If there was a cure for autism would you want your child to use it?

[deleted account] ( 16 moms have responded )

My son is 10 almost 11 and was diagnosed with autism when he was 3 1/2yrs old. At first like any other parent I wondered what I did wrong (and still do sometimes) but for the most part I moved on from that. For a while things were hard based on the communication or lack there of but we got through that. However the older he gets the more aggressive and out right violent he gets. It started with pinching both himself and others, then it moved on to smacking. Now for the last 3yrs he has been biting. Whenever he gets extremely frustrated he bites his arm to the point of breaking his skin and bleeding badly. I can handle the melt downs, and the screaming and yelling, but it hurts to see my child whom I love so very much hurting himself. So if they were to find a "cure" for autism tomorrow then yes I would want my child to get it.

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Danielle - posted on 06/14/2012

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Yes, I think I would.
I love my son to bits!
His Autism affects certain aspects of his personality, but it isn't what make him who he is.
He would still love Toy Story, and Bubbles! He would still be energetic, and fun, and still prefer Chicken Fingers over broccoli!
The things it would change would be the things he struggles with.
It could help him talk, and comprehend! He could tell me why he is sad, or frightened, or hurt! He could feel more comfortable in his own skin, and maybe make a friend. Maybe it would make him feel less isolated, and maybe he would appreciate being able to express his feelings.
He would be able to sleep through the night without waking up, and we wouldn't have to be tired and resentful about spending the entire night sitting outside his door.

I love my son to bits and pieces!!
I love everything about him, including the "Autistic" parts, but if tomorrow someone said they could improve his quality of life then it would be something I'd HAVE seriously consider.

[deleted account]

I have heard most people say that they wouldn't want the "cure" because their children wouldn't be who they are. I prefer to look at it another way. Maybe they would be the person they were always meant to be. Maybe the reason they are so frustrated and aggressive is because that person is fighting to get out but doesn't know the way.

Diane - posted on 06/24/2012

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My little boy has a wonderful personality with a terrific sense of humour. All to often it is suppressed by his autistic tendencies (scared, anxiety, loud noises, frustration). It is like he is in a fog that he can onlly see through periodically. Would I cure him if I could? In a minute. I continually glimpse the boy that I know is in there, and I work to bring that boy to the fore. His autistic tendencies are not integral to him. I think of them like a limp, or a stutter. Things to be fixed so that he can be his true self.

Anaquita - posted on 06/24/2012

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While I can understand the knee-jerk reaction of saying, no I love him/her how they are, at the end of the day, I don't see there being a parent who wouldn't take their child in to be cured if there was an honest to goodness one available. My son has Aspergers. He's warm, loving, and quirky. I adore the little boy that he is. But seeing him deal with the social difficulties can be hard.

That being said, if a cure was new and questionable, I'd wait to see it refined, and proven safe, first.

Jeana - posted on 06/24/2012

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I would be first in line. My son was diagnosed with aspergers in 2010. That same year his father left and my father passed away. Many changes occurring, so many meltdowns. Where I live there are no programs or support groups. I would love to be able to give him the life he desires. Friends, control, and stability. I worry so much about his future and what will become of him when I will no longer be on this earth for him. A cure would be a God send.

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Deb - posted on 06/28/2012

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Hi Natasha...my son is 6 and also has PDD-NOS as well as ADHD. He used to be VERY impulsive as well...He is currently taking Clonidine (patch form, we change his patch about every 5 days) he's on the lowest dose and in addition, he's on the lowest dose of Abilify.

I was very apprehensive about the Abilify because he is not depressed or prone to tantrums of any type...but I trust his Neuropsychiatrist and J is doing SO WELL now. He just graduated Kindergarten and his teacher reported HUGE positive changes in his ability to focus, listen to directions and respond accordingly. Further, his conversational skills have improved.

Just wanted to let you in on this since our sons share the same dx and are about the same age!

~Deb

Lesley Joanne - posted on 06/28/2012

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Indeed I would want a cure for autism. Autism is such a cruel disorder, as it profoundly limits their abilities and they miss out on so much fun in learning etc. Well for myself having a son with autism can be challenging and often sad. I would love to have a conversation with him, even if I were allowed one it would mean the world to me. But I have to add what a special son I have, loving and affecionate and has the most gorgeous smile! I think it gets harder when they get older and life in general will probably be difficult but hopefully with the right help and encouragement one can only hope for the best life for him.

Diane - posted on 06/24/2012

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And if in the end we cant fix everything, well it wont matter because he will have the skills to live a full life, the one he wants to live. And we will love him all the time, regardless of waht the future holds for him.

[deleted account]

Thankfully Damian is in a self contained class room. All the other kids are on the spectrum so that helps a lot.
At every IEP meeting they ask "what are your long term goals for Damian", mostly I just want to get through the day with out a melt down and it's hard to think about what I want for him in the future. Of course just like with my other 2 kids, I want him to graduate high school and go on to college and get a good job and be able to support himself. However I must admit that I don't let myself believe that all of that will happen. Like Becky said we aren't going to be around forever and that scares me more than anything. Who will take care of him after my husband and I are gone?

Becky - posted on 06/18/2012

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Absolutely. I agree 100% with Danielle - my son would still be the same loving intelligent kid, but without the struggles that make him so different from the other kids. I want him to know what it is to be a friend and have friends, to be able to ask for what he needs or wants without a scripted line or screaming unintelligibly, and to be able to express himself. He just finished his kindergarten year at school, and the other kids tend to ignore him. I've heard them call him weird, freak, crazy, and dumb, and it breaks my heart. At 6 he reads at a 3rd grade level, so the only time they include him is during reading activities, where they view him as a side show, not a classmate or friend. They make fun of him because he is afraid of loud noises like fire drills, and sometimes he needs pressure to calm down so they call him a baby. It pains me to hear this, though I am glad that he does not seem to understand that they are teasing him. There are a few good kids who look out for him, but they are not in his class so we'll see how it goes next term. So yes, if there was a cure for autism tomorrow we would do it for him. I won't be around forever to look after him, and if there was anything that I could do to help him now and later in life I would gladly make any sacrifice to give him every opportunity.

Natasha - posted on 06/17/2012

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Hi Tiffany
My son is 5yrs and has ADHD, PDD (Nos) with borderline Aspe's... So I know what your going through. He just recently went on Respidol (0.25mg x 3 daily) and there are still big up's and downs but I can now see my son. I can see and hear him.... As a mother who has walked the road with him from birth to now its unbelievable how much he has missed out and can now achieve. Be Patient. Love your little one unconditionally and you will see all the LOVE that your little one will bestow on you. They know that your there for them. He know's your his guardian angel.

Angela - posted on 06/17/2012

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If a cure was out there and I could afford it I would seek it for my child. He recently turned 8 and he knows he has a problem but doesn't view himself that different. He has melt downs such as biting his hand when upset or hitting himself in the leg. He can get violent with others if he gets too out of control. I would love for him to be 'cured' and I've often wonder will I ever see that happen. But I love my child no matter what.

Sue - posted on 06/15/2012

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Our 7 yr old daughter has autism. She is very sweet and loving and I wouldn't want to change her personality but I would like her autism to be cured. I think she would have better success in our world if she could think clearer and be able to communicate. She used to scratch herself when she got mad and biet the inside of her cheek and lip until it bled. I told her doctor about this behavior and he put her on Respidol (spelling?). It has help a lot. She seems to get less frustrated but she is not "drugged". It has also helped my good friends little boy. He was really bad with scratching and biting other people before he started this medication. I would ask your doctor about it and see if he/she would suggesting trying it. Believe me, I don't like medications but if it makes her live better then so be it.

Sharlene - posted on 06/14/2012

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Like katerine has said its a tough question but really I think I would prefer my big james as he is.lol

Katherine - posted on 06/14/2012

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I had asked this question last year.....most moms said no because it wouldn't make their child the same child. If there was a cure and my child had autism, I'm not sure what I would do. I did ABA for 5 years and have worked with many different disabilities. I'm not sure they would have the same personality......maybe a cure for the fits and biting.....but not the autism itself.



It's a tough question to answer.

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