Aspergers Awareness Group

Pam - posted on 12/19/2012

Hi I have husband with asperges I must admit I struggle on a daily basis with his behaviour and apparent total lack of consideration for me I know I should understand but it's not only me is it who just ends up wanting to run away I feel isolated angry that I didn't know this 5 years ago when we married and just upset
Just like others it explains so much for me about his dad and his over bearing son
If anyone wants to chat I think it may help how I feel if I try to behave like he does he shouts gets angry and says I'm being pathetic I'm at my wits end

Stephanie - posted on 05/23/2011

My 9 year old daughter has not been diagnosed with Aspergers, but I’ve been told she has similar symptoms. They thought ADD, and then changed to Anxiety. She has a lot of anxiety when it’s time to go to school. The teachers continue to complain she will not concentrate in school. She does not like loud noises, so she will not eat in the lunch room. We’ve had several issues with her not wanting to eat; it can be loud noises or fear of the food making her sick or will hurt her stomach. She has been hospitalized twice because she is so underweight. They found at UNC that she has gastritis and complete tracheal rings (narrowed trachea), which may have played a role in the eating problems. I still don’t know much about Aspergers, can some one maybe give be more info on it or advice???

Andrea - posted on 03/08/2011

My son is 10years old and was dianosed with aspergers in sept 2010 after 5yrs off being told he had ADHD, it was not a shock to me as I have always thought he had ASD signs....
He has just been assessed by an educational psychologist and his score where quiet high up to age16 on many things until it came to putting it down on paper and now we have been told he has specific learning difficulties and dyspraxia. We have got a statement of educational needs and now trying to get him into a school that can deal with his high cognitive ability as well as the spld. We r finding that hard work.... If anyone has been through this in England please could you give me some advise..... Thank you

Nicole - posted on 12/14/2010

hi i have a 13 year old daughter....she is my heart. she doens't really have any friends. It hurts my heart to hear her at times wishing she could talk on the phone but has nobody to call....however when i try she says not ready.....in time in time

Nicole - posted on 12/14/2010

Hi I have a 13 year old daughter with Aspie and sensory i.d she is my world and love her mind!!!

Tashina - posted on 12/08/2010

My 11 year old son was diagnosed at the age of 6years with ASD. He was non verbal until he was 3 years old and not one doctor helped or listened to my cries for help about there being something different with his development. Now he is in middle school and has to transition between classes all day long which creates anxiety for him. On top of it all the teachers keep puttin him in In School Suspension for him "being disruptive." Which all of us moms know goes with the spectrum. I am struggling with what to do, should I pull him outta school and put him in an online charter school or what? I can tell that neither the teachers nor the special ed service director knows how to implement something for him within a middle school setting. I'm at a loss....

Debbie - posted on 10/20/2010

My son, who is 13 yrs old, was finally diagnosed with ADHD and Aspergers 1 yr ago. In the past 6 months, he has been very aggressive and refuses to following simple requests like please put your dirty clothes inside the hamper instead of outside the hamper. Most times he will start yelling and calling me names, throwing things, etc. Is this common?

Bridgette - posted on 10/07/2010

Hi, My 7 year old son had been diagnosed with mild asperger's syndrome and at 7 he is very aggresive, "out of control" and I too am terrified he will hurt someone, it is my experience with his asps that aggresion for him is a way of expressing his overload or that he doesnt want to hear or do something, I find situation's where it's too noisy can cause him to run, lash out including hit out, I hope this may have helped..regards Bridgette

Meri - posted on 09/01/2010

I have a 16 year old daughter with Aspergers, I struggle alot with her agressiveness and mood swings. I myself have bipolar and see alot of myself in my daughter! I dont know where or who to turn to to get my daughter assessed to see if she might also have Bipolar. I cant seem to find someone who is a specialist in Bipolar/mood disorders who also knows about Aspergers. I dont want them to misdiognose her if they miss take her aspergers for something else as it has happened once before with a psychiatrist who obviously didnt know much about Aspergers.. I would appreciate any feedback..
and I would love to hear from other mothers who have teenage daughters / sons who have Aspergers...
Meri

Nicole - posted on 08/13/2010

Although my daughter was just recently diagnosed her father and i did alot of research concerning autistic spectrum disorders before her diagnosis due to our suspicions. My first peice of advice is read this book it has been very helpful and informative Aspergers syndrome author tony attwood. I highly recomend it. Also speak to your sons psychologist and think possibly about looking into some parenting classes, this was recomended by my sons pediatrician so that we could better learn how to teach and handle his probs. My son has ADHD as well and with both my children I've learned that they operate on a diff. wavelength then we do so they are just as frustrated as we are most of the time. take a breath walk away if you need to, sit down with him and find out if he truly understands whats going on, ask him, if he seems to grasp the situation then youve got your answer, if he doesnt explain it to him in very simple and literal terms. Try turning the situation and rules for the future into a story relating to him. This is one thing reccomended in the book previously mentioned and it seems to work. I hope this was helpful in some way. Best of luck

Suzanne - posted on 08/08/2010

looking for parents of teen girls with aspbergers dx. have trouble finding people to talk to. My daughter is 15. diagnosed at 13. stays home at all times. is fine with no friends.

Jenn - posted on 05/05/2010

I have a 9 yr. old son who we are just discovering has some Aspbergers/PDD-NOS symptoms. Ever since Christmas Break things have escualted at school and his frequent melt downs have now become tantrums and he becomes very angry and gets frustrated easily. He is also having a hard time with not talking and making noises in class and doesn't stop when asked to. Does anyone have advice that has worked for their child in the classroom setting?

Donna - posted on 04/19/2010

I have a 17 yr old son, originally dx with Bipolar Disorder. Ran the course of meds. Nothing worked since he is actually high functioning Asperger. He is extremely, verbally abusive to me and his father but mainly me. He acts up in front of his younger brothers and has a foul mouth. Now he is shutting down, quit the job his school provided to him, and is refusing to get up in the mornings to go to school. I am trying to get the correct help, just recently switched to Kaiser Medical to see what else is out there. My previous HMO's failed. My extended family doesnt understand the tough love I am trying to provide so they definitely dont support me. Has anyone had to hospitalize and/or throw there AD kid out of the house? How did it go? Regrets? I am afraid he is getting to the point where I cannot have him live in my home and verbally abuse me or be a complete deadbeat not being a functioning part of the family. He is capable of doing the day to day, just wants me to take care of him the rest of his life.

Lisa - posted on 04/14/2010

Carol, my son didn't start sleeping well until age 8, I started leaving music on low or the t.v. with a video in it helped him to sleep--he didn't like the dark....he still to this day likes a light on...

Susan - posted on 03/28/2010

my son was not diagnosed until he was 13,with aspergers.he is very controlling and thinks he knows best about everything.i have 8 other children all older than him.my oldest son is nearly 40.he also has a.d.d.,o.c.d and asthma.he is very limited in what he eats but i dont worry about that anymore as he is 5ft.9 inches tall and weighs 14 stone,a big boy.he can be very hard to control at times and is on rytalin and prosac.he has a top up at 5p.m. and we can see the medication wearing off.he talks nonstop about nothing which is very annoying for people around him.he wont go out on his own and now he doesnt want to go out with us as we are quite old now.he goes to college 4 days a week and a youth club for special needs children,which he loves.we battle to get him to attend things but once he is there he is okay.we take every day as it comes which is all you can do.i have battled for him all his life but i like a good fight.sue

MARY - posted on 03/05/2010

hi my name is Mary Jonguitud and i am looking for a support group here in Prescoot Valley/Prescott for my 11 yr old son who has the following disabilities:
ADHD-BIPOLAR-ASPERGER'S-OCD-SIZURIES. if anyone has any information PLS let me kw..... thanks
Mary

Susie - posted on 02/10/2010

Hi, I am looking for a support group in Dayton,OH. My 8yr old son was just dyigsoned with Asperger's this past fall. I was not surprised about that because I felt he was that or high functioning Austic. Just really struggling with the school and doing his homework. Language arts is not his best at all. Great at the computer, math, and helping.

Adrienna - posted on 02/06/2010

Hello, how did you find out your husband had aspergers? My stepson has been diagnosed with Aspergers and as he doesn't live with us, we face challenges every time he comes to visit. He has many interventions and therapies, that are helping him a great deal and we notice positive changes each visit. I am begining to wonder if my husband might have it as well? How did your husband present aspergers to you?

Katrina - posted on 01/31/2010

Hi, last year I found out that my husband, eldest son, middle son and youngest son are all Asperges. This has answered so many questions for me. They are on the lowet end of the spectrum except for my hubby and youngest son. Although have to say they are not bad with it.
I would be interested in speaking with anyone who would be able to chat with me about this.

Phillipa - posted on 01/26/2010

what is aspergers my sons father aparently had it and they say thats why he was vilent! how do i know if my son has it and how do i go about handleing it pls?

Sharon - posted on 01/08/2010

Hi, I have a 19 year old son who was diagnosed with Aspergers on his 16th birthday. It took sometime for me to accept this as I had always thought of him as perfect. He is perfect but our mindset seems to be that if our child/ren have what some call a "label" to their name then we must treat them completely different. We decided not too and he grew up much as he had been and on Thursday 7th January 2010 we heard he not only passed Matric but has University entrance as well. Believe in your child and stand by them. He will always have Aspergers but he knows he is loved and is no different to his siblings in most things.

Christie - posted on 12/02/2009

sometimes mistake the aggression that comes with Aspberger's as Aspberger's and its not that, its instead BiPolar, so again please get proper diagnosis.

Christie - posted on 12/02/2009

   My son takes Vyvanse and Risperdal. Yes he is on stronger doses than most kids his age but this is what it takes, but he acts like most other normal kids do that do not have Asperberger's. Different meds work for different people, but these have been great for us. After a period of time you sometimes need to increase doses or change all together I do know. What you are using now will not always work and there will be some days that you think they didn't even take it when you know they did, just goes hand in hand. 

Christie - posted on 12/02/2009

Please make sure your child is properly diagnosed. Its hard for them to be diagnosed with something they don't have because they will wear that label forever. Autism in any form masks so many other things but there are things that do set it apart from other things as well. Please do this.

Christie - posted on 12/02/2009

My 7 year old has Aspberger's, was diagnosed several years ago and we have just dealt with it like any other parent would deal with their child. His problems are more in the morning than any other time of the day. He has more trouble at home than anywhere else. You seem to figure out in the long run what is Aspberger's and what is being a normal kid if you have older children or are around more kids. Just hold your head up high and it will be ok, they are your child and you will love them no matter what.

Lillian - posted on 12/01/2009

My son used to be very moody and had alot of anger without warning. If he won't talk to the therapist, then keep taking him to different therapist until you find one that reaches him. Or you can find a school that works only with the Asperger's and ADHD children. They include pyscotheraphy in their curriculum along with anger management therapy. The school is called Summit Academy. Just look it up on the website and find one closest to you. Lillian Chappell

Cayley - posted on 11/19/2009

Hi, I am Cayley and my son Brandon 10 years old Ashpegerr"s I just relocayed from Nor Cal ( Los Gatos) to So Cal ( Carlsbad) and am looking for a support group.

Tiffany - posted on 11/18/2009

Where I live there are many specialist that are not seeing what my family sees with my son. He hasn't fully been diagnosed with Autism, but in my heart I know that he is. We finally were approved for SSI and now my son is receiving it, but I had to fight for 4 years. My son is very aggressive at times and has major meltdowns to the point I am helpless...I don't know what to do to help him and my husband and I are wanting more specialist to see what we see (so our son can be diagnosed properly and we can receive the correct help for him). He's been diagnosed with 4 items, but they are not wanting to diagnose him with Autism. How is that they can give him 4 diagnoses-all different, but they struggle with diagnosing him with Autism? Frustrating!!

Brenda - posted on 11/02/2009

I noticed my son who just turned 13 has been showing more agression as each year progress'. He is dx mild to moderate Asperger/Autism. We, as in family and school are working very hard to get him to communicate with us when he is upset, frustrated, angry etc. We have actually gone back to a modified PEC system, but instead of pics we are using word phrases that he can hold up. Chris is very verbal, but during the time when he is upset he shuts down and cannot get the words out. This seems to be working so far. Is this behavioral more typical of Aspergers. I have always thought of my son as Autistic but lately I have seen so many post about Asperger behavioral it makes me wonder what the diff is? If anyone could help with that it would be most appreciated. I am really scared he will hurt someone someday. He is a big kid in a elem school. The school has been fantastic and very supportive thru the year and I am very grateful.

Christine - posted on 10/20/2009

I have a 19 year old son. We have been dealing with this for years. At first he was diagnosed with many things. OCD, PDD, ADHD...about 8 years ago we finally got the Asperger's diagnosis. It has been hard to deal with. I don't want to scare any of you parents. But we have noticed that as he got older the aggressions increased. He is now still having issues. He too can change at the drop of a dime. I have worked with a great program here in my town who finally understood him and learned how to talk/redirect him. Hopefully I can help someone with their questions.

Rebecca - posted on 10/12/2009

I am having the same problem, my 6 year old is diaganosed with ADHD and pervasive developmental disorder not otherwise specified, but I am totaly one hundred percent sure it is Aspbergers. His therapist will not see him any more becuse he(my son) willl not talk to him, which I feel is totaly counter productive to the whole therapy thing. He is so loving and sweet and so angry at times he can turn at the drop pf a dime. If anything works for you please share

Shelia - posted on 09/09/2009

THANK GOD SOMEONE TO TALK TO

DANICA - posted on 09/02/2009

Quoting Marcella:

Hi! I have a 7 year old little boy with both ADHD and Asperger's, my problem is I am not very good at dealing with his problem and I don't know when he is being naughty or if its his problem, in fact I dont know how to deal with the situation full stop. Any help or advice would be grateful.

I have a 13 year old son who was diagnosed w/Asperger, ADHD, panic/anxiety. What worked for me, as far as discipline, when he acted out was to treat it as him acting out and not say it was his disorder. I treated him as I did my two older children who are “normal”. (if there is such a thing) He learned overtime that his actions were inappropriate and he wouldn't do it then. You have to get at his eye level and explain it to him and let him know that he did something wrong and tell him to let you know if something is bothering him. For you, you can learn to read him. By that I mean watch him while he does things and figure out the early signs of his acting out so you can stop it before it get too bad. For my son it was, and is still, rapid eye movements and finger twitching, shuffling feet. Once I start to see him do those things I know something is brewing and I move in to action. I don't know if your son is on any medication, but I know it helped my son a lot. With his ADHD he would get his thoughts all jumbled but now it happens much less. It took a little while before we found what worked for him but once we did it was a gift. I didn't want him on all kinds of drugs but I have realized that that is what he needed and that over time he may be able to come off of some of them. Through our process of finding what worked for him we found that he does not do well on stimulant drugs so for his ADHD he takes Strattera and it has worked great. The one side effect of this drug for him is he gained some weight but nothing too major. I just have to make sure he stays active.

I hope that this helps!

Susan - posted on 08/26/2009

Hi my 17 year old daugther was diagnosed with Aspergers at 8 and has a learning trouble too and is afttending a state high school in brisbane with the support of her family and the teacher she is doing well and is very good with the computer and cooking, she is a very loving girl and loves animals especially cats LOL hope to chat soon bye susan

Carol - posted on 08/07/2009

Hi my 4 year old son has been diagnosed with Aspergers/Gifted, in so many ways its like living with a 14 year old and a emotional 2 year old all rolled into one. Does anyone have any advice especially on regular disturbed sleeping?

Marcella - posted on 08/04/2009

Hi! I have a 7 year old little boy with both ADHD and Asperger's, my problem is I am not very good at dealing with his problem and I don't know when he is being naughty or if its his problem, in fact I dont know how to deal with the situation full stop. Any help or advice would be grateful.

Brenda - posted on 02/25/2009

Hi: My 8yr old son was diagnosed with type one diabetes 2 yrs ago and Autism (possibly Aspberger's - High end of the spectrum and most more than likely Hyperlexia). My Diabetic educator says she is seeing more type one diabetic children with Autism - do you think there is a link?