Megan - posted on 09/29/2010 ( 4 moms have responded )
So I really have two questions but figured I would put them together. The first is a question about actually achieving a diagnosis. Our Pediatrician told us that he suspected our son was somewhere on the autism spectrum and we contacted the correct people to talk to about that, they did a basic assessment and found that he was severely behind in social and cognitive areas when he was about 2and a half. This assessment was enough to get us some therapy for him and once he turned three he was given an IEP with the school district. This allowed us even more services, although still no official diagnosis and assessment, just assessments on specific areas. There was enough that he was severely behind on that the liaison with the school district (and his primary teacher) suggested we apply for disabilities services for him. We did that thinking it might mean we could get him assessed, but no, they provide non cash services that we can access but still no assessment. It sounds horrible but we cannot afford to have the tests done out of pocket, they start at $500 in our area and go up from there. I haven't been able to work because special needs daycare is too expensive so we are a little strapped for cash and our savings is gone. His teacher is using in intern of "presenting as PDD-NOS" because she doesn't have the credentials to make an actual diagnosis. Anyone have any advice as to where I can look for help getting a diagnosis?
The second part is more validation that I am not crazy. My son rocks as he falls asleep, is this normal? Sometimes its really hard and he starts rocking into the wall and it doesn't wake him up. Also he hits himself sometimes when he is throwing a tantrum, usually if I start to ignore it he will hit himself or drop to the floor and hit his head or some other body part. Am I right in assuming this is him just trying to get my attention? I feel so helpless but he is now 4.5 and could do himself some serious damage if he keeps doing it. I know its mostly frustration at not being able to tell me what he wants, but it gets scary sometimes and I feel like a crappy mom because it happens.