Anybody with their child being weaned off Risperdal??

Jennifer - posted on 02/16/2009 ( 23 moms have responded )

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Roughly 3 weeks ago, we began weaning my son off Risperdal that was initially prescribed due to a tic (cough). Fast forward, he's completely off Risperdal entirely for the last week. He recently began this thing with his eyes, where he's looking at you during a conversation, but then briefly looks up and to the right, and then right back at you. He says he doesn't know he's doing it.

He knows WHY he's taking all of his meds (he's on 4), and what they help with. And when asked if he feels better ON the Risperdal than off, he tells me his body feels better ON it. So two questions...

Anyone experienced potential withdrawals from Risperdal?? That being some weird behaviors AFTERWARDS. And two...how much weight do you give your child's responses? My son is 9 1/2.

Thanks for your help!

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Athena - posted on 02/17/2009

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my son is 11 and was taking it since he was 4.he has PDD and ADHD.he has been off for about 2 months and i just called the dr to get them back.it works wonders for him and i tried for the dr to get him off but he is not the same without.im not sure about your case but at first it seems like it wasnt going to be too bad but my husband and i made the choice to put him back on.he has trouble with his work and with anything i have to call his name over and over again to keep him on it.now he eats alot more on it,but we do blood test every 6 months.so what im trying to say is that i like the med but thats just me.you can write back if anymore questions.i also have a 9yr old autistic boy that is on no meds.....but its nice to have ppl to talk to about these things...take care

Kludwik - posted on 12/09/2013

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As a psychiatric Nurse Practitioner it appears that he may be having what are called extrapyramidal symptoms. You can give him some Benadryl and this should help somewhat but make sure you let your psychiatrist or Psych NP know about these symptoms immediately. It is probably not just from weaning him but he may have developed them to a lesser extent when he was on the risperidone and you just noticed it as he was coming off.

Shannon - posted on 12/03/2012

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We took my son of Risperidone yesterday. He is 5 years old and has been on it for six months. When he started the medicine 6 months ago, he weighed 47 pounds. Now 6 months later he weighs 70 pounds. It made him gain so much weight. The doctor just prescribed Intuniv instead. I hope it works. His body built up a tolerance to Risperidone and it was not working well anymore.

User - posted on 10/20/2012

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Hi there my son has ADHD/ Aspergers and he had all the major symptoms OCD, Sensory issues ect. He also use to hit his head repetitively against the wall - they started him on risperdal when he was 3 years old and I put my foot down a few months back - since he has been of it his speech and interaction with us has improved drastically, his aspergers problems seems to be a bit more prominent. We added concerta for the ADHD part since none of the natural remedies I tried were effective enough - to be fair my son is super hyper and the natural remedies did help to an extent.

Hope it helps. It is difficult to know what to do, but follow your gut on this. I got a lot of trouble from family who believes in medicating but in the end I know I made the right choice.

Lisa - posted on 02/05/2014

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hi my son has is 16 & has autism , he has been on Risperdal for a number of years now.but recently started to have tic where he cant keep his eyes still.its good to here from ppl in the same boat as me & my husband. since been on it he has gained around bout 14lb or more.he also has increase salvia in his mouth as well .would love to here from someone in the same situation ........ takecare,

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Heather - posted on 07/16/2014

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my son is 15 and was on risperdal for years it really helped him but like his mom he gets immune to the meds easy going off of it he did not have a reaction really but he was just changed to another one while going off i do let him tell me and his drs how the meds make him feel and it depends on him what we give him it has worked for us but i am sure it all depends on the childs level of functioning

Akilah - posted on 07/10/2014

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My son is 15 an experience the same thing eye tic and mouth moving... Been on resperidone every since the age of 12 years old...

Akilah - posted on 07/10/2014

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Hi I'm a single mother of 2 autistic boys... There father are not in there life sometime life for me can be very overwhelming.... I've been dealing with depression crying all the time seem like things will never get better... Can someone help me out on how u deal with the stress... Any advices thanks

Cara - posted on 06/21/2014

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My fiancé's son is 6 years old and he has been on Respiridone for almost 6 months for Autism. He is considered on the spectrum, high functioning. We have shared custody and we never have any behavior resembling Autism. All adults on our side of the family with extensive child have not seen a trace of Autism. My fiancé attempted to get full custody of his son a few months ago, but it didn't happen. The Judge did order the mother to have her son re-evaluated for Autism ... almost 6 months have passed and she has not done so. However his Respiridone has been increased to 25 mg twice a day. We have noticed over the last few weeks that as the medication is wearing off, he gets really itchy rashes. We have attempted to take him to the doctors and he says he can't do anything, that he needs to go to an allergist now. The Psychiatrist said he needs to see a dermatologist/allergist. Side note: these are Kaiser doctors. The problem with getting him to the doctor to document the rash is that it only lasts for about 20 minutes. Why are the doctors unaware of this type of reaction from the rash. I have read about the lawsuit against Johnson & Johnson and how Respiridone was not approved for use with children. If he is getting rashes as the medication is wearing off, what is happening on the inside of his body?

Kludwik - posted on 01/26/2014

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There are what are called "transient tics of childhood" which can occur usually between the ages of 8 and 12. They will disappear by themselves. Stimulant medications can also cause or increase the tics in type or in number. (Stimulants are prescribed for ADHD).

Kludwik - posted on 01/26/2014

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Why was your son on rispersal? There are only 2 diagnoses for which it should be prescribed, aggressive autism or bipolar disorder. Intuniv is prescribed for ADHD.

Shanon - posted on 10/19/2012

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Hello Athena, I was wondering with the child that is taking resperidal. How often and how much worked for your child?

Jeannine - posted on 08/17/2012

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My son gained weight cause risperdal. Has anyone used Rolatin or orange oil to help with the drooling?

Tina - posted on 08/17/2012

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Hi my son is 8 and has been taking Risperdal since he was 5.. My son has ADHD,Aspergers, and intermitten explosive disorder. Sometimes i feel that it makes him more whiney but for the most part stabalizes the mood. Has anyone expierienced alot of wieght gain? My son is 123 lbs and 8 years old.

Jeannine - posted on 08/16/2012

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my son was put on it last year for mood disorder. He is 19 and gained 15 lbs. I currently asked his doctor to wean him off due to the lawsuit against Johnson and Johnson and because of clinical studies showing that this med should be used for short term solution since the adverse reaction will happened if used longer. I'm hoping once we get him off Riperdal his drooling will stop since this med caused it to begin with. If anyone can advise that the drooling will ceased i would greatly appreciate it.

Karin - posted on 02/26/2009

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Thanks for sharing your experience with me about the Risperdal. It's interesting how there are so many uses for medications, and how some of the "side-effects" they tell you to watch for are some of the same things the docs prescribe the meds for. *shakes head, laughing*
How is your son doing? I hope he's doing better! Have you tried adding in the Omega 3's? It's a good thing to help with the increase in cholesterol that Risperdal causes, it will protect his heart and blood vessels.
Take care!

Brandie - posted on 02/22/2009

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a tic? you medicated your child over a tic? 



is that realy wort the risk?



im sorry but im realy against medicating my child, he does fine without any meds. and there are other ways around curbing behaviour without meds. dont get me wrong im sure some kids may need then but not as many as what are on them. if hes harming himself or other people ok.. if something is going to calm him down and stop him where nothing else works i can understand that. but because of a tic.. im sorry i dont mean to be rude.. but it just dosent seem worth the risk that these meds have.. :(

Jennifer - posted on 02/19/2009

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This is true, Karin, but when they did the studies of Risperdal on Tourette's, for example, they found that is not only controlled the behaviors associated with Tourette's, but it also controlled their tics as well. My son was on such a small amount of Risperdal (used to control tics for a lot of ASD children), but it still worried me at the same time, so it was our decision to wean him off since the tic had actually stopped. We wanted to see where that left him.

Karin - posted on 02/18/2009

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I'm curious why your son was prescribed Risperdal for a tic - one of the side effects of Risperdal is that it _causes_ tics. I have a son who is bipolar/ADHD and he is on Risperdal for his mood swings, it is an anti-psychotic, and it calms him at night. (He is also on Lithium and Adderall XR). I also have another son who has Aspergers, he's never been on any meds. In any case, you may want to try some Omega 3 fatty acids - Coromega makes a great orange flavored gel that tastes really good. There have been lots of studies recently that show supplementing with Omega 3 fatty acids and DHA help greatly with the neural transmissions and helps to protect the brain in kids with autism and bipolar disorder. It also helps protect the heart and blood vessels from the increased cholesterol that Risperdal causes. It has helped my son immensely!

Rachel - posted on 02/18/2009

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My cousins son does the same thing with his eyes when he is anxious or nervous.  I don't believe he had been on or is on any meds.  He doesn't realize he is doing it.  He is around the same age and has aspergers.  Hope that helps, good luck.

Jennifer - posted on 02/17/2009

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Thank you, Athena, for your response. My son has Asperger's and ADHD, and the whole reason we began this med is because of a tic. I now see some facial tics since he was weaned off, but I'm curious to know if this is something that will wear off?? He's beginning to pull at his collar, too, and his eyes are bothering him more now. I really don't know WHAT to do....thanks for your support!!

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