Has anyone had their child on Risperdal?

Jana - posted on 10/16/2009 ( 43 moms have responded )

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My child was just diagnosed almost two months ago with Aspergers. He was prescribed a medicine (don't remember the name) that did not work and now the doctor wants to put him on Risperdal. She told us there were quite a few scary side affects. So, I'm wondering if any of your children have used it, and if so, did it work and did they have any major side affects to it. Thanks.

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My son was on Risperdal for ADHD only 3 weeks and then had terrible side affects on the 4 week crying and very aggressive and terrible tired with circle under his eyes all the time no matter how long he slept( which was 12 hours). I weaned him back off the Risperdal and now he is having muscle spasms and tick like behaviour in his head neck and arms. After I researched this drug more in depth (please parents do so before you try anything!) It is a side effect of this drug and may not go away as the doctors say. I feel terrible and every time I see him twitch I feel sick inside and n ow am suffering from severe anxiety over the whole thing. I was always pro medication before this but now I see what can happen and I will never give my child another med again. Like he did not have enough stacked up against him already!! Please research the drug before hand and ask yourself can you live with the worst side affect that it has, as it can happen even though(like me at one time) I didnt think that It would. I am angry that the doctor only said that it could make him gain weight. I feel terribly guilty every day and if I could go back in time I would change it all.

Brianna - posted on 10/23/2009

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I have two children with disabilities both on risperadal it has helped them both considerably the main side effect with my eldest ive had to watch is weight gain as he has a solid structure, my youngest who as adhd and autism is a totally different kid in a good way on it, it was amazing no bad side effects

Michelle - posted on 10/20/2009

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hi my name is michelle let me start off by saying that all the other advice u have been getting is one i would suggest myself to. i to have a child who is seven he has been going through a behavior prob since age two he is seven now and has been put in a mental ward hosp twice.. he has been on all kinds of meds u can think of and yes even risperdal. he has been to all types of specialist and he to is diag with adhd and autism with borderline bi polar and he also has been diag mildly mentally handicapped they even metion he has asperbergers to.. but first of all my son is a very smart boy he not stupid he is a very off the wall bouncing around hyper kid who is out of control in school .. u stick to ur guns and make them listen... have all ur ducks in a row and tell them what u want done.. i did it and my son is doing alittle better now he still misbehaves he is running away from sitters now and the ymca.. i know how u feel i have had restless nites and have lost alot of weight just trying to keep up with him.. he has a temper that i have to watch i have to keep alot of things lock up so he cant get into them.. he killed our kitten and tryed to stab my dog and even went after me with a knife.. its hard for me being a single mom and hearing all ur stories.. and hearing ur stories is like telling my story.. i wanna give up cuz he just wont listen but i think of him and what it would do and i go on.. i feel for all of u and if u ever need someone to talk to i am here.. i have been through it all and still do it every day i live my days walking on egg shells.. i just would like to wake up on day and say i can let my son go out and play and not worry if i have to go looking for him cuz he is there where i can see him or i wake up and say i cant believe he his acting like any other normal kid would act.. its hard and i am so stressed each and every day.. i am up everyday at six thirty someday earlier cuz he gets up.. i never get to sleep in and the only time i get to do anything around the house is when he is asleep.. so i am up later to get that done good luck and again ask me any thing anytime.. i will be glad to help i know how u feel and i am walking in all ur shoes as well.. again good luck and god bless u and all ur families

Jana - posted on 10/22/2009

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We have decided to put our son on Risperdal. He started it last night. Thank you for all of your comments. They helped us to decide to go ahead and try it. For those of you who advised against it, we didn't just dismiss the warnings. We will keep a careful eye on everything. I am still a little worried, but know now what to look for. Thanks again for all of your support and comments.

Jane - posted on 10/23/2009

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My son was on risperdal a antipsychotic for around 9 months, in that time he gained 30kgs, became stiff and bloated like, could barely bend his foot to get off the school bus. He stopped engaging in conversatition, trouble sleeping, couldn't concentrate, was lathargic, got twitches and jerking of his arms and feet to name but a few. His behaviour was fine for about a month then back to his old ways. Risperdal has a lot of side affects, but what worried me was when his dr said he could have a psychotic episode on them. I took him off them and within weeks he started to drop the weight, engaging in conversatition again, l didn't realise just how withdrawn he had become until it started to get out of his system, He was happy, had energy could move and sleep. Still have the behavioural problem but at least his overall health is far better now he is off it.



I would check it right out before deciding to put him on it. It was made for adults with psychotic problems not kids with autism, even though they are now using it in low doses for autism. But there are NO medications for autism!! Just things the drs have

decided to tery out on the kids. I would rather try magnesium and B6 supplement. It works on about 50% of kids klast l heard, helps concentration, memory, sleep.

Just read the link below first especially the results at bottom of page especially the bit for kids with autism and testing results. you will be very suprised just what it can do.



http://www.drugs.com/sfx/risperdal-side-...

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Sharon - posted on 10/22/2009

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I had my son on Risperdal when he was about 5 years old. He started having tantrums and I took him off of the med. He was only on it for a short time so I don't know about any longterm side effects.

Kimberly - posted on 10/22/2009

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My son with bipolar and autism is on this medication. He has had no side effects except that it makes him sleepy, so he takes it at bedtime. I didn't want to use an anti-psychotic, but it was necessary and has been beneficial.

Julie - posted on 10/21/2009

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My son is also high functioning aspergers and was taking Risperdal for some time. I worked wonders and for the first time my son was able to communicate his feelings. The only side effect my son experiences is the increase of his rate of growth, thus he well and truly started puberty at age 11, which was difficult as he didnt have the cognitive ability to understand or cope with the changes happening in his body. The other problem was that the dose he required needed to be increased as he had grown so much, but because of this side effect the specialist didnt want to make an increase to his dose thus the medication became ineffective. Hope this is of some help.

Faith - posted on 10/21/2009

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my daughter was given risperdal a few months ago and the most common side effect is sleepiness and appetite stimulation. It is a mood stabilizer. I haven't seen any other side affects on my child yet...every child is different ;o\

Lani - posted on 10/21/2009

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Hello, My son has Aspergers and I was nervous about the ticks, etc with Risperadol. he has been on it for 3 yrs and takes 1.5mg daily and the results have been positive for us with no (thank God) side effects. Good luck!

Sherry - posted on 10/21/2009

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I have a 5 y/o with autism and has been on risperdal for almost one year. we avoided meds. for a long time, even with the aggressive behavior and all day tamtrums. we did want to medicate him just so we did not want to deal with the behaviors, but his anxiety was so high that he had no enjoyment in life. the risperdal was a blessing for us all. his doctor only used one med. at a time, so she would know what worked and what did not. i would not recommend starting more than one at a time. he does snack alot, but i buy sugar free snacks so no weight gain. a few side effects such as occasional drooling if he is really tired, but still better than before. i think we will need some type of adhd med., he stills has issues focusing on homework and class work. if you decide i would give the med. time to work and also may need increases here and there. we can now take him bowling and out to eat, it has been a blessing to our family and has given us some normalcy. good luck to your family and if the risperdal doesn't work keep trying.

Leatha - posted on 10/21/2009

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yes at 12yrs old she had milk coming out of her breasts do not let them give it to your child

Linda - posted on 10/20/2009

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My son is autistic and has been on Risperdal since the age of 5 and is now 13. His doctor monitors him closely with periodic blood tests and other tests like finger taps ect. He has not had an issue with the medication and it has been the only medication that has not caused problems with his liver or heart. There are some things that could be scary but with proper monitoring there should not be a problem. My son is very aggresive and this medication has helped to decrease his aggressiveness and allow for him to have better control over his actions. I wish we could do without any medication, and it was a tough choice to put him on meds, but for us, this has worked better than anything else and has some good studies behind it involving children.

Tammy - posted on 10/20/2009

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My son who has Asperger's was on it for awhile and at first it seemed to help a lot, but after awhile he seemed like he had regressed emotionally and academically.He just started acting real goofy and they kept trying to adjust the dose. I ended up taking him off of it because he started jerking in his sleep, which can be dangerous. There is a name for it, but I can't remeber it off hand. It is important to remember any medication can cause side affects, you have to weigh the pros with the cons and keep in mind that every child will respond different.

Cristina - posted on 10/20/2009

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My child is 11 yrs old and Aspergers and was in risperdal for about 6 months we switched meds to abifily because risperdal "turned off" the switch in the brain that says I'm full. He gained 45 lbs in 4 months!! the only problem is he still has that problem He went from a little under weight to overweight. something else for kids to make fun of. :(

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My 14 year old had PDD-NOS and was on it for about 3 years.We had no problems with it other than weight gain.

Stacey - posted on 10/20/2009

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my oldest has Aspergers and has been on risperdal for 5 years it really helps with the voice tics and some of the other things he used to have trouble controling..the pros outweight the cons..the only prob we have is he eats more..but i offer him healthy snacks that fill him up..

Susan - posted on 10/19/2009

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My oldest child was put on Risperdal for hypertension and uncontrollable urges. The medicine calmed him down alot but he had one side affect that was not listed on the lable. He wet the bed, when he went to sleep he would sleep so heavy that he did not wake and this continued untill he was 15 years old. But it did help him controll the urges that he had. He has been off the medication for 3 years now and doing well.

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my son is on risperdal 3x's a day for his aggression. he's 10 y/o and has been taking it for many years now. no major side effects

Hannah - posted on 10/19/2009

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My son had ADHD and Aspergers. He has been in counseling for almost 2 years. He is on Adderal and Melatonin to help with sleep. His doctor wanted to put him on more medication, but we decided to try him using a PSR worker first. That in combination with me home schooling him this year have helped him more than anything else. It has been months since he has had a major melt down and is doing well in every area where he used to struggle.

Anita - posted on 10/19/2009

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We used Staterra in combination with the resperidol and found that it supresses appetite so Alex ate normally, with one exception Chocolate. I think he inherited that from me.LOL.

Anita - posted on 10/19/2009

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Our son too it for close to 8 years. It was great for him for sleep and mood swings. We took him off for pubery, but we may return due to the return of sleep problems. No serious sideaffects

Becca - posted on 10/19/2009

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Hello, My stepson is on risperdal and we do not like it! Although he had shown inprovment with it , it had some nasty side effects. One was he gained weight like crazy! He will keep eating and eating because they never fill full. So he is 7 and now weighs 70 pounds. Then here recently we discovered it was causing him to have seizers. So now he is on 2 drugs . Another for the seizers. Will this medicating ever end? Once you put them on the risperdal you cant just take them off of it. They have to be winged! this cycle is crazy!

Sandy - posted on 10/19/2009

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My son was diagnosed when he was 7, he is 10 now, He has been on Risperdal and Zoloft it was a god send he has no problems with them i just get his blood work done like every 6 months he does well in school and at home i dont have as many tantrums or outbursts

Lori - posted on 10/18/2009

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My middle son has been on Risperdal since shortly after his second birthday, about six months. We did have to change his dosage around a bit and now he takes half in the morning and half at night. It has been amazing how much progress he has made. He still has some behavior problems when he is stressed (biting himself, banging his head), but he is a lot easier to redirect. He is now able to focus and engage with other people, he has started repeating words and communicating with gestures and a few words. My husband and I were VERY reluctant to use medication, especially since Risperdal is not yet approved for children his age, but after talking to other parents, we decided to give it a go. His sleeping habits and appetite have also improved. We are aware that at some point we may need to monitor his eating as it can become a problem, but he was very undersized for his age and is finally growing again, so right now it is not a concern. HTH.

Holly - posted on 10/18/2009

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My son has been on risperdal for 4 years. No side effects except sleepiness. So his dose is split--am/pm. He has anxiety and ADHD. The risperdal helps alot with the anxiety. He is also on Strattera for the ADHD symptoms.



My older daughter tried it and she had the weight gain. So she is on abilify.

Heather - posted on 10/18/2009

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I am a Social Worker w/5 kids. My oldest was on it for just over 18 months. It helped with his OCD. It gave him the time he needed to beable to concentrate on the behavior modifications. Some just need that edge taken off. On the other hand I was leary being a SW working with Autistic Adults and therapist all day. Watch for the side efects and make sure the doctors continue to try to use the minimum doesage possible.

Carrie - posted on 10/18/2009

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well, Im sorry to hear about the diagnosis it is a challenge to say the least!!! Yes my ten year old daughter is on risperadol and has ben for a few months...w really no change. Im taking her off it. Every child is differnt and will react different. Give it a try..No major side effects for my daughter

Brooke - posted on 10/17/2009

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My 5 yr. old son, Zain, was diagnosed with severe autism about 2 yrs. ago. At that time they prescribed him on .25 mg. of Risperdal and .5 mg. of Abilify. Over the last two yrs. we have taken him off of the Abilify (I don't recommend that drug for children at all) and uped his Risperdal dose to 6 mg. a day. In addition to the risperdal he also takes Zoloft and Mirtazapine. I have found wonderful improvements in his speech, attentiveness, anger, self injury, social awareness, and eye contact. He has a lot of sensory issues and anxiety issues too and he stims a lot. In fact, in 2 yrs. time he has went from the cognitive level of a 9 month old and no speech at all to the level of a 3 yr. old and many words and quite a few 2 word requests. I don't believe any of this would have happened without the Risperdal and intense therapies. I have had one bad side affect from it. He is a compulsive eater now, I have to keep everything put up high at night because he'll get up after we go to sleep and eat it all. He has also gained about 50 pounds since we started him on the medicine. I'd really watch how much your child eats and their weight gain. I also have a friend who has a daughter on Risperdal and she is older and not autistic, she says that the medicine gives her headaches after she takes it. Overall, in my case, the benefits I have seen using the medication have by far out-weighed the negatives. Good Luck with everything!

Jessica - posted on 10/17/2009

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Is this for sleep? My son tired it and he was up all night long......Clonadine (catapress) works great

Carisa - posted on 10/17/2009

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My youngest is PDD-NOS, on Risperdal. I love it, he is more loving, happier, handles things better, and it has helped some how with his sensory seeking issues.



Weight gain is the most common side effect. It is only a problem if you do not keep him on an eating schedule and monitor portion control. They gain weight because the area of the brain that the meds are helping, are also telling him that he is still hungry.

What I see that is frustrating to me is that parents will put their kids on these meds to address behaviors that the child has shown no control over and then get frustrated and take them off because the child again is showing no control over behavior, such as portion control.



If my son started lactating I would stop the meds too. There are some side effects that are deal breakers, some you can work with.



Medication decisions are a person to person decision. Debbie, I dont mean to single you out, but Risperdal takes 2-4 weeks to work to it's potential. I think you may have reacted to quickly out of fear. I am glad that it has worked out for your son to not need the meds, that is the best out come.

Sharon - posted on 10/17/2009

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my step son has been on it for several yrs now for his torettes , he has had bad side effects on this like alot of weight gain & depression. He lives with his mother so it's her choice to keep him on it. If he were my own child i would have had it stopped & tried something new.

Although ! it is a very good drug and does work for most but there are newer drugs available too. Good luck

Shelley - posted on 10/17/2009

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Resperdal is a behaivor med. It is suppose to decrease the appetite, but is found to increase the appetite w/ patients w/ Autism. My son is Autistic and I work in the special needs field, so I am constantly introdused to new medications. Which is nice, because I am always upbeat on med. and very aware of whats is out there. I see first hand how they work. So when I go to the doctors and they make suggestions I can always second guess them, which usually throws them for a loop. It's nice to have the upper hand sometimes. Every child is different when it comes to medication, it's really a hit or miss process . Good Luck !!! : )

Rebecca - posted on 10/17/2009

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Not Risperdal although I work with some people that are on that with good results. remember there are side effects with everything and they will monitor it. we use adderal for ADD with no reults. Straterra has been the wonder drug. good luck.

Debbie - posted on 10/17/2009

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Jana, along with my middle son with PDD-NOS, I also have an older (14) son with ADD. After reading Changing the Face of Autism, by Bryan Jepsen, (Thoughtful House for Children in Austin TX), I put both boys on B6 Complex for mood and Magnesium, to help the body process sugars. This helps with the ADD for the older son, and in my middle son, it promotes faster metabolization of sugar which keeps yeast overgrowth in the gut under control. Yeast needs to sugar to grow, so if the body processes sugar out more efficiently, the yeast can't get out of control. The book by Jepsen was a huge help in understanding why certain kids need certain supplements. I had never bought into the supplement thing, because I thought it would be a waste of money. But his book put it in terms I could understand. He is an MD (Previously ER doc) but when his son was diagnosed with Autism, he quit and focused on what may be a cause (you'll find his critique of the studies on immunizations very interesting), as well as treatment options. A lot of it was over my head, and I have a lot of Medical terminology in my vocabulary, but in the end of every section, he simplifies everything so you can understand why certain things are worth trying. If you are really going back and forth on the medication route, it may be worth looking for at the library. If it makes sense to you, you could run it by your doctor and see what he thinks, based on your childs history. Since Jepsen is a doctor, some doctors will give him a chance, rather than chaulk him up as the latest "crackpot selling miracle cures". Good luck to you.

Stacy - posted on 10/17/2009

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My son also has anxiety and ADHD along with the autism. He was put on Risperdal when he was 13 to help with the aggressive behaviors he was having. While it stopped the aggressiveness, it also stopped everything else. In essence he became a slug. He just sat there all day doing nothing at all. He gained 30 lbs (without any change in eating habits) and started lactating. We took him off of it. Now, at 19, he is on Daytrana for the ADHD, oxcarbazepine for the up and down moods as well as sensory issues, and GABA to help with his overall mood and help him sleep. It has proved to be a "golden" combination for him. The only "side effect" is that his moods are almost too stable, as he is always in a good mood. But I don't know how much of that is the meds or just because he is really enjoying himself right now at this point in life and doesn't know how to communicate otherwise. Risperdal is something that should be used as a last resort if the behaviors are really that detrimental and nothing else can be found. In our case, Daytrana and oxcarbazepine didn't exist yet, so we used what was available at the time.

Jana - posted on 10/17/2009

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Thanks for all the advice. We were told that he would need periodic blood tests and an EKG at the beginning. My concern with those is that my son also has anxiety and ADHD and he has mega meltdowns. I don't know how he would handle those. Has anyone had a similar problem, and how did it go?

Bobbi - posted on 10/16/2009

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My daughter has been on Resperidal for 7 yrs. plus behavior modification and therapy. While it is not a cure all by any means it did help curb some of the impulse control stemming from frustration. My son has been on Resperidal for about a yr and half. Sometimes I wonder how much good it is doing him other days I think it helps alot. My oldest daughter was put on Resperidal about 18 mths ago and we are currently taking a break with her as she started lactating. Of course all 3 of my children on this med. gets blood tests periodiclly and their docs and I are watching their muscle control for stiffness. Medication is a personal decision we were hesitant to accept with all 3 but in the end I think the children are happier as it helps to lessen the stressors along with tools they learn with their therapists. oh watch for increased bladder control issues with younger children as it is a desensitizing drug makes it harder for them to know they have to go immediately and wetting accidents are common.

Barbara - posted on 10/16/2009

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My son was on it and they had to add cojenton because he got very stiff started drooling a lot. the cojenton cleared it right up but later cause a back up in his intestines so watch his bowel movements

Debbie - posted on 10/16/2009

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My son (PDD-NOS) was prescribed Risperdal and I took him off after only a few days. He constantly cried and stopped trying to talk again. I would encourage anyone needing the kinds of effects usually garnered by these types of medication to consider ABA therapy. I know behavior modification is a harder path at first, and medications offer quicker results, but the side effects ARE significant. When I took my son off and called the Neuro to tell him, he suggested we try Abilify. I stated I didn't think his behaviors were so bad that we really needed meds. I watched his diet carefully and realized he was getting so "trigger" foods that contributed to some problems. And I also realized one area at school where his Behavior Plan wasn't being followed appropriately. Later, I saw an ad for Abilify on TV and one of the side effects is DEATH...and they wanted to presecribe this for my then 7 year old??? I'd rather have a live child with autism than a dead child. I'm not saying we won't reconsider meds as he gets older/stronger than we are, but right now he is fully mainstreamed in 6th grade and doing very well.

Jana - posted on 10/16/2009

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Thank you Rebecca. That is great to know about your experience with it. She said there may be weight gain, so it's good to know that he may get bigger appetite. Thanks again.

Rebecca - posted on 10/16/2009

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My son is on it and it has done wounders for my son he is high fuctiong autism and it took me a long time to put him on meds but we had to and we are so happy with how he has done on it. No major side effects only one was the eating always hungry so we keep healthy foods on hand and lots of exercise and we have had no weight gain. Hope this helps

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