Autism and epilepsy

[deleted account] ( 13 moms have responded )

I'd be curious to know how many of you have children with both epilepsy and some degree of autism. I often wondered if the seizure meds contributed to the odd behaviors. My daughter's pediatric neurologist finally said that she does in fact have autism.

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Michelle - posted on 07/19/2009

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My son was diagnosed w/ PDD- Asperger's and then the neurologist right away did the EEG to see if he was having the seizures. that is when my son was diagnosed with the Childhood Benign Epilepsy, ADHD, OCD, & also some Bipolar symptoms. He takes the Trileptal and it works great. The doctor says that he should grow out of them within 2 yrs. of taking medication.

[deleted account]

Love your picture. My "little" girl will be 26 next year, although she functions more like a 5-7 year old in a lot of areas. She also was and still gets sick a lot. Her biggest challenges are with common sense understanding and within the last couple years, getting upset with what she hears. She used to get very upset with the word "no" or anything negative and she still does. She also now changes words she hears from people, tv., music and says the opposite. I don't know how she manages to sing and change the words while singing, but she does. She used to be able to sing a song but now is only interested in changing the words. The same goes for what used to be her favorite shows...just wants to change everything. Her seizure meds have been recently increased, so hopefully they will slow down. Good luck to you.

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[deleted account]

Hi there. My son also has both conditions and I know the med Topomax can make his ticks and behaviour worse. Would like to know more about how you are going
Cheers, Rachel.

Treanna - posted on 06/12/2009

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My daughter was diagnosed with epilepsy a few months ago. I was told ASD kids can develop epilepsy during puberty

Colette - posted on 06/12/2009

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Quoting Melissa:

My son has finally been diagnosed with autism at age 10 after many other diagnoses such as ADD, language disorder (he went to a language school ft for 3 years, epilepsy etc over the years. He doesn't have seizures as such, but has abnormal epileptiform activity in his temporal/occipital lobes. Apparently he's at higher risk of seizures but at this point no anticonvulsant medication has helped. I have heard as high as 80% of kids diagnosed with autism/aspergers/NOS-PDD have some form of abnormal EEG. It makes sense given it's a neurobiological disorder. But I wonder how many parents of children with autism have even been referred for an EEG? IS it standard practice (seeing as there is supposed to be a link) for Paeds to refer suspected cases of autism? Has anyone had any luck with anticonvulsants successfully managing epileptiform activity (as opposed to seizures)?



yes,  we are having very nice results with anti-seizure/convulsion medication...my son NIcky does have everything attach to the autism/lack of oxygen/brain disorder/seizure, in fact, I always said that it was cause by his first vaccins...but, 18 years later, even if they agree, the damage is done.  We have to live with it and make his life comfortable, happy and give him as much learning possibilities as I can/with helpers also



I  am taking him off, slow taken of the risperdone, he's been on that for the last 5 years, and had gain at least 60 pounds, making our lives very hard, and harder with the learning and walking...he is taking Frisium, anti seizure meds, they calm down the brain activities/electricity going on, they  always worked very well since the age of 3, they were increased with size and age and seizures activities also..he is very well under control..takes the epival also...increased with age and size also...they control the seizures but don't stop the learning process..again, Nicky is doing as well as he can...for information purpose only, epileptic/seizures activites are all the same...they can be in forms of absence with a movement of the hands, can be cause by stress in the house, noises, pain...I use to tell the specialist that Nicky invented new kinds of them...hope this help



Colette

Cathy - posted on 06/11/2009

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My daughter is 7, was diagnosed w/PDD-NOS 2 or 3 yrs ago. When she was 3 she developed Febrile Seizures which only came on when she was sick with an ear infection. Her EEG showed "slow spike waves of 3 mhz, with a potential for epilepsy." The neurologist we took her too wanted to put her on meds right away, we were against it. He diagnosed her with Absence Seizures ("staring episodes" that typically last 10-15 seconds). My daughter is globally-delayed in speech/fine motor and gross motor. She is very receptive and quite smart. She uses a Dynavox M3 in school to communicate with in addition to basic signs and verbal approximations. She has high energy and I joke a lot and say she is my little Energizer Bunny, she keeps going and going and going!!! She doesn't get tired enough to fall asleep on her own, so every night I give her Melatonin to relax her enough to get her to want to go to sleep. And she always starts off in her bed and boomerangs into mine!! At 7, she's a little thing....only about 3 1/2" tall and 50 lbs. In school a Behavioral Consultant devised a behavioral plan for her to eliminate headbanging. She has a 1:1 aide who is wonderful with her and at school they have succeeded in reducing her headbanging. Much more than I can say for home!! The other evening she threw herself down and smacked the back of her head on a hard ceramic floor. Seemed fine afterwards. The following day at school, probably late morning her aide noticed her some odd behaviors....breathing funny, just before her eyes had rolled back into her head for like 4 secs. Then afterwards her mobility was unbalanced to the point of tripping and falling when she walked. I kept her home today for observation, she seems fine. Made an appointment with a pediatric neuro, earliest appt they could give me was JULY 14th!!!



Anti-seizure meds I guess will need to be introduced now. I was hoping we wouldn't have to go the medication route, as she was only having Absence Seizures, which were infrequent. I didn't want to go the medication route b/c I was hoping she would outgrow the Absence Seizures eventually. Anyhow, if anyone has any anti-seizure medication suggestions, what is best, what to stay clear of, etc....that would be appreciated.



Thanks!!

Dara - posted on 06/11/2009

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Sammy has PDD and also has sub clinical epilepsy (Seizures you cant see). His dr told us that it is common in autistic children. he has been on depakote for a little over a year now. he also has brain damage from the seizures because nobody figured it out for 4 years and he has develpmental delays and some low muscle tone as well

Melissa - posted on 06/11/2009

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My son has finally been diagnosed with autism at age 10 after many other diagnoses such as ADD, language disorder (he went to a language school ft for 3 years, epilepsy etc over the years. He doesn't have seizures as such, but has abnormal epileptiform activity in his temporal/occipital lobes. Apparently he's at higher risk of seizures but at this point no anticonvulsant medication has helped. I have heard as high as 80% of kids diagnosed with autism/aspergers/NOS-PDD have some form of abnormal EEG. It makes sense given it's a neurobiological disorder. But I wonder how many parents of children with autism have even been referred for an EEG? IS it standard practice (seeing as there is supposed to be a link) for Paeds to refer suspected cases of autism? Has anyone had any luck with anticonvulsants successfully managing epileptiform activity (as opposed to seizures)?

[deleted account]

From what I've read here, it IS in fact very common. I'll never understand, but I guess I'm not supposed to. My role as a mom is to accept and deal with it....and that's never easy. Thanks to everyone for your input.

Angela - posted on 06/09/2009

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My oldest son was diagnosed with PDD at 3.5 yrs old but did not have his first grandma seizure until he was about 6 yrs old. I was told he would grow out of them with in two years. He will be 15 yrs old in a few weeks and is still on medication.

Donna - posted on 06/06/2009

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Yes my son has both, however I recognised the autism before the seizures!! Meds actually helped autistic traits markedly. Amazing actually when I stop and reflect, its been a while.

Michelle - posted on 05/31/2009

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well, this is interesting....just last week i attended an aspergers information thing..had a woman giving a presentation thing with just general info about it all. she actually brought up exactly what your question is about....apparently many autistic or aspergers kids have issues at one time or another with seizures (not every one, but it appears as though there may be a bit of a link there in some cases..). i know my 5 yr old son doesn't have seizures, although when he was three he got really sick and started having fits....was a very sick little boy and at the end of testing him for all they could think of just put it down to meningitis...hard to say now but the more i hear the words seizures and autism together, makes me wonder....!

Tonya - posted on 05/28/2009

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my son was first diagnosed with infantile spasms (form of epilepsy) at the age of 6 months and was just recently diagnosed with autism two months ago at the age of 2 years and 7 months..... he had to get ACTH injection and was on zonegran. he has been seizure free for 2 years now and off meds for a year (still has febrile seizures though) i think in my sons case the meds did mess up his immune system even more and it made all the things that cause autism worse (if that makes sense?) thats what i think doctors still dont know of course... my son is also developmentally delayed and has low muscle tone... does ur little girl have these????

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