How do u know if your child is having silent seizures at night?

Gina - posted on 10/30/2009 ( 8 moms have responded )

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I will put my son to bed at night and he will go to sleep. Lately he has been waking up, so I think, just laying there starring into space. I was told to watch for silent siezures during the day, so I don't know what to look for at night. When he wakes up he has multiple meltdowns and is extremely tired. Could he be having silent siezures at night? How can I tell?

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Brenda - posted on 11/02/2009

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My son was prone to staring spells during the day and was dx as having seizures after a EEG, which he had done during the day. He was put on meds at first, but I was not comfortable with giving meds unless it was absolutely neccessary. After a month I took him off, when the staring spells did not go away. His staring spell went away after awhile and I have never seen him have any kind of seizure activity otherwise. He does wake up during the night and play. Alot of autistic kids have this prob. I also found out my sons teeth grinding which the dr attributed to seizure activity was actually being cause by fish oil supplements. Make sure you check into every avenue before putting him on meds. There are side affect to contend with, number 1 the liver being affected. Good Luck and God Bless and much patience :)

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Pincky - posted on 06/01/2013

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my daughter aliha have seizer she close her eyes for few time check by dr eeg don normal e e g now what i do

Julie - posted on 11/03/2009

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There are ambulatory EEGs, but since you are curious to what your child is doing while they are sleeping it sounds like they should be scheduled for a video EEG if your dr. thinks that is appropriate. Again, start documentation as soon as possible, and write down all the dates, time started, what you saw, time stopped, what happened before, during, and after so when you do see the dr. you are prepared with the evidence for asking for the test or raising your concerns, etc. . Again, I'll mention November is Epilepsy Awareness month. You can go to the Epilepsy Foundation of America website, or the CDC, or NIH for more information about the correct information about epilepsy, support groups, medications, etc. .

Barb - posted on 11/02/2009

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the only way to know for sure is to run an EEG at night while he sleeps or a sleep study which can even show if his oxygen level is dropping. Sleep apnea can also be a cause of daytime drowsiness and frequent nighttime awakening.

User - posted on 10/31/2009

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I am a HUGE believer in head to toe physicals for children on the spectrum. My son had an MRI and a huge amount of bloodwork when first diagnosed....not even concerned about seizure activity. They discovered he had a scar on his frontal lobe...either an inutero or neonatal occurence. My son has many balance/gross and fine motor issues. They don't know for certain if this caused these issues, but it was a possible reason why. The MRI requires sedation, but seizure activity is something for a doctor to diagnose, not for parents to look for. If possible, I would get back to family doctor and report your observations and concerns.



In a notebook, start jotting down when he zones out during the day...how many times per hour (if you can) If these are seizures (and not ASD "zonings") I really believe that a doctor should address how to manage them and let you know what their impact is.



Good luck!

Jessica - posted on 10/30/2009

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I would absolutely report all of these signs/symptoms to his doctor and schedule with a neurologist asap. the worst that can happen if you are wrong is that your child got an extra doctor's visit. seizure activity is very different for all people so just take good notes on how often, how long and what exactly he does. good luck and prayers for the best :)

Gina - posted on 10/30/2009

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Well I had heard something the other night went in his room to check on him and his sister and he was throwing his arms around almost like punching. I just figured he was dreaming. But he is so tired during the day like he hadn't slept all night. Theres times I walk in there and he is just starring at anything and doesn't usually respond to me. I always just thought he was sleeping with his eyes open. Then I started seeing ppl talk about how their child has silent siezures at night and thought OMG what if that's what he's having. I mean it sounds kinda like what the Neuro told me to look for during the day but I don't know for sure. The Neuro didn't run an MRI. She took her light and looked through his eyes and quickly turned around and said look for silent siezures and told my husband and I what to look for. I'm used to him starring during the day, but usually after a min of calling him he'll look at us. Just at night when he's starring he doesn't really move, just lays in his bed and stares. I just don't know if i'm over reacting or if this really could be it. I haven't noticed the drooling at night, but when he falls a sleep in a time out he does.

User - posted on 10/30/2009

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You will need to have him at a sleep clinic where they will hook him up and monitor brain activity. Is he drooling? Any clenching of fingers...vacating bowels? Probably not, or you would think definitely seizure type activity. After a seizure, most individuals are tired....How responsive is he? Is the staring out of character, or something you see during the day?



If you are being told to watch for silent seizures during the day, has an MRI been scheduled? If not, get one.



Good luck.



Sheila

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