How can a kid have so much going on: ADHD-Primarily Inattentive, ODD, SPD, PDD-NOS, Asperger's?

Melisha - posted on 07/27/2012 ( 4 moms have responded )

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So since April of this year, we've been having our son, 6yrs old, evaluated by 2 different doctors (Dr1 and Dr2). The reason I am using 2 different ones, is because Dr1, was confusing us, so we researched and asked people about another doctor and she's been really great. Dr1, put him on Guanfacine, which didn't help. She said he had an anxiety disorder and was on a dysregulation spectrum. We then took him off of Guanfacine and he is currently on Respiridone. He's been diagnosed with ADD, PDD-NOS and Anxiety Disorder by Dr1 and we're in the process of finding out if he has Asperger's with Dr1. Won't find out her diagnosis on that until Sept.



Yesterday we had a parent meeting with Dr2. She is diagnosing him with the following, ADHD-Primarily Innattentive (she tested him on this), ODD-Oppositional Defiant Disorder, SPD-Sensory Processing Disorder and Asperger's Disorder. She recommends us take him off the the Respiridone, slowly, and put him on ADHD medication. Which in turn should help with the other disorders he has. BUT we have to take him to therapies for ODD and SPD and read as much as we can about everything. She recommended CHADD meetings, and family therapies to help our family restructure our life around him to make him more comfortable and deal better with this surroundings and the way we do things. So far, I like Dr2. She explained what everything is, and what we need to do. Dr1, really didn't explain anything and was so confusing when she talked to us.

Our son, Noah, was having trouble in school, and at home. He is quiet and good when its quiet with less distractions, less people, less going on. He loves going outside, whether it be alone or with his little sister. He loves just sitting there, no matter how hot it is in AZ!



Does anyone else have the same things or similar and how did you or how ARE you coping with this? I don't know how I can deal with all of this, its so much to take in, its overwhelming and I know I have to be strong and focused for my son. To help him..to get him through this. What are you doing or what did you do to get through this?? Anything would help..anything!

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Lethia - posted on 07/27/2012

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My 9 yr old is High functioning autistic, ADHD, They are still not sure if it is aspergers or turrets they havent checked her for the other elements but a school Psychologist did evaluate her for school and she is educationally challenged and medically challenged in diff aspects we basically let her help us choose and then not to overwhelm her take it one day at a time and still let him be a kid no matter what some places want to treat the disease or condition rather and not the child which is the most important if you have a kids cant wait program or babies cant wait program they can give you some good literature and you can contact me through here or call me at 770-744-6656 and maybe I can help walk you through some of it. If you dont have a good support group of people and parents that understand you may also be overwhelmed my name is Letha

Chaya - posted on 07/27/2012

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I, the mother, has some of those things. I personally think the child is being overdiagnosed. Not saying it isn't valid, but some of those things have overlapping symptoms. Look each thing up, he probably has fewer illnesses, but the symptoms overlap. You may decide that some if it is crap anyways.

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Melisha - posted on 07/27/2012

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Thanks for your replies...Pamela, I like what you posted (from that other post):
"I believe it was no miracle that Ysa made remarkable progress at the time that we came to accept her conditon. It was more of having acknowledged her conditon as an integral part of her and learning to appreciate her own way of being. In our search for a cure, we have found our daughter. Who and what she is...is the only person she has to be. She is our daughter and we are one with her in this journey."
It's very encouraging! Thank you! We will be trying our best to get this done as a family and support all my kids too.
and Chaya thank you for your response too, I didn't think about overlapping, I'm definitely going to read further into these things. There's so many to understand and deal with. Thank you!!

Pamela - posted on 07/27/2012

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Dr Number 2 sounds helpful and interested in your son and your family. You all have a lot of things going on when emotionally and eventually physically if not dealt with and she knows...CHADD is a new organization to me but I am so going to research it now. I hope the support you get as a family, couple, and individual is wonderful...best case scenario...but if not..know that it needs to be nurtured just as your little angel does. Especially if you have other children also, they will need the regular nurturing and learn not to blame the little one who is also going through this with himself or herself. It's a full-time job just taking care of one child, bless your efforts and remember to laugh as often as possible, enjoy them for who they are, and remember no one gets everything right. "Even astronauts develop autistic-like symptoms--inability to mentally focus on physical task."
And a parent wrote this who has been going through this for awhile: " I believe it was no miracle that Ysa made remarkable progress at the time that we came to accept her conditon. It was more of having acknowledged her conditon as an integral part of her and learning to appreciate her own way of being. In our search for a cure, we have found our daughter. Who and what she is...is the only person she has to be. She is our daughter and we are one with her in this journey."
God bless your day:).

Pam Nunley Hammmonds MEd.

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