Do any of you have children with autisum
MOST HELPFUL POSTS
Donna - posted on 07/28/2009
My oldest son Daniel was diagnosed with Asperger's Syndrome the first part of October last year. It was a long road that my husband traveld down to get him diagnosed. We were told he had everything from ADHD, to OCD. We get Daniel involved with different activities. He does Special Olympics and Royal Rangers. We feel that if we get him involved he might have a better chance on meeting new people. He will be embarking on a new adventure next Thursday, when he goes to camp for the first time. Daniel is mainstreamed in school, he does attend special classes for math and writing.
By the way my name is Donna.
Stephanie - posted on 07/28/2009
Keep CONSISTANT!! My son was diagnosed at 3 1/2 with high functioning Autism. He tested at an 18 month level and did a lot of grunting and pointing, also spoke mostly giberish. I sat down with the preschool (Head Start) and the ESU preschool teachers. They helped alot. We have an IEP every year with the school. I made him talk (and sometimes regret it) by pushing the things he pointed at out of reach and told him I didn't understand him, use words. We took 3 years to potty train, but got it done. Everything seems to take 10 times as long for him, but he does get it eventually. It's like he just one days says I can do this and it's done!! He tested at an 18 month level when diagnosed. The next year he was 4 1/2 and tested at 3 1/2. Now he is going into 4th grade and has a 2nd grade reading level, but a 7th grade math level. Like I said, be consistant and he will get things. It is a LOOOONG, HAAARD road, but worth it when you see him come out of his darkness. Fight for him in school also. My cousin has a son with the same level of autism when they were 3. He put his son into the special ed school and I fought the school to get my son into regular classroom with a teachers aide for him, speech therapy, resource room, occupational therapy. They are both the same age, but my cousin's bites, wets his pants, can't read at all, but does talk pretty well. You can see that their environment ifluences them greatly. The mimick what they see around them. Anyway, just keep fighting and be there for him.
Sharon - posted on 07/28/2009
I have a soon to be 8 year old son with high functioning autism. When he was first diagnosed, at age 4, we weren't sure 'what' the problem was. We knew he wasn't communicating. He rarely looked you in the eye when he talked. And he was a loner. He didn't socialize at all at family functions. We enrolled him in preschool with speech therapy and occupational therapies offered. His teacher, god bless her, has 2 sons who also have the same type autism and she is the one who pointed us in the right direction, of testing, of what's available, therapies, etc. Now our son talks all the time. He's very smart but he's still not very socialable, but he has come along way in 3 years. He still has moments of meltdowns but they are further and further apart and now we can usually figure out when something is wrong with him and some times head it off before it gets too bad. He also has OCD's but we have managed to figure out most of them. He's a very bright and happy child now compared to 3 years ago. And like one of the ladies on here commented...its like a light turned on for him about a year and a half ago, and the light just keeps getting bigger.......he just keeps progressing! We are constantly amazed at how well he does and how smart he is! He loves computer games and video games and is very good at them. He has excelled in math but is slower in alot of other subjects so he isn't up to 3rd grade level on some things. So with alot of help from his teacher, the school system, his doctors, and family, our son is doing better all the time. We feel very fortunate that we received the help that we have!
Andrea - posted on 01/15/2009
Hi there Linda, I have a 5 year old son with Autism, he was diagnosed just before he turned 3.
I can understand your frustration as i have felt that same frustration, but as time goes on i have found it does get better and easier.
We were directed to DADHC, where we were given access to a occupational therapist, speech pathologist and it help us get on the right track. when we first started, my son could only say 2 - 3 words, but now he is speaking in sentences, they sometimes don't make sense, but he is trying and gets his message across most of the time. Has anyone suggested that you start learning sign language??? We started learning it before he stared to talk and found it very helpful in the way that he could show us what he wanted.
Hope this helps you a bit, and if theres anything more you would like to ask please don't hesitate to ask, i don't have all the answers as it is still a learning experience for me aswell, but i can try to help in ways of my experience so far.
Mara - posted on 01/31/2014
Yes I have a 5 year old son who is high functioning autism and ADHD. We are taking one step at a time daily....he is in a leveling system with the public school district. Would love to hear what works with all of your kids medically, school wise, and at home. Picture schedules and role playing are very helpful for us.
Julie - posted on 11/06/2010
yes we have a wonderful 9.5 yr.old boy named Erik he has low functioning autism. Still only about 70 % potty trained, he's been speaking for about 24 mo.. He loves to smile and laugh...he read's well spells well. I could go on but there are so many things about him that are amazing he's really a great kid
Bridgette - posted on 11/06/2010
My son has aspergers syndrome, there is a wealth of information with Tony Attwood, please google his name to be directed to his helpful pages. I am here if you want to talk, off load or ask question;s, kind regards Bridgette
Lindsy - posted on 07/28/2009
I have a 7 year old daughter who has Asperger's and Sensory Processing Disorder, there are days that are so frustrating and days that are great, it is hard because you never know which day it will be. I have found OT to be helpful especially with her social skills, how old is your son?
Michelle - posted on 07/28/2009
I have a 16 year old who has been diagnosed with Feotal Anticonvulsant Syndrome Associated Autistic Disorder - he basically has aspergers and dyspraxia caused by the meds I was taking whilst pregnant for epilepsy. He was a wonderful child on the whole - we just thought he was eccentric, but he did get hard to handle when the hormones kicked in, so we asked for a referral to a paediatrician when he was about 12. Took 2 years for a diagnosis, then the school refused to assess his needs cos he wasn't disruptive in class and got average marks, and I am still trying to get social services to assess his needs. He refused school aged 14 and the school just threatened to fine me (in front of him) and so I paid for him to attend a private school - he managed a year there but then the pressure of the exam coursework became too much and I took him out of school as there was still no support available to him. I would rather a child with no exams than one with emotional problems and an ulcer. He is really intelligent and would like to go to college but yet again we are waiting on support to enable him to do this. The UK is a nightmare for any child with high functioning autism (support is readily available if you have a learning disability) - my head hurts from bashing against so many brick walls. My sadness is that he is a very bright lad and could achieve so much but no one is willing to help.
Cindy - posted on 07/28/2009
Yes I have a 8yr Old that has been diagnosed with moderate to severe autism. It's a challange everyday but he is worth it. We have recently started aba therapy and of all the things we have tried over the years that has worked the best!
Lori - posted on 07/28/2009
I am waiting on a doctors referal to see a devolpmental pedatrican for my son who just turned 3 who displays signs of Autism One of is main signs is tantrums and he confused things like he will call maple syrup "catsup" and he called a broom handle "dishwasher" and other odd things he also will do absolutley anything he wants even if we say no, he has called the doctor a very bad word, and has been saying this word for 3 weeks even though we have tried many things to get him to stop without success, I just want to know what I can do now to help him instead of waiting a year for test results
Melanie - posted on 07/28/2009
hi im mel, my son alex was diagnosed with ADHD at 7yrs old and 2 months ago he got diagnosed with Asperger's Syndrom, hes 14 yrs old, and im finding out there is not alot of help out there 4 kids diagnosed late, its all 4 young children or 16 and over, hes in and out of schools just cose he walks out, he hasnt been since b4 xmas, but is due 2 start a school 4 kids like him in sept,(so fingers crossed) has any 1 ese finding hard 2 cope with schools?
Karen - posted on 07/27/2009
I have one with Autism he is 6 I also have a son who is 8 and has ADHD, I also have another son who is 18 months old. I hear you on the frustration, remember just like ever other person on this planet it is so important to make a connection with him of some kind build on the connections and expressing your and his frustrations may be come easier.
Adele - posted on 07/27/2009
I have a 10 yr old i am going through the system at the moment it is believed my son has aspergers and add and possible odd i think they call it i'm not sure what to do with him he never sleeps he trashes things and is constantly getting kicked out of school. i'm trying to be patient and understand but it is very very hard.
Felicia - posted on 07/27/2009
My 8 year old son was diagnosed with Autism 6 years ago and it was very difficult at first but he has gotten better with age and I've learned to be more patient. He was almost severe and is now high functioning. We had a lot of support from my husbands family and family is the most important thing when you go through this.
Carrie - posted on 07/27/2009
My 10 year old daughter was diagnosed PDD-NOS. She's been taking speech since she was 21 months old. She wasn't given an official diagnosis until she was seven. Some people think that because she's a girl that's why she she was diagnosed so late. Anyone else have an autistic daughter?
Laura - posted on 07/25/2009
HI LINDA MY SON WAS DIAGNOSED WITH ASD LAST FEB WHEN HE WAS 6 BUT I'D KNOWN HE WAS DIFFERENT FROM A TODDLER AND THOUGHT ONCE I GOT A DIAGNOSES I'D BE RELEIVED BUT I WAS DUMBSTRUCK AND IT ALMOST FELT LIKE I WAS GREIVING FOR THE LITTLE BOY HE'D NEVA BE I ALSO HAVE 2 OTHER CHILDREN 1'S OLDER AND THEN THERES MY 19MONTH OLD WHO EUAN TOOK A REAL DISLIKE TO GOING AS FAR AS SAYING HE WAS GOING TO KILL HIM, AND I HONESTLY THOUGHT MY GORGEOUS LITTLE BOY WAS GOING TO BE TAKEN OFF ME AND PUT IN A SECURE UNIT BUT WE MUDDLED THROUGH WITH SOME GREAT SUPPORT OFF SCHOOL AND A FEW MONTHS DOWN THE LINE THINGS ARE GETTING BETTER SO WHAT I'M SAYING IS THERES ALWAYS LIGHT AT THE END OF THE TUNNEL 4 YOU! X
My 6 year old son has "moderatly severe" autism. That was their official diagnosis. He is challenging for sure but worth every minute :)
Photo and picture learning is very good for him. We have even made home movies of his older sister doing things to help him learn how.
As they get older there is a website that I have been using and it is wonderful! The site is starfall.com, it is really good for my son and I hope it may be a good resource for you. It is not geared for autism but the repeditive picture based learning is working great for him :)
Stephanie - posted on 07/25/2009
Hello my name is Stephanie,
I have a 12 year old who was just diagnosed with Autism in 4/09. We all thought it was ADHD. But as it turned out that after the 15 or 20th adha med. nothing was working! So I started investigating on my own.Thanks to Jenny McCarthys book I have a whole new lite now....So if any one is going through this with a child my sons age what all have you done? I really think I'm on the right track but new advice is always welcomed....
LINDY - posted on 01/17/2009
hello linda my name is lindy i have a three year old son ethan has autism he is delayed speech and devepment and sensory problems i think the first time they get diagnosed it takes a while to sink in so just take a bit of time too let yourself to get use to eveything i started with books i got for the libraby and would read them at night my best friend gave me a book that was great it is MORE THAN WORDS [helping parents promote communication and social skills in chilren with autism spectrum disorder] FERN SUSSMAN i dont know if this will suit you but i found this very helpful because it has at the start a check list you can go through and find out your childs sensory preferences then when you are doing it you understand your child a bit better and what things set him off and aslo my ethan is very visual so i would say to you start takin photos of things like the main places you go and people then show him before you go some where or if someone is comin around just shows them that this is going to happen in stead of surprise them and then getting a meltdown i think i have wrote too much sorry lol i hope evrything goes well and good luck
Mary K. - posted on 01/15/2009
My son was Diagnosed with Asperger's about 6 years ago. Just be patient it will get better with time. One day the light will go on and the world will open up to him, nothing will hold him back. My son was 5 years old and one day everything started to click for him, he has not stopped since. He has been main streamed in school and is a straight A student. He does have bad days on occasion, they are fewer and farther apart. Who doesn't have an occasional bad? It is scary in the beginning, remember there is a light at the end and he will shine! Take care of you! Good Luck!
Linda - posted on 01/15/2009
I know i am new here but my son has just recently been diagnosed with Asperger's Syndrom an i am at a complete loss and do not know what to do with him. I know if I am this frustrated he has to be a million times more frustrated. How do i help him and me get to understand one another.
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