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DD has Genetic Disorder can she get SSI?

Tami - posted on 05/17/2012 ( 2 moms have responded )

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0

My 6 yo has a rare genetic disorder that has no name and little medical literate. She also has Bilateral Sequencing Disorder, Sensory Integration, Encoprecis (still in a pull-up, won't have BM's in potty but will pee-pee in potty) she is under and IEP at school and is in OT, PT, speech at school and privately once a week, and modified pull out classes for help in area's of struggle with math/reading, etc. All that being said, she doesn't have a mental delay, and has a normal I.Q. Her genetic disorder isn't a deletion, but "extra information" on her 22nd chromosome. She is in a regular classroom but like I said, does receive the help I stated above.

We've applied for disability for her (got word today they reached a decision, but have to wait for the letter) and just wondering if anyone out there with a child who has a genetic disorder or any of the above named diagnosis has successfully gotten SSI. Our other younger son, has the same diagnosis (didn't know he had the genetic diagnosis until 1 month ago) and he's been on SSI for 3 yrs. now. He was approved with less. But you never know. We'd sure be relieved financially to know that she could secure services.

Thanks!!!

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2 Comments

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Tracy - posted on 05/25/2012

21

27

not unless the child lives with someone other than the parents, ie grandparents or and aunt etc., or unless the family income is less than $700 a month. When your child turns 18 they wil be eligible for SSI. Registar with your county board of MRDD they have many services that can and will pay for things your child may need.

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