Crohns disease ???

Amber - posted on 05/16/2010 ( 7 moms have responded )

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Does any one know anything about Crohns Disease? My son has had problems with his bowels since he was born pretty much. He has many allergies but just today I got another Doc to look at my son and he thinks he has many symptoms crohns disease. I have read a little bit about it in the past, but wanted to know if there is any one out there living with this.

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EdnaListens - posted on 02/20/2012

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Both my boys age 9 and 19 have aspergers.. they both have suffered with Encopresis.. many people don't know about Encopresis.. the 19 year old often soiled himself up until the age of 15.. he had surgery from his stomach down for a swollen colon and perentinitis.. They removed his appendix for safety precautions.. My 9 year old has been and I know will eventually outgrow it.. we go through underwear like I really should invest in stock. as my second boy was growing I began to reaIize that I displayed exact behaviors and symptoms growing up.. I have Aspergers but to the mildest extent as I have adapted pretty well. I too suffered with constipation and as I grew up my favorite foods became Rice, plain pasta, beans, spinach, bananas and apples and meats. This seemed to do the trick for me until I reached adulthood and started dating.. Dining out became an absolute nightmare. Then I began to believe I had Crohn's disease.. then I read all about the diet and much to my surprise the rice was a great choice and the beans that contained both protein and fiber. So I went back to that diet and WALA!!! back to normal!!!! My 9 year old began suffering alot and it is difficult when your ex's family do not follow the same instructions. I told them my experience and suggested the same diet and WALA!! he is much better!! even if the beans are smashed and put in a soup or burrito. on occasion metamucil is great also!! I sure hope this helps. It saved me and my family!! EdnaListens autism group on FB.

Ilene - posted on 05/29/2010

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I have Crohn's Disease -- was diagnosed about 4.5 years ago after the birth of my oldest child. It's believed I had it for about 10 years prior to actually being diagnosed. Since beginning treatment, I have had NO PROBLEMS with the Crohns -- I take 2 pills every morning and see the doctor every 6 months for evaluations.

Like ASD, every case is different. I've heard horror stories but both my brother and I (he was diagnosed with Crohns in high school) have had no problems controlling it once we learned that was our problem.

I hope your son doesn't have Crohns, but don't be afraid of it either. There are many treatment options that work for so many patients -- I hope he finds relief soon!

Brenda - posted on 05/24/2010

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Dehydration is the #1 cause of many illiness's and diseases. Autistic children usually do not like water. Make sure your son is getting at least half in body weight in ounce or more in just water (not other fluids). I do have to add a little flavor to my sons water to get him to drink what he needs.

I have had my son on Kangen water for 3 months now and his #2 has gotten much better. He does not have Crohns, but dehydration creates a world of trouble when it comes to our digestive track. Go to http://www.bweiss002.yourbodyiswater.com for more info.

Besides my son having regular bowel movements, his behavior and communication has improved and is continuing. He is 13 and is Autistic/Aspergers. His behaviour was getting more aggressive and aggitated since he was 11. In 3 months of drinking Kangen water he has had an almost complete 180 turn in his behaviour.

Hope this helps :)

Diane - posted on 05/22/2010

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My son with autism did not have a fomed stool for over two years - just chonic diarrhea. Once we put him on the GF/CF (gluten free, casein/dairy-free) diet, and addressed his yeast and bacterial overgrowth, the diarrhea disappeared. Chrohns was not what he battled, but a some kids do. Have you heard of the SCD - Specific Carbohydrate Diet - pecanbread.com - Elaine Gottschall's book, Breaking the Vicious Cycle, addresses issues associated with Chrohn's and other gastrointestinal disorders, which are helped by the SCD Diet.

Sheila - posted on 05/16/2010

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Hi Amber,

I have taught two children with Crohns and I have worked with two people with Chrohns. All four individuals have very controlled diet (no wheat AT ALL). It can flare when an individual is under stress. I don't know the exact treatment each individual pursues....but all four, once diagnosed, saw a radical improvement in their quality of life (prior to diagnosis, they were all in constant discomfort)

I home your little guy gets the help he needs.

I do believe that there is a Chrons Colitis Foundation that could be very helpful to you.

Sheila

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