Has anyone gotten Social Security Benefits for their child(ren)?

Natalie - posted on 07/09/2010 ( 73 moms have responded )

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Has anyone applied for and gotten social security benefits for their child(ren)? I have been thinking about doing that for my 8 yr. old son with pdd-nos, but want to know if anyone else has and what the process was to file.

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Angie - posted on 09/01/2011

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Yes. We just did. Apply for it. They did a phone interview with me and asked all kinds of questions. Make sure to have all your child's medical records and school (IEP) paperwork in front of you so you can answer their questions. It can take around 3 months to be approved so I'd start right away.

Shawntae - posted on 07/27/2010

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I get SSI for my 8yo daughter. She is diagnosed as PDD-NOS Autism Spectrum. We are in the US and the process was way less painful then we thought it would be. I went on the website and you have to fill out a profile for the child. She is in the Special Services District here and they fast tracked her. We filed in October of 2008 and received her first check Dec. 08. And they backpay from the time you filed til you are approved.

Jessica - posted on 07/22/2010

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YES, you can get SSI for your child. The only bad thing is they go by your income on how much you can get. Apply for SSI not Social Security. Hope this helps :-)

Allicia - posted on 07/22/2010

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I live in Colorado and currently receive SSI for my autistic son. I called the Social security office, they set up an appointment with me and on that day i took in all the paperwork i needed ( diagnosis records, pay stubs, assets, bank records, etc) and had an SSI check within 30 days after my application was submitted. The only thing is, you can only make a certain amount per month (capped) including assets ($2000 in Co) and they do regular reviews to make sure you are within the guidelines. It varies state to state.

Bettie - posted on 08/29/2011

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Just be sure to keep ALL letters, records, everything they send you because of a mistake they made after paying my son for 6 months they then tried to make me pay them back $1,000 some dollars. Because of a mistake they made in the paper work and my caseworker gave me wrong information i had to fight it twice and bring the letters in before they got it straight. (I live in Virginia and after checking with other people on SSI they do this alot) I'm just hoping when i get pulled in this year they wont take it his check is the only way i can afford his medical care he has autism and is in speech and occupational therapy also he gets sick alot.

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Toni - posted on 11/10/2011

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We have had several friend collect for the children...And had big problems tax time...Paying it all back...so be careful..

Joann - posted on 08/29/2011

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I haven't read threw the whole thread and all the posts but our son has high functioning autism, I wonder if we would qualify? Anyone ever gotten it before?

Edith - posted on 08/26/2011

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The web site is great but I suggest you go to the office to talk one on one. If you get a good worker they are more helpful than the web site. Take all documation of his medical problems (the more the better) and taking documation with you could make the difference in a few weeks to many months. You will need results of all test showing disability, doctor notes and letters from his office visits, hospital stays, and meds. Gether as much as you can from all persons who have treated your son. You can never take too much. You will also need pruff of all income. Having a child with a disability can be daunting in itself. If you do not stand up for your child no one else will. There are a lot of services and groups out there that can help care for your child. You just have to look for the right people in the right places. Good luck to you

Donna - posted on 07/30/2010

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thanks ...congrats on your retro status...extra dollars help...remember to keep all your receipts to detail how the money is spent ..because as with all programs you have to acct on how the money was spent for your son. Great topics..clothng, food, entertainment, daycare,...it can vary.

[deleted account]

Yes, I finally applied when my son was 5...and he had been diagnosed with Autism/Global developmental delay/learning disabled around 3. When I called to apply they asked a lot of ?'s so be prepared to go in detail of his needs, disorder and challenges and then they made our ssi retroactive. Good luck

Donna - posted on 07/30/2010

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Depending on which state you live in requirements might be different I dont know. But I am currently waiting to find out if my son, he is 17 now will qualify for SSI. When they are a child their income is reflected off of the family income...but it is worth a shot. Right now we are in the pending status...awaiting results from a psych eval which would indicate that my child isnt able to care for hmself independently. There are many progams out there your local Dept of Human Services may have a program tha will provide respite care...but once again this is also based on need and income. It's a very frustrating process but it can yield great rewards.

Coralee - posted on 07/27/2010

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i applied for ssi for both my children when they were 3yrs old never had a problem with them getting it now that they are 22yrs and 20yrs old the only requirement is that they are proven to still have thier disabilities

Heather Fraser - posted on 07/26/2010

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im not sure whre you are but im in ontraio and I had to file a form 22 have the dr fill it out to get some diability help for my son. He is now 17 1/2 and I have to get the paper work from ODSP to get the benifits for when he turns 18

Bridget - posted on 07/26/2010

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My son is 3 and was born with sever brain damage called PVL. We have to have himon medicaid as a secondary insurance. I had to quit my job and get him it threw SSI. Now he is on the CES waiver and has another 1-2yrs before he has medicaid without it being based on our income. For some reason he can't just get it based on his diagnosis, which is an uncommon one, but at the same time not so uncommon that no one knows about it. Good luck, and let me know if you get it for your child. I'd love to get my son on it w/o it depepnding on income.
Bridget

Debora - posted on 07/26/2010

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My 10-yr-old son receives SSI. He doesn't get very much, but that is because he receives some money on my disability record. I'm not sure they will consider PDD-NOS a sufficiently clear diagnosis, so make sure you are very clear about problem behaviors and difficulty adjusting when you fill out the form they give you (they have different forms for kids under 12 and over 12). Use extra paper if you need to, and give all the doctors' names, dates that you can. Don't leave anything blank. Be very realistic in what you report, and answer the questions as things are on his worst days. Sometimes people want to be optimistic about their children's possibilities. This is great when actually working with the child, but it doesn't do to go with best case scenarios when applying for SSI. SSI is the type you apply for when dealing with a child who has never held a job.

Jessica - posted on 07/23/2010

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Yes, we receive benefits for our twins, one with a PDD-NOS and one with Autism. It was not a bad experience and pretty simple for children. They tend to approve children more than adults. It took about three months beginning to end for one and six for the other one. He was processed as an adult by mistake and had to redo the process. Are you hooked up with any kind of center that helps your child, sets up IEPs and the such?. We have Far Northern Regional Center here and they made a referral to SS. No one from SS got a hold of me, but I had copies of the referral and back payments went back to the date of referral.

I didn't want to do it, but when the doctor told me it would help us get the boys into a big place, and a safer neighborhood, we did it. Good luck!

Steph - posted on 07/23/2010

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Lisa, every state has different laws and processes on this. I know in my state (OK) they do count SSI as family income which depending on how much you make it can make you unable for other programs. I have ran into case workers that had no clue and it's really frustrating. My suggestion would be to attempt to get in contact with her supervisor or a medicaid case worker they might be able to help you. Best of luck to you!

Lisa - posted on 07/23/2010

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I'm in WI. Everyone in my family receives BadgerCare health insurance due to my husbands company not offering health insurance and we also financially qualify. I'm afraid that if I recieve SSI for my moderately autistic daughter, the money will be applied towards our family income and we could be cut off of Badger Care. I have some health issues and I NEED health insurance. I've asked my caseworker this question and she didn't give me a straight answer about how it all works. Do any of you know?

Ginger - posted on 07/22/2010

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Once I applied for the SSI, even though it did take awhile for them to process it, they pd a back amount from the time that I had actually applied.

Ginger - posted on 07/22/2010

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I receive it for my son, He is 7 now and was diagnosed when he was 3. It is alot of paperwork at what not, but as long as you have all the dr info. and what other info they need. The process is not that bad. I am also in a program called KCI regional. They just follow up on Cayden and I am on a waiting list for funding for respite care. Not to long ago, I received 700.00 toward his respite care. It basically pd. someone to help watch him so I could get out of the house.

Sara - posted on 07/22/2010

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i did i applied for my 9 year old and just got them took a while but got them

Tanya - posted on 07/22/2010

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I would suggest going into a local office and talking to them about what all is need to apply for benefits. I applied about four years ago, and the monthly payments help with a lot of bills and meds. Also when your son gets approved he will also be covered under state medical insurance which helps because not alot of doctors take private insurance for "mental issues" ( that is what I call it, because it is not a handicap)

Rebecca - posted on 07/22/2010

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i have it on my 10 year old son. He also gets medicaid to help with the doctor bills. It goes by income and they don't allow you to make much money or they take his benefits.

Deb - posted on 07/22/2010

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My daughter was diagnosed with PDD-NOS at age 3 and is almost 17. I applied for SSI for her when she was about 4 years old, but did not qualify......our income was over the limit.
When her father and I separated/divorced, I was able to collect a small monthly benefit, which varies, depending on my monthly income and that of the child support.
To start the process, contact your local social security office and ask to apply for SSI. They will walk you through the process. There will be medical forms and letters needed from your child's physician and a review is done by the SS board. Also, in some states, qualifying for SSI automatically qualifies your child for state medical benefits (it does in PA), so you may want to ask about that also. Good Luck.

Kristiana - posted on 07/22/2010

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I applied and recieved benefits for my son a few years ago. You will need to contact the social sercurity office and fill out paper work. The benefits are based on your income and your childs diagnosis. Once you apply for him he is always in the system and if there is ever a financial crisis or if he needs help or medical coverage he will have it. Good luck...

Jessie - posted on 07/22/2010

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I dont know how much help I will be. My autistic son receives SSI, now, but The entire process was taken care of through an agency that works with families who are on government assistance in my county. They did all of the paperwork for me and helped me with the process. If you happen to be on government assistace (Food Stamps, Cash Assistance, etc), you might want to check with your county worker to see if there is such a program in your county. Otherwise, I'm not sure what to tell you. I know that if you must do the process yourself, through the Social Security office, you're better off hiring a lawyer. many of them take their payment as a percentage of your lump sum that you receive when you are approved for SSI.

Good luck with your endeavors.

Jessie

Connie - posted on 07/22/2010

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I am amazed. We werent able to get SSI until my son was 18 years old, my husband had to work 2 full-time jobs to pay for his medical expences.

Patricia - posted on 07/22/2010

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I did get SSI benefits. They didn't want me to get disability. I just went to the social security office and filled out the papers. They asked for all kinds of papers & doctor's statements. They also may turn you down the first time but do not give up! You will have to sign release papers for them to get all the info they need. Good luck! Pat

[deleted account]

another advantage is that as long as you get $1 of ssi you get medaid. once you get medicaid sign up for the program where they reimburse you for mileage when you take your child to the doctor or therapy. bring as much paperwork as you can to the office.

[deleted account]

I'm a single mom and live in FL. I applied for SSI last year for my son, who is 8 with Asperger's. I was approved and started receiving benefits within one month of applying. We received $400/month. I had no idea you could receive benefits for that! The SSI website has a lot of information. It was easy to apply, I just called the office to find out if he was eligible. The phone interviewer said I was ineligible, but it was a very brief interview and she said if I wanted to have a full interview in person I could, and typically those turn out different than the phone one because they get more specific about your bills. And its true! I made an appointment, 2 weeks later he was approved and we received benefits immediately. Once you get SSI, you are also approved for Medicaid so that was a huge relief. His medications are $500/month and insurance was almost $200/month. Good luck!

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my daughter was diagnosed almost 3 yrs ago. about 6 months after that i applied for SSI for her. about a month after that she started get her checks. that was more than 2 yrs ago. also look into intensive therapy, it has been the best thing we ever did.

Brenda - posted on 07/21/2010

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After reading, My guess is every state has a process a bit different. SSI may or may not be benificial. It is based on your income. It helps with monetary and medical. If your child already has medical care, it will be a secondary insurance. If you use it to its full advantage you need to go to physicians that take state medical insurance (the once assigned to your child) and your primary insurance. Its a bit complicated, but is helpful. However, not everyone needs it. It is Supplemental. :) Best of Wishes to everyone! One of my children recieve it and I am waiting on approval of the second.

Valerie - posted on 07/21/2010

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I did for my son when he was 4. It is a lifesaver! If it wasn't for the Medicaid that automatically comes with the SSI my son wouldn't have health coverage that could cover all his co-existing conditions. It has also been able to financially take up the slack when he hasn't had such good months healthwise. Its not a gigantic amount, but every little bit helps. The process can take a while, and sometimes you have to got to their doctor to confirm diagnosis. They may try to deny you at first, but maybe not. A friend of mine is going through it right now with her newly diagnosed daughter. Their doctor spent approximately 20 minutes of a 2-3 hour evaluation with my son before she signed the papers confirming the disability, and said good luck! For me it is the only way to have the basically unlimited healthcare benefits my son needs. Even if they cut it down to 5 bucks I still get the Medicaid so I'll keep it! Good Luck!

Merrie - posted on 07/21/2010

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The process is sometimes fairly easy and other times takes a while. I got SSI for my 6 year old with Asperbers within 3 months of filing but he had been in therapy and was on meds for over a year before I filed. Now my daughter has RAD and I got turned down all the way to seeing a judge. I have another grandson with asbergers and his case is dragging out because they are sending him to a bunch of different doctors for second opinions. I am confident he will be approved but she filed right after getting the diagnosis. When he is approved she will get all the money all the way back to the original filing date. It is worth the effort.

Rebecca - posted on 07/21/2010

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about the mainstream subject, my daughter has always been mainstreamed, i dont agree with it in her situation as shes not on level and took 4 days to complete the SE testing and only passed by 4 points but if your child is on level and such, its a great thing essecially the socialization part. as long as you get a good teacher and shes aware of how to provide proper care and also willing to explain the diability to the class so hes not made fun of or outcasted, my daughter has had great and horrid teachers and the great ones did good on making the class understand it, theres a book called all cats have asbergers, and its great at explaing the spectrum to kids with and without it, its my daughters favorite book, she loves reading to the class and answering questions once shes comfortable that is, and shes had alot of more understanding kids that are actual friends not just they said hi to me so thee my friends im sure you understand that.

Rebecca - posted on 07/21/2010

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im in the process as well, ive done all the paperwork, online and sent to me and the phone inteview now im just waiting on the 120 day desision. she has A-typical autisim, with pdd and ocd

[deleted account]

I have. It does help out with the bills and things, but it is a lengthy process in which you have to prove that your son is in fact disabled. After that, you have to send your proof of income in every month to the SS office and they use that information to establish what you get every month.

If you get a bonus check or anything extra, they will take more out of your son's SSI benefits. If you have any assets or savings worth $2,000 or more, you will loose SSI completely. It's a weird set up, but if you need the money, it's helpful.

Vicki - posted on 07/21/2010

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I applied for my son when he was in 5th grade and he was immediately accepted. However, he had had 4 long-term hospitalization and a long history from school, and treatment from psychiatrists, psychologists and medications...

Robin - posted on 07/21/2010

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Natalie, I noticed someone said that your child could not be mainstreamed. My Son Sean has Asperger's Disorder, and he IS mainstreamed, although he does have several other therapies, both in school and out. We applied about 3 months ago, and he has just been approved medically. Unfortunately, we are right on the border financially, so it's a bit iffy how much support we will actually receive. Go to www.socialsecurity.gov for the paperwork, then call the local office to schedule your interview. They will probably interview you over the phone, but it helps to fill out the paperwork ahead of time so you have all the answers ready (or fill out the paperwork online!). Good luck!

Natalie - posted on 07/20/2010

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Amy R. that is my worst fear that he would be denied because he is main streamed, but has to have an aide in the classroom with him to keep him on task because his mind wanders constantly. I would hate to have to go through the whole process only to be denied because he can sit in a generally classroom with children whom do not have ASD issues. Amy, Angela and Diane thank you both for you replies I will keep this in mind.

Diane - posted on 07/20/2010

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hello Natalie: I learned from Robert's, (my four year) speech therapist at Childserve here in Iowa last year that he may have been eligible for Social Security Benefits so I filled out the paper work that they supplied for me and turned it in. Robert does not deal with Autism but deals with Sensory Processing Disorder or in terms that assisted him in getting the SSI was Pervasive Language Disorder. That with all of his information from all of his therapists. But what I am understanding is how SSI looks at the child's development in terms of his "normal peers" as to whether or not they receceive benefits. Then once received one has to write down all the reciepts you need to keep on what you send on the child. And this is a daunting task (if your computer crashes in the process of recording your receipts, not something I would do again but keep the receipts in a separate place) anyway a year have to send information in regarding what you spent the money on. This is what I am working on now. Hope this helps.

Angela - posted on 07/20/2010

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I was in the process of filing for SSI when my ex-husband passed away. The process is pretty simple. Call your local Social Security office and tell them you'd like to apply for SSI benefits for your child. After a brief phone interview they will be able to tell you what the income guidelines are. They will then send you a packet with all the information and a list of things you'll need to bring to the appointment!

[deleted account]

We tried just recently, your child must be severe, not mainstreamed, and not able to function without a lot of help....sad isn't it? That they won't help with early intervention!?

Heidi - posted on 07/19/2010

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We filed 2 years ago and receive benefits for my autistic son... he will only qualify for SSI and when we make too much money in a month they cut it for that month... its kinda been a pain as they keep going back and then saying we were overpaid but it has help offset our expenses... When you file make sure to push how his activities of daily life are affected as well as make sure to include any reports you have with his diagnosis from dr's, psychologists, psychiatrists, also include a copy of the current IEP from the school.. different states call it other things but basically its his plan/goals etc from the meeting you have with the school every year... The SSI will tell you just to give them the names and numbers of all his dr's but I found it helpful to include all the paperwork... it means less time they have to spend waiting on information from the dr's as well as it helps prove your child is disabled... I cant stress enough how they really look at how his activities of daily life are affected... self-care, bathing, toileting, eating, shopping, outings, etc...

Kerianne - posted on 07/19/2010

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I do. My son is 10 years old now. I applied when he was 6 years old. I went through social security office and applied. It took like 5 months to get accepted, but when they did finally accept it I had to get a savings account and checking account. The savings acct was for the months I waited, so basically like back pay for the months I waited. Then the checking acct was for future payments being direct deposits. Any more questions I can help!! I'm from Illinois

Natalie - posted on 07/19/2010

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Ladies I just wanted to say thank you all for all of the helpful replies. I will definitely take all of your advice. Amy J. the advantage to having SSI for my son is as Carol points out to help with daily life expenses and it will also help me to put some money away for him for his future. I don't know what services, medication, or therapies he may need when he gets older and is no longer eligible for services through school. My husband and I don't make that much money annually and have 3 other children to take care of (one of whom I suspect has mental health issues due to lead poisoning). Not only that we don't have medical insurance through either his or my works. Having the medical benefits alone would be the biggest help of all. Also sorry I am just now responding to your replies. I was in PA on a family emergency last week and have not been on the computer for that long.

Erika - posted on 07/18/2010

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Desire...wow I am surprised at your sons diagnosis. My son has PDD-NOS also. Diagnosed at age 2 1/2 along with some sensory issues for sure. I also applied for disability, not for the money but for the medical benefits. With these benefits he was able to obtain early intervention and is currently in a regular classroom with minimal modifications on IEP.
Natalie I say definitely apply as long as you have good documentation on your child's services (diagnosis, services received from therapists, case managers, early interventionist, or therapists) will determine how fast or slow your child will be awarded. Also for anyone with a child on the spectrum or with any sensory diagnosis the IAN Kennedy Krieger Institute has a phlethora of information on current studies and also resources for children. Good luck!!
Erika

Teressa - posted on 07/17/2010

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My son has Asperger Syndrome and I just recently filled out the paper work for SSI in May of this year and we are already approved there is alot of info you need but it is worth the time and energy.

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