Marla - posted on 11/02/2008 ( 9 moms have responded )
I have a son who just turned 2 at the end of September and at his 2 year well visit our pediatrician reccomended we contact the Early Start program to do a speech evaluation (he's not speaking yet--actually in the past couple weeks he has been trying to say Yes and please, but no mommy or daddy or even no--he just shakes his head no) as well as see a behavioral pediatrician for some behavioral issues he's having...mainly tantrums at a drop of the hat even during fun activities like playing or outside at the park. I also mentioned what I consider "zoning out" and repetitive actions like pouring water out of a container in a bath tub for a long period of time. He does make eye contact, gives hugs and kisses and understands and usually listens to basic commands...so in that sense when people talk about the spectrum, I don't feel he has autism.
We went to the speech evaluation at the end of Oct. and at the end of the evaluation we were told we were candidates for the program and that they would be sending a therapist weekly to our house to work with our son and he would be evaluated again in about 6 months to see if there is any progress. I have yet to actually see the report but they did tell me they thought his condition was serious and that we caught it at the best/earliest time possible. They also agreed with our perdiatrician that he needs to be evaluated by a behavioral pediatrician which I am still trying to secure an appointment with...
I just recently read an article in US weekly 10/27/08 where Jenny McCarthy spoke about her son and autism as an injury related to vaccines(from the mercury--thimerosal, used as a preservative in shots)...something that has always concerned me. When asked How did you "recover" Evan (her son)? she mentioned Generationrescue.org as the first place she found that basically said to cut out wheat and dairy from the diet because her son's system couldn't break them down and that digestive disorders are linked to autism. She stated that it turns them into an opiate making them stoned or drunk. That sentence flooded me as I thought about how I always commented on my son being "zoned out" and when I thought about it even more it was usually after a meal in his high chair. My son also had a 3 week stay at a Childrens hospital Oakland when he was 3 months old...horrible ordeal, but he did leave with some type of digestive disorder that they were never able to diagnose. They just put him under this umbrella of malabsorption/malnutrician and took him off my breastmilk (thinking he may be allergic to something I was eating) and put him on a perscription formula called Neocate....non dairy. He was also taking enzymes mixed in food and numerous types of vitamins and some type of sodium for a while after he was released from the hospital--they had thought he inititally had cystic fibrosis because I was a genetic carrier of the diseaase but then ruled it out as genetically impossible because he didn't have the same gene as I did. In any case, he has never tolerated/wanted milk (soy, hot chocolate, etc..) when we started offering it to him around 15 months and we consequently give him juice fortified with calcium to this day. In terms of his height and weight I am told by my GI doc as well as my pediatrician that he is progressing like any normal boy his age.
I wanted to know if anyone had more information on digestive disorders and autism being linked? I have a long road ahead of me, but I thought this forum might be a good start. I still need to talk to my pediatrician and our GI doctor about this recent finding as well. Thanks for taking the time to read my story...