Cherish - posted on 12/29/2011 ( 2 moms have responded )
Brian is now 9 and was dx'd w/"severe autism"(non-verbal),DD,hypotonia,"MR",SPD
etc etc when he was 2.He was dx'd w/type 1 diabetes about a year ago.
About a week ago I just happened to be up and around 3am I heard him making
this weird gurgling/grunting noise(it is hard to describe),I went into his
room,he was laying in bed,eyes open and fixed,he was drooling,I sat him up and
he was somewhat stiff,he did not respond to me at all so I laid him back down
and waited.About 2 min later (I think) he"woke up" and looked at me,he looked
confused I checked his blood sugar and it was 148.
The next day he was VERY tired and slept until after 10am.
But after he did that I was thinking for about 6 months,about 1 or 2 times a
month he is VERY tired and I think he has had more then the one seizure I saw
I called the Dr the next day and they kind of blew me off about it,said if it
happened again to take him to ER
My question is..does anyone have any suggestions to see if he is having
nocturnal seizures?I bought a baby monitor but if he does not make that
noise,how can I monitor him??(my friends have kids that have drop and grand mal
seizures and they said they do not always make that noise)
Is there something I can do or a certian time I should maybe go and watch for
them?How often do night seizures "typically" happen? Do they get "worse" or can
they start happening during the day?
Any advise would be appreciated(forgive me if I am not using the correct terms,I
am not new to special needs,but I am obviously un educated as far as seizures