Hello, my 2 year old son was just diagnosed with PDD-NOS. Preparations? expectations?

Carolyn - posted on 08/04/2012 ( 2 moms have responded )

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my 2 year old son is developmentally delayed, diagnosis id PDD-NOS. he sleeps well, likes to be touched, gives eye contact, but doesn't socialize or say more than one word at a time. he does babble a lot. He's fixated on ceiling fans and lights.No pretend play with toys yet. Been to neurologist, psychotherapist, had ears and eyes checked. he's about to start OT and ST and on a GF diet. he appears to be very happy and healthy.I'd like to ask the Moms here who have so much experience and wisdom what advice they would have to give a new mom like me. my questions are probably silly, naive. But I'll risk the embarassment and as anyway.Will he be able to be social? Make friends, have relationships? Learn. ? How serious? Or not serious is it?

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Dawi - posted on 08/04/2012

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My daughter was also diagnosed at 2. We did OT & ST starting around 17 mos. She was almost non verbal (4 words), lined everything up and was obsessed with songs (she hummed a lot) and although she did not mind being touched, she was far from affectionate.

Instead of asking for hugs we played a game called "Squeeze the juice". Everyone just got on board. We all extended our arms and asked her to squeeze the juice. That was how we got our hugs.

She used to blank out and moved on so fast that social interactions were hard. This did not stop me from enrolling her in things. She tried gymnastics, she is in swimming and was in a social class. Some things seemed like failures but in the long run it was good. I strongly believe that children like ours are entitled to the same opportunities. She was in so many swimming sessions that they had to move her up when she turned five. Obviously not for skill but age. The all of a sudden, she started doing things that the instructor has asked her for years, like jumping in the water.

There are so many great things I want to share but I don't want this to be about my daughter.

My advice in bullets:
- early intervention
- just like the rest of our children, rally on what they're good at and encourage on what they need to learn. Mine was/is a crazy climber. She made some parents uncomfortable in her feats but in my book it call only be helpful to her self esteem.
-make friends with mom's in your area with similar kids. You would be surprised on how great of a support that would be.
-he is very young and even NT kids still parallel play at this age but take him to places the encourages social interactions. library playgroups are great for this.
-enroll him in a social group or when doing playdates do activities that encourage social interactions. These are games that include turn taking and verbal interactions, whether it is playing with cars on a ramp passing a ball.

As far as your questions go, people are people with their own personalities beyond the disorder. A lot of PDD/Autistic kids do forge friendships and have friends (visit youtube). As far as relationships, mine is only 6 so I can only hope =).

In learning kids are different whether they are NT or like ours. With mine I made up silly and not so silly things to make her remember. In writing I named the lines in the paper as water, land and air and adopted writing techniques from handwriting w/o tears, d'nelian wile adding my own twist. (b is "long line big belly, d is long line big butt, g is round and about, under water fish hook...). My advice is be patient. Just because the child does not demonstrate what was presented does not mean he did not get it. It almost is some type of expressive aphasia -the I got it but I can't get it out to show you.

The seriousness??? I can only give you my take on this. The worry, it does not really go away. However, the gift of have a child with autism also brings the joy of every little celebration. I call ours my Christmas morning. When she started using words, the eventually sentences, it felt like Christmas morning. When she started reading... Christmas morning. When she toilet trained... Christmas morning. That first unsolicited kiss... the first out of the blue "I love you". It is hard to explain to other but so easy to get for parents like us.

Hmmm for got to tell you about the public at large including some family and friends. Remember that this is your child. Nobody should love him as much as you do. For this reason be quick to forgive those who are just to ignorant. For the same reason, remember not to be too hard on your child just to make others more comfortable. Also remember to forgive yourself when you slip off of being supermom and yell out like a banshee. =).

Best of luck to you and your little human

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Carolyn - posted on 08/06/2012

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Thank you very much for your reply. That was very helpful. My best wishes to you and your DD.

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