Rhionna - posted on 07/09/2009 ( 4 moms have responded )
Ok, I really just need a rant. I've just found out that my 2 year old has ASD, although we don't know where about on the spectrum he is yet. It's not that I wasn't expecting it, I just don't know how to feel about it! I don't know if it's just the "grief" stage or what, I'm lucky in that Chris is starting to look at us now and we have a good conection but we don't know if he'll progress to talking or not. We were just given some basic information about it and it might as well have been written about him.
What really gets me is all my husbands family kept telling me that he was just delayed, I noticed things weren't right when he was about 9 months old but I let people convince me that he was just delayed instead of trusting my gut instincts. Anyway when he was 18months old and still not doing much I asked for him to have a review, the Dr was then supposed to refer him to a peadiatrition, he said that we'd here from them in approx 3 months (it was over the summer holidays) but when I hadn't heard anything after 3 1/2 months I started to chase it up and found the Dr hadn't even made the referal, so then I had to wait another 3 months. I just feel really let down. After that he had bloods done and a CT scan, we had to chase them up again to get the results, in the meantime he started with speech therapy and the girl who is in charge asked me how long it had been since we saw the peadiatrition, it had been 8 months!! As it turned out his pead had retired and his case hadn't been passed on! Now we have a new pead and things are finally starting to move. I just feel really let down by the NHS and just needed to get it out of my system! Sorry it's long, and thanx in advance for any tips /advice/support you could give me!