Hello

Grace - posted on 11/07/2008 ( 5 moms have responded )

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My name is Grace and I have a 4 year old son with ASD and severe Dyspraxia.He is non-verbal. We will never give up hope that he will speak some day! :)

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Prior to the diet, my younger son ate cheese, cheerios, and McDs french fries. How I started it might not be the best way, but I bought gfcf junk food. After a few days I started switching to things like rice, chicken breasts, some veg and bananas. Slowly I added in other good things. Now both boys eat a variety of foods. I buy organic as much as possible.

I will warn you that my younger son had a huge regression the first few days. He went ripping through the house searching for his cheerios. Luckily that only lasted a few weeks. We have been doing the diet for 6 years now and it has been our most helpful intervention.

I like the idea of checking out TACA now. They have many good resources on the diet and other treatments. One last word of advice. When we began the diet our school was reluctant to help us follow the diet. After a few weeks of better behavior and continual improvement, they were fully on board.

Let me know if you have other questions.

[deleted account]

hi! you are a bit ahead of me in that he is getting tons of therapy my little one isn't yet..we are getting speech- believe he has apraxia and waiting for OT for his SPD. My Cheesy is non verbal as well. but when we decided to give him fish oils..Nordic Naturals ProEFA he started babbling like crazy, making tons of new sounds and finally manipulating his mouth. we just started our journey and are waiting to see the dev ped in about 5 months! but I am doing so much research and all I can to help him at home. i thought the gf/cf diet would be hard too..but if you start slowly..go to TACA now site they have a 10 week schedule ot switch. and my son doesnt eat a lot of stuff either but it made a difference. I do not believe he has ASD. He gags as well and we tried all kinds of gf/cf breads and waffles and he gagged every time so we just have him on whole wheat with no additives or preservatives. his food is either organic or free of everything! the only thing thats not gf/cf is bread and waffles. he is on rice milk and the switch for us was easy. I just switched slowly the things he ate to things made only gf.cf. i took out milk and dairy first...they sell a rice gf/cf cheese and used that since he was only eating grilled cheese for lunch. now he loves soybutter and all fruit jelly sands for lunch. it was a little tough but not nearly as hard as I thought. you can do it and it really does make a difference. we are now on probiotics as well and wow! big help. i would say omit milk and dairy first and get him on fish oils. we chose ProEFA cuz the Late Talker recommends it for kids with apraxia for the ratio of DHA to EPA's. that book is helpful too. well if you ever wanna chat! let me know

Grace - posted on 11/07/2008

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Thanks everyone.I would like to try the GFCF diet but I dont know where to start.He already eats a very small amount of foods. He does not eat meat or vegetables.He has a huge gag reflex when I try to introduce new foods! LOL! He lives on Chicken nuggets ,waffles, pretzels, bananas, toast w/butter, cookies and juice. Any advice would help. He goes to a special needs pre-school 5 days a week full time,they provide him with speech 4x a week, OT 2x a week, PT 3x aweek and Play Therapy 2x a week.He alo get 5 hours of SEIT a week after school and I a currently trying to get him private speech after school as well. He had ABA in EI for a 1 1/2.They dont provide ABA in the Pre-schools here. But he is doing well in preschool excep for the speech (Servere Dyspraxia)--non-verbal..............he does have many approximations and sounds.

Kimberly - posted on 11/07/2008

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My son began Eary Intervention & ABA 6 months ago. He will be 3 in January. He has Autistic Disorder. He was non- verbal as well ..mostly grunting and Ma...he now is putting up to 4 words together and stating feelings...keep the fath & hope. These services are amazing and make a huge difference..

be well..:)

[deleted account]

Hi Grace! I have been exactly where you are today except that I had two affected children. I know that it does not work for some (and our ped & therapists ridiculed us when we started), but both my children made huge improvements within weeks of going GFCF. After 9 months of 30+ hours a week of intensive therapy, my younger son had not really improved. After starting the diet, the ABA really started to make a difference. My older son is indistinguishable from his peers. My younger son is social, on grade level, and overall doing great. He still has a little ways to go, but coming from being severely autistic, he has made great strides.

Good luck!
Julie

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