good portion of those are likely on the spectrum. Those with an intolerance/allergy will benefit from the removal, obviously. And symptoms will improve. But those who have no gluten or dairy issues will see no change. Your best bet, if there are no symptoms, keep the diet healthy, and wholesome overall.

3. Speaking from rote memory is common for kids on the spectrum. Keep in mind your son is only 20 months. So he has time to actually begin to understand what he's saying. Does he seem to understand what you say? As for food, sounds like a sensory issue, and he may need occupational therapy for it. Or something might be off with the throat. See a doctor about that, to make sure it's not a fixable, physical issue.

5. I don't know any 20 year old who's gotten the hang of hide and seek. As for laughing, maybe he found something funny?

If he turns out to have autism (sounds like a real possibility with the testing) do your research, and look into therapies for him. The earlier the interventions, the better the long term prognosis. Good luck!

Neva - posted on 06/30/2012

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Go to Autism Speaks. org. It is a website dedicated to teaching people about websites, there are resources for parents and other helpful information.

Morgan - posted on 07/04/2012

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That is fantastic!! :) I've read alot on certain vitamins..including methyl-b12 which unfortunately is unavailable in Canada :s As parents of children with autism we will do anything to help our children out. I am the same way..we have been doing music therapy with his occupational therapists and the change since we have started has been incredible :) 30 min twice daily and I have seen significant changes!
Reading is endless..but the more we educate ourselves the better it is for our children. Good luck with research. :)
Oh and thanks to good old summer he's been getting in alot of pool time in to strengthen his legs...which he loves :) :)

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Laura_ruddy - posted on 07/12/2012

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@amanda ..

have you seen DR's about this .. or is it something you noticed along the way ?

well its been some time , about today 2wks were get the news regarding our son thats 14 days .. hes been on vit D for 11 days ..

now my son can build 5 blocks high. he never could build 1...

I am not forcing the VIT D on anyone .. etc .. but really its worth a go. even read up .. on this even for us adults ...

i am giving my son alot of 1-1 and showing him things eg building blocks .. so either way if its me thats helping him - of VIT D helping him or both. who knows at this point lol...

i have found out regarding my son swallowing troubles , and part of this skin in throat never developed correctly and if this is true or not ? most children that have autism that have same problem with swallow its a development issue not a brain issue ... we forced out DR to do MRI on his throat.

and before i leave you ;-) .. i have started the chiropractor programme with him to .....

11 days no hand flapping ....... BTW ;-)///

Amanda - posted on 07/11/2012

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1 yes
2 yes and so far we are still new on this and have seen her get worse.
3 we do not have this problem. we have a severe over eater instead
4 she also never uses her hands to point or describe things
5 my daughter never really laughs at the appropriate times

Laura_ruddy - posted on 07/02/2012

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well.. its been 5 days

now we have bought books etc on autism everything we found and could find we are currently talking to a DR. from USA and i live in ireland ..

ok you/some might think its a little over the top , but i have read about vitamin D .... and my god . what we should all know about this and what our GP fail to tell us . not that is a quick fix or a cure.

5 days of doing the VIT D with our son today was the 1st time in a long time that when he wanted me to lift him up that he looked at my face and thug my clothes to get my attention

upon speaking to other mom with has a child with autism ,, some have done the vit d . and seen a difference with in there child ...

what do you think of this ?

Morgan - posted on 07/01/2012

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I will do my best to answer your questions with regards to my son but every child is different :) my son who is know 4 has inverted footing..he wears orthodoxes to correct this..his physiotherapist says it is due to his low muscle tone.
I have never changed my sons diet. He has been a picky eating for as long as I could remember so removing or going on the cf/gt diet wasn't realistic.
My son has never pointed unfortunately..I think I can count on one hand how many times hes done it.
Just remember that autism is just a diagnoses..my son has grown so much since we first found out (24 months..knew since 6months) he is a delight to be around and has thought me sooooo much.

Laura_ruddy - posted on 07/01/2012

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i think once we get our EI appointment all this will be done HOPEFULLY ...

we are working with him with few different foods .. today he has small piece of burger with mash spuds... but he threw up the spuds ,, no burger !!!!!

he did gag few times with burger but not all ,,,, good ???

we cut out all tv ,he used to watch 1hr in morning while i was getting breakfasts ready etc ,, all gone .. bye bye mickey mouse

we have put him in vitamins a-z kind for babies ,, not saying this will make a difference to him. but we thought with the lack of everyday foods eg: veg-fruit-meat , that it was needed ... my son has all his teeth ,,, last 8 cut at once back teeth in all and nearly fully down.. we were hoping with all teeth he might start to chew as it seemed he bite foods with side teeth rather than front ,, like soft foods etc ...

i am getting a few result tomorrow with x-rays so fingers crossed ...


thank you for you response

Anaquita - posted on 07/01/2012

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Since his throat came back 100% fine, then it's likely a sensory issue. Most kids on the spectrum have some form of sensory processing disorder in an area, or two... or more. The severity of SPD varies, and you ought to consider occupational therapy for his eating issues.

Laura_ruddy - posted on 07/01/2012

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yes we are currently awaiting a few more appointments - blood work -MRI and the Early Intervention -
we have had him x-rayed on his throat all came back 100% .. so both my and hubby are confused

but today is a new day and we are changing most in his life , all for the good ..

am like that i try to stay away from the internet unless its a right site ,, like autism ireland etc

thank you very much for you time and comments

Anaquita - posted on 06/30/2012

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Forgot, number 4. Hand gestures while talking is common for most people. It is a bit odd he hasn't pointed or used hand gestures.

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