Does anyone have a child with aspergers syndrome and sensory intergration disorder? a Question!
Jennifer - posted on 07/29/2010
HELLO MOMMIES MY NAME IS JENNIFER I AM A SINGLE MOTHER OF 3 CHILDREN, MY BABY GIRL IS KNOW 2 YEARS OLD SHE IS BEING SEEN BYE A BUNCH OF SET OD DOCTORS WHICH INCLUDES A PHYSICAL THERAPIST, SPEECH THERAPIST, AND A DEVELPOMENT SPEACIALIST, SHE HAS SO FAR BEEN DIAGNOISED WITH SENSORY INTERGRATION FROM HER SPEECH THEAPIST, I HAVE LOTS OF QUESTIONS FROM U MOMMIES AND I JUST NEED TO LEARN HOW TO TAKE CARE OF HER TO UNDERSTAND HER BETTER, I THANK GOD EVER DAY FOR HER, AND I ALSO THANK GOD I NEW SOMETHING WAS WRONG AT SUCH A YOUNG AGE I AND MY FAMILY NOTICED AT 11 MONTHS SHE WOULD NOT STAND SO THATS WHEN SHE FIRST SEEN THE PHYISCAL THERAPIST, SHE STILL DOES NOT TALK AT ALL, SHE STILL IS ON THE BOTTLE HEAVY SHE FLIPS OUT BAD WHEN I DONT GET TO HER OR HER NEEDS FAST, SHE SCREAMS AT EVERBODY AND EVERTHING IN SIGHT, I TRY AND FEED HER WITH A FORK OR SPOON SHE FIGHTS AND REFUSES AND WANTS TO USE HER OWN HANDS I DONT TAKE HER OUT IN TO PUBLIC MUCH I STAY HOME WITH HER CAUSE SHE USUALLY WILL START SCREAMING AFTER A WHILE AND ITS HARD TO CALM HER DOWN ESPICALLY WHEN SHE CANT TALK SO I TAKE HER OUT AND LEAVE, ANY ADVICE WOULD BE GREAT FROM ANY MOMMIES SHE IS MY LAST AND SHE IS MY LITTLE ANGEL FROM GOD HE GAVE HER TO ME FOR A REASON THANK U MOMMIES FOR LISTING!!!! SINCERELY JENN
Terri - posted on 02/18/2010
my son just turned 7 in january. he was diagnosed w/ ADHD in november of 08, then w/ sensory processing disorder (specifically proprioceptive disorder) just a couple months ago, and then w/ Asperger's Syndrome just yesterday. my son has been on the Daytrana patch for over a year now and it's working very well for him as far as keeping him calm enough to be in a regular classroom, but he still exhibits quite a few difficult behaviors in school. the SE dept in our district has refused to give us an IEP or make any modifications for my son. we have been very fortunate though that the asst principal and his teacher took it upon themselves to begin small group instruction and are very open to any suggestions i have to help my son. his teacher keeps track of his behavior and sends home a weekly progress report. my son has great difficulty redirecting so his teacher often gives him extra time to complete tasks. starting next week my husband and i will take turns volunteering in my sons class for a couple hours a day, two days a week so we can be on hand to help our son and to observe his behaviors first hand. the biggest issues are his difficulty in redirecting and his need for sensory stimulation. he will perch on his desk to do his work and make odd noises all day, or smetimes will sit under his desk and make noises to himself. this is all still new to us so we're still trying to figure out whats going to work for him. for right now we're just doing meds and OT twice a week. good luck and hang in there!
Lydia - posted on 02/18/2010
I understand what you are going through. My son is now six and has both Asperger's and SID and we are having a very hard time. We had to do half days most of his k-5 year and he was in a regular classroom and this year we moved him to a self contained class where he mainstreams out to certain classes. The problem is he seems to be regressing in his academics and being at school in general. We are having to pick him up early most days because he wants to roll on the floor, get under tables ,throw things and just is very unhappy. His teachers told me today that he has not been himself at all this week. When we get a medication that we think is going to work ,it does for about two weeks and then we are back at square one. He has been on every medication you can think of and we can't seem to find a medication that will work for very long. His doctor specializes in this and she can't seem to figure this out . Has anyone had these problems with there child and if anyone has any suggestions they are welcome.
Amy - posted on 07/01/2009
Our son was 8 when he was diagnosed with SID and just recently we succumbed to what was suggested to us all along. He just turned ten and has Asperger's. I started homeschooling him last Oct. after going thru three schools.
Now, in a new neighborhood, it has been quite uncomfortable with the many neighbors who have kids. Even the one who has a ten yr. old with SID doesn't quite understand him or what we are going thru with fitting in here. It is very difficult to have a child with both.
Fiona - posted on 06/28/2009
Yes I have a son who is now 6 and has been dignosed with Aspergers and sensory intergration disorder, only afew years back did I finally get an answer!!. He is only classed as mild autism, and I have found now that he has started school and is in a special education unit at his school he seems alot calmer and more settled in routines. The teachers and specialist are a great help also. How old is your child/children?
Maria - posted on 06/28/2009
Hello. I have two children that are autistic and both that have the sensory issues. At home I have a set of headphones for them if something bothers them that they use. My 8 year old son eats only certain foods and when he's eating I play classical music for him. It seems to calm him down. When I'm on the go I carry a backpack with things that I know my child will like. For example, I have a coloring book with crayons, stuff animals or toys he likes, a portable CD player, a portable DVD player, his headphones, and a hand held game boy. i have a website that is a resource center for parents and I hope this is helpful : www.providence.org/childcenter and phone number is: 1-800-833-8899 ext.52429 and www.orpti.org and phone number is: 503-581-8156. They have a lending library and resources. I hope this is helpful.
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