Assistance for diapers?!?

Julie - posted on 07/21/2010 ( 21 moms have responded )

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I have a 6 yr old with Autism who show little to no hope of being potty trained soon. Has anyone else had experience with finding BIG diapers/Pull-Ups as your child gets older? I am wondering if there is some way that his state Medical Assistance will cover the cost of larger diapers since he is "untrainable" due to his disability? ALSO, where to find the big ones - any ideas?!? THANKS!!

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Linda - posted on 08/10/2010

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Yes your State Medicaid WILL MOST CERTAINLY pay usually past the age of 5 for diapers of any size he needs. Get a hold of the special needs department of your Medicaid providor and ask what you need. You will definitely need a script. I would also TRY to get Attends brand diapers as they really are the best absorbant I have ever found in the 30 years I have worked with kids.

Jennifer - posted on 07/26/2010

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Well Julie I think we are doing the best thing for our kids, trusting in the Lords plan, I had learned that his timeing is better than mine, and that our sweet angels can hear him in there hearts, and when it's time he will guide them through it, I truely belive that.
I want to thank you so much for this conversation, it's always so nice when people can relate to your struggles

Jennifer - posted on 07/25/2010

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She is 5, 6 in January, I had all but lost hope thought she would be in diapers for a long time, and i was ok really, then her teacher approached me about potty training, I dident think she was ready, but we went ahead, after 6 months no progress, I was ready to stop, she wasent ready, I was givin a book written by a mother of a special needs boy (she is was a member of my church) it changed everything, now I don't know if you are a praying woman, but I am, in this book, she wrote about her specific prayers, so I did, I prayed for piepers freedom from herself, within a few days it all clicked, she was going in the potty by herself, even poop, it was my own mirical.
I will keep your son in my prayers, I know someday it will happen for you, hang in there, God gives us special moms special strengths to get through it all, with grace, God bless you.

Jennifer - posted on 07/24/2010

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if you go to your regular doctor ask them about state issued diapers, i had this for my daughter, if your child is over 4 and has a disability you should be able to get them, they will need to write a prescription.
Dont give up my daughter actually became potty trained this year, we will keep you in our prayer, it will happen

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Elizabeth - posted on 07/23/2012

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juilie i'm in the same boat. carrying extra clothes all the time with me. embarrassed when we go out and theres a puddle on the floor. My carpets SMELL! his bed ruin! even after putting wet pads on it. Car smells. sometimes every 15 mins he goes sometimes it's after 5 mins he has to go. i can't just pull over every 5 mins. I never have any type of life. I contacted his medicaid and they are walking me through the process of diapers now! This may even help my relationship with his father as he's disturbed about this and can't go out in public with my son. Thanks for the question cuz i'm in the state of Kansas too. because i wouldn't of called my son's medicaid if i didn't hear it from others.

Julie - posted on 08/10/2010

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THANKS to all who have offered support and assistance - you are VERY much appreciated!!

Julie - posted on 07/26/2010

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Again, to Jennifer - Thank you! Our conversation has been very uplifting...I appreciate your prayers and your thoughts...I am always here if you need someone to talk to, as well. BTW, is the book that was given to you available to the public? Bless you and yours. :)

Julie - posted on 07/25/2010

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Thank you, Jennifer! And may God bless you! I am definitely a prayin gal - God has worked wonders in our lives, the latest miracle being that our little guy's adoption has finally been finalized. I met him 3 yrs ago, fell in love, and we have been fighting to adopt him ever since. He has been in state custody most of his life and in a foster home that didn't care about or have time for him. It breaks my heart to think of all he could have accomplished if he had had the love and commitment he so deserved for the first 4 yrs of his life...but we make progress daily and I know we will continue this for a long time! He is smart, yet basically nonverbal and I believe the communication delay is what hold him back on many things...that's why I am wondering if we should really push communication/speech and let the potty training go for a while... I don't really know, but I know God has a special plan for all of us...Thanks again. :)

Lisa - posted on 07/24/2010

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Oh, he also gets size 7, and we get them from Rite Aid. Weis also does it as well in Pa!

Lisa - posted on 07/24/2010

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We live in Pa, and my son is on MA. They cover the diapers with a doctors prescription with the diagnosis, # of diapers needed or used per day, and the size. We have been doing this for over a year. My autistic son is 5, and we still have occasional day accidents, but he uses them at night. Email me if you need any help, Lisa stressedmomof2@yahoo.com

Rachael - posted on 07/23/2010

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Hi Julie I'm in Australia so not sure if this is helpful to you!!! I thought my boy would never be trained but I have him out of nappies between 8:30am and 4:00pm at the moment, has been for the past 10 months, just through persistance and toilet timing - not training - don't think he will ever be "trained". Create the routine and stick with it and amazing things can happen. Everyone has to do the same thing also.... If his School aren't supporting your routine then it wont happen. I take him at 8:30am and the undies go on. Then again at 11:30am, 1:30pm, 3pm and then the nappy goes back on at 4pm, weekdays and weekends. He still wont do a poo and hangs on till 4pm or before 8:30am, but I'm sure we will get there in time... We get some government assistance about $400 Aus a year... Doesn't nearly cover it but its something! You get this by going through a Continence Nurse who determines that there is a chance that they may never be trained and who after a few record keeping reports and any tests sign off on the funding support. Tena make BIG nappies for kids right through to Adults. I have tried them all since Huggies became too small and these seem to provide the best cover. He is currently in Tena Slip "plus" (small) and they give great coverage for my 45kg 7 year old. Their web site is www.tena.com and they are made in the Netherlands but sold all over the world! I'm sure if you went to this site you could find out your "local" distributor. Good luck with it all, but don't give up. Keep trying with the timing and I'm sure you will win in the end!!! I never thought I would say this to you, I didn't think it would happen either but if everyone is doing the same thing it will. We had a few accidents but only in the first 4 or 5 weeks and now never!!!

Letitia - posted on 07/23/2010

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I am from Arizona. I know that in Arizona at least, if you have DDD, then with a prescription from your doctor, they will help cover the cost of diapers for kids over the age of three with special needs. Just something to check into.

Jessica - posted on 07/23/2010

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We got through Shield Healthcare and get a diapers every month and it covered by the twins state insurance. I am sure they can help you.

Julie - posted on 07/22/2010

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Thanks, Sheila, for your help...not sure how it will work here, though, since I am in Kansas. I appreciate your advice, though! :)

Sheila - posted on 07/22/2010

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If you are in Ontario, contact Community and Social Services. I believe they would direct you to Easter Seals Society of Canada....I am not a hundred per cent sure, but I do KNOW that they are covered and someone at Community and Social SErvices will be of big help.

The Goodnights go up to size 125lbs and are a good product. Walmart does have a store brand that is cheaper, but if you can get the money back, go with the goodnights!

Good luck,

Sheila

Melissa - posted on 07/21/2010

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UnderJams overnight pull-ups are made for bedwetters and can be purchased at Target and probably Walmart. I got them for my son, who is 42 lbs, and he was in the smallest size. He decided it was suddenly time to potty train, so we only used one box, but they worked great when we used them. I have a friend whose daughter is severely disabled due to CP and her diapers were paid for by the state. They came via special order to the local pharmacy. I don't know if that was due to income level or what, but it can be done. I believe the cutoff age is 4 years, so your son would be old enough if you meet whatever other qualifications there are. Hope that helps!

Susan - posted on 07/21/2010

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GoodNights are considered a Medical Expense and can currently be written off if you have a flexible pre-tax spending account. Or if your family saves all medical receipts for the end of the year to write off after the fact, save the goodnight receipts. The XL goodnights should fit?

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