Gluten free and Dairy Free Diet

Heidi - posted on 05/31/2009 ( 16 moms have responded )

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Have anybody put their kids on this diet? Does it work? If it works, when do you see a difference in behavior?

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[deleted account]

Just wanted to add some food ideas. My son is extemely picky. He only drinks vanilla Hemp milk. It has more fat that the rice or almond, which helps to keep some weight on him. He eats rice bread (gets soft if you microwave it for 20 sec first), Galaxy Rice cheese for grilled cheese. I add in some deli turkey meat, or pureed veggies. I used Earth Balance butter. Schar pasta is good. I make spaghetti, and I puree garbanzo beans or peas & carrots into the tomato sauce. Sunbutter is a hit, made of sunflower seeds, and I put some Plum spread on there to make a fake PB&J. Glutino cereal bars are great. And I make lots of GFCF pancakes with pureed fruit or chicken and zucchini in them. You can also make potato or sweet potato pancakes with veggies too. I just discovered that my son likes mayo, so I buy the organic mayo and make chicken salad and egg salad on rice bread. Well, hope that helps. That's about all my son eats.

Jessica - posted on 01/04/2013

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Hi Heidi,

Both of my children who are diagnosed with Asperger's have been on the GFCF diet for over a year now and it's made a huge difference! The first changes we saw were immediate with our children's digestive system. No more bloated tummies or loose stools. My daughter often had red cheeks which she no longer had. Behaviour changes were more gradual but most were better by 3 months or so. Tantrums were eliminated by my now 7 year old son and lessened in frequency and duration for my 5 year old daughter. Both kids seem to focus better as well and have been generally less sick this past year. I run a personal blog which discusses this diet a lot, feel free to check it out:

http://aspergirlandasperboy.blogspot.ca/...

Good luck to you!

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Angela - posted on 01/02/2013

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I have been doing it for the last 6 months with my son, who has autism. I'm getting ready to stop it. I have not seen a difference and it is very expensive.

Jennifer - posted on 07/08/2009

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We have been on the GFCF diet since October of 2007. My thought was "why not try it?", but I was skeptical. The first few days were good and then two weeks of VERY whiny behavior, which was basically withdrawl. After we got through that, it has been very good. Better BM's, more eye contact, much less hyper/stimmy. I can really tell when he gets something he shouldn't. Not all kids need the diet and not all will respond, but why not try? I did it cold turkey, but wouldn't recommend that. I would start with dairy or gluten and then add in the other. I also would start with gluten free/dairy free junk food and then try to get healthier and healthier. For example, you can buy or make gluten free chicken nuggets, fries, potato chips, cookies, etc. My kids never have been that picky, but they have gotten used to eating more and more healthy things over time. Really, after you get used to it, it isn't bad. It is just a big change at first.

Misty - posted on 06/09/2009

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We just switched my son a couple weeks ago. Not a huge change yet, and it is very tiring. expensive too. angel food ministries has GF food now so check them out.
my son is just about three and still no functional words, but he might not stim as much and has longer happier times

[deleted account]

OMG, yes!!! This diet has made such a difference for my son. He is 17 months old. I tried putting him back on dairy for one week because he was losing weight, and his autistic behaviors got so much worse, right away. I took him off again, and he's much better. So I am a definite believer in the diet.

Renee - posted on 06/07/2009

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Quoting Amber:

Any good recipes out there? I have the ADD/Autism cook book but there's limited recipes in there of what CJ would actually eat.


I love Bett Hagman cook books.



When she calls for milk I use Dairy Free Powerd potato milk or Soy milk.



She covers everything.



If you need something right now I would be glad to type something for you now.



Good Luck,



Renee

Renee - posted on 06/07/2009

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My son, 9 now, has been gfcf since just before he turned 5. It has been great! We notice an extreme difference in him with in 4 days of removing Dairy.
I was not sure if the Gluten made a difference or not so I waited 8 months and then tried to add it back. WOW! What a difference. It then took 2 more weeks to get it back out of his system.
We started slow and removed the dairy first and then slowly removed the Gluten.
I bake my own bread because most of the Store bought bread is dry and exspensive.
It seems overwhelming at first but once you get the hang of it it is not so hard. Just think they can always eat meat and veggies as long as you don't bread it or put milk and butter on it.
Here are some web sites to check out,
http://www.talkaboutcuringautism.org/ind...
GFCFKIDS@yahoogroups.com
You just have to remember that you need to do this the way your child needs it.
You have to be 100% gfcf but after that it is up to you to find out what your child can tolerate.
We are GFCF but I do use Soy. Some will tell you that a child will have a reaction to Soy the same as Cow Milk but my son did not.
We started out using Rice milk, then we went to Dairy free wich is Potato milk. Then I tried Soy.
Because of Yeast in the belly we are low Sugar but some are No Sugar ,yeast and Bread.
We are color free because I noticed reaction to red and blue but that is up to you.
On top of the "Diet" we also have therapy, Chiropractor, and we involve him in a number of extra stuff like a Social therapy group in the winter and one in the Summer, Boy Scouts, and stuff at church,
We also have a routine and a reward system.
I hope this has not been too much for you all at once.
Good Luck and feel free to contact me
Renee
rowens367@yahoo.com
We are not

Luanne - posted on 06/07/2009

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My daughter has been on this diet for 6 months now. I really don't know if there's a big difference since we started it with her immediately after her diagnosis. One of the improvements I noticed though, is that she doesn't vomit as much as before. She's also not so hyperactive. But in doing this diet, you should be fully committed to it. It can also be very expensive. But I think it's worth the try. I know you'll do anything and everything for your child. My Developmental Pedia didn't recommend it but he also didn't say anything against it. So I guess, it's really up to us parents So good luck to us..

Katy - posted on 06/06/2009

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Been on GFCF diet since Oct 08 and within 3 weeks saw HUGE differences in my son. He made much more eye contact and was much more aware of his surroundings. He also became much more affectionate and began hugging and snuggling with us which was the 1st time he had ever done that before. I would highly recommend it! :)

Amber - posted on 06/05/2009

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Any good recipes out there? I have the ADD/Autism cook book but there's limited recipes in there of what CJ would actually eat.

Laura - posted on 06/05/2009

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I put my daugther in non dairy (gluten free) and we all switched to organic foods. Doctors are not sure diets help because it's a mix of diets with therapy sessions and it's hard to pin point what really works. I can tell you from experience that three to four months after we started this diet, my daughter was more attentive and was able to stay focused longer. She is now the healthiest of all of us since she's the only one on a gluten free diet. We also minimized drive thru meals and replaced them with healthier meals. Candy and chocolate are a real treat and helped huge time during potty training and with ABA.

Amber - posted on 06/05/2009

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I tried the GF/CF diet for my son. I put myself on it as well so I was making so much food. Can I just say I have never spent so much money on food?? You can't use regular flower so you use all types of different flowers...each bag ranges from $3 or a 1 lb bag to almost $10! Just for a pound of flower. As a single mom with a very limited income it was so not gonna happen!

Also, the transition seemed almost impossible. My son is a picky eater and certain textures really bother him. I've tried a ton of different recipes. I continue to cook some GF/CF food just to introduce it to him but it's been rough for us.

I'm open for suggestions!

Jessica - posted on 06/02/2009

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Well Hello! I have an 8 yr old son with AS and 6 yr old son with ADHD. I switched over to gluten- and casein-free diet over two months ago. Its a 50% change and I saw it within 4 weeks. It is a big commitment. I did alot of research for 3 months prior. The first two weeks I found very tiring. I make time to cook and bake most things from scratch. My library has some fantastic gluten-free receipe books. Betty Hagman is one of the best. Though, its hit or miss with some receipes. If you do proceed, go slow. The hardest was switching over to rice milk. But they will drink it with chocolate syrup. They do refuse to eat rice cheese. Yuk, I would to! I would love to help if you need it. Cheers!

Lena - posted on 05/31/2009

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I have just been reading alot about it but cannot confirm personally, most record a difference in the behaviour around 8 weeks sometimes sooner.

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