Casein Free and Glueten free diet

Heather - posted on 06/01/2010 ( 7 moms have responded )

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Hello everyone,

I would just like to know what the casein free and glueten free diet is supposed to help. Did anyone have a peptide test to see if your children were having problems processing the proteins? Thank you. I appreciate any feedback. :) Heather

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Julie - posted on 06/02/2010

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I am a celiac, (gluten doesn't agree with me). Also I have allergies to cooked mushrooms, pineapple and coconut! My partner has a nut allergy. Everything in our home has to be cooked from scratch using fresh ingredients. Quite honestly since our diets changed about year and 1/2 ago the kids behaviour has improved no end. No processed foods and ready meals has worked wonders! It was only after I found myself in lots of pain and falling asleep all of the time that I found out that it was a gluten problem, and I have never felt healthier!

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Julie - posted on 06/03/2010

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Sorry Heather i meant to mention that my son is on the spectrum, and the behaviour of all 4 of my kids has changed since their diets did. It is so much worth trying it.

Deanna - posted on 06/03/2010

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Heather,

My daughter is on the spectrum and we visit a DAN doctor. He suggested that my daughter get taken off of gluten all together. The effects that is has on the body for a child on the spectrum is like a dazed and confused behavior...She loves MILK and it is very hard, but he told me she likes the feeling MILK gives her so she craves it! (dazed and confused feeling) We don't notice a problem with casein as our daughter is under sensitive and like in a coma. I was told that children on the spectrum that are over stimulated and easily agitated may help to remove casein to help them focus...very good for children with ADHD and ADD cause of their inability to focus. I don't think doctors are suggesting to remove these items from their diet because of an allergy BUT maybe to help eliminate or help aid in a child's behavior or reaction to his or her outside enviroment. Both Casein and Gluten when broken down give the body a different feel in the body. Milk products calm, sooth, and make the body sleepy. Wheat products burn long and hot causing body to be more active and more receptive to its enviroment which can cause agitation to a child on the spectrum. that is what I was taught and it seems to hold true in my daughter.

hope that helps,

Deanna

Kelly - posted on 06/03/2010

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We introducted the GFCF diet about two months ago. We have seen slight improvements, but nothing miraculous. The idea behind introducing the diet is to eliminate these two things that when combined together create a drug like effect. Now the question has been asked, why doesn't this effect everyone. This still has many debates, but the best explanation I have found is that Autistic children typically already have a low immune system causing their systems not to be able to break down certain types of foods and/or additives like everyone else.



Like mentioned in other comments, to introduce this diet under a doctor you will most likely have to go to a DAN doctor. These doctors are typically not covered by insurance and are expensive. A DAN doctor will perform such tests as you have indicated. We found a registered dietician (RD) who performed a Food Sensitivity test on our son to indicate potential foods that he should not be eating, we are waiting on the results. This was a much cheaper way to go versus the DAN docotor. The RD indicated that if we had reached a plateau in seeing results and/or never saw results, then there was a good chance that he was still getting something that he has a sensitivity too. We are hoping that we can then add some foods back into his diet if he does not have a sensitivity to them. Good luck, this diet is a lot of work, expecially when you feel there are very few doctors who support it. It is definitely work trying though!



One very important thing to remember is that no one out there who is an advocate of the diet will tell you that this exclusively helped their child. Most will say that the diet with therapy and some with other methods is what helped their child.

Lisa - posted on 06/02/2010

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The food is not properly digeste and is absorbed in the intestinal villi. This can lead to an opiate-like reaction. The children is not particularly attentive, they are not learning properly, their brains are not developing properly, due to the lack of nutrition (vitamins/nutrients which arent digested and absorbed). Or inflammation could be occuring in the gut which can cause pain, bouts of crying/anger with no seeming cause...

Lisa - posted on 06/02/2010

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The peptide test costs you money and is not as accurate or helpful as simply changing the diet. You need to do research and learn. 100000have done this. The epidemic is high. 1 in 115 births lead to autism. The cause is our enviromental hazards which we are unaware. Dangerous additives to our food, to animals food, to our food containers. Possibly mercury in our vaccine which injure the immune system and then injection of 3-at-once (MMR vaccine) which may had caused measles in the gut, for which there is no known cure. I do believe in vaccines. Ask for vaccines without themerisol and separate Measles, mumps and reubella vaccine. The Dr may say this is not possible, but it is his responsibility; ask him why not! Sorry, This is very different from J H reply...
Just try GFCF and see, then you can ask for a peptide. I would recommend seeing a DAN doctor and look for help in your area (ASG, etc)

Heather - posted on 06/02/2010

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Hi Julie,



Thank you. We have a cousin who has celiac too. Nice to hear that you and your family are feeling better. I am really trying to find out how this diet helps kids on the spectrum. Thanks again! :)

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