Introducing myself...

Rae - posted on 03/23/2013

Hello Ladies, Im new, my name is Rae & I have a 9yr old son (Ryan) with PDD-NOS & Severe Sensory Processing Disorder...possibly ADHD as well. I have 3 other older NT children. Since July 2012 Ryan has been experiencing severe aggression/ rages for unknown reasons. They happen sporadically throughout the day. It can last from seconds to hours. I've been keeping a daily log of weather, food he eats, his activity etc etc & I still can't figure out what triggers it. He can go days w/o any episodes but then suddenly it comes on. On April 4th he's going for an EEG to see if his brain has any seizure activity. This is so frustrating & depressing. It's nice to have a forum like this to express yourself. I'll check in throughout the week to update you all. That's all for now-- God Bless & take care :)

Jamie - posted on 02/26/2013

Hi, I'm a mom of two boys, 8 and 10. My 10 year old, has recently been diagnosed as PDD-NOS, and now, possibly Klinefelter's Syndrome. I'm thankful to finally get a diagnosis, because we knew he needed help, and now our insurance will cover the therapies he needs. I'm upset, though. Every new piece of information makes me sad.

And it's my opportunity to learn and grow. I want to do what I can to make his life better and wallowing in being sad doesn't help us.

This community was highly recommended to me by three different people when we discussed autism, so I had to come check it out. I'm looking forward to exploring and learning here.

Jamie

Joan - posted on 02/19/2013

My grandson is 3 1/2 he has been diagnosed with autism. I live away and only see him twice a month. His parents are divorced and neither one has time or inclination to do meaningful activities with him . He goes to a special needs class 3 hours a day. Are there any activities I can do to help him when he is with me?

Jan - posted on 01/21/2013

Hi, I'm a mother of 3 from BC canada, my oldest is 9 and he has been diagnosed with SPD, ADHD, and PDD-NOS. my 4 year old DD is NT and my 2 year old DD has SPD symptoms and is awaiting ASD assessment. if you want more background I write my ramblings here http://velcroandvideogames.wordpress.com...

Tracey - posted on 01/20/2013

Thank you for that......trying to keep a positive attitude

Brittany M - posted on 01/18/2013

I agree with Christine. That is a wonderful additude!

Christine - posted on 01/16/2013

That is wonderful!

Tracey - posted on 01/16/2013

Thank u! Still trying to take it all in......accept it......and wonder if he will be a "normal" little boy. Because to me and everyone else he's totally fine........just a little delayed

Brittany M - posted on 01/14/2013

about 2 years old officially. I know its a rough road, so if u ever want to talk let me know.

Tracey - posted on 01/14/2013

Your son is 3 ? How old when he was diagnosed?

Brittany M - posted on 01/13/2013

lets chat more. my son is 3 with autism too

Brittany M - posted on 01/13/2013

hi! awesome look forward to talking more with you and others who understand

Tracey - posted on 01/08/2013

Hello everyone. Just joining this group. Hoping it will help me get some answers and support. I have 2 children. My son Thomas is 21/2 and my daughter is 1 1/2. I am also 3 months pregnant with my third ! Thomas was diagnosed withPDD almost 1 year ago and is currently receiving aba and speech therapy. I am still having a difficult time accepting this and wish I could make it all better for him.......or understand what exactly PDD is. Will he be ok? How can I make it "ok" for him? Just would like to talk to other moms in my position.

Antonietta - posted on 01/03/2013

hi, and welcome Geralyn! i have a beautiful boy named Gabriel with PDD who is 5, My middle boy is Niko who is 3.5 anf my lil angel Amelia who is 8.5 months. i got my hands full but i wouldnt change it for anything,

Shelly - posted on 01/02/2013

Hi. I am new here. I have 4 boys ages 14,10,7, and 5. The oldest 2 are NT. My 7 year old has AS and we are pretty sure our 5 year old has sensory issues. We are in the process of getting him tested.My husband also has AS.

Cristy - posted on 12/30/2012

Hello and thanks. I have 2 children: 10 yr old son w/ ADHD and soon to be evaluated for Aspergers and a 3 yr old daughter with classic Autism. I find it very difficult at times with both children one diagnosed and the other not knowing that my is son is on the spectrum. He by far has more socializing, anxiety, and behavior issues than my 3 yr old. My son is on medicine for his ADHD which helps with hyperactivity but does nothing to help with inner emotional struggles he has. We are taking him to be evaluated by both a developmental pediatrician for the Aspergers and then to a child psychiatrist to address the anxiety issues that fall right into the category of Asperger's. I work full-time and have a stay at home husband who is currently battling Social Security himself for severe bad back w/ degenerative disc disease. We have pending SSI claim on appeal for my son as they recently denied him back in 09/12 to the ALJ. I have my hopes though that with the new evidence we will provide after the evaluations and additional diagnosis he will be approved.

James - posted on 12/17/2012

Hello Geralyn.

Peggy - posted on 12/10/2012

Hi all, I am a Grandmother raising three grandchildren, one is almost 6 with aspergers, ADHD, reactive attention disorder, severe anger issues' andPTSD one is 4 and has been diagnosed with ADHD and possibly aspergers, but we are not certain at this time if they are true dx, or copied behaviors to be honest, and the youngest is 2 and she had delayed physical developments, speech,but after a yr and a half of therapy and much hard work she is running , talking in sentences and so far is a typical 2 yr old. I sure hope I can get some help here as it has been a long and arduous journeyso far with not much respite. While we have come a. Long ways, I am seeing a lot of the anger issues again in the oldest that we had seemed to have overcome. He is hitting and kicking , defiant, and refusing to do as asked again. I am one tired Grammy! Thanks for listening!





Peggy

Goldie - posted on 12/07/2012

Hi there everyone!



my son is 3 and was diagnosed with autism a couple of months back :) glad to be here to share experiences and be each other's support!!!



cheers!

Lisa - posted on 12/07/2012

Hi geralyn, my 3yr old boy was today diagnosed with autism (ASD). I'm also new to here also, so hello everyone.

Colleenscatena - posted on 12/01/2012

welcome to all the mew members. I habe just joined myself.

Leanne - posted on 11/11/2012

Just introducing myself... I'm a mom of two, a DD who is 19, going to college to be an Educational Assistant~ Special Needs Support and my son who is 14 and was diagnosed with autism/developmental delay... Great to find a board like this and I hope to learn many new things!!



Leanne

Sandra - posted on 11/08/2012

Hi Geralyn!!! I am very happy to become a member of this community. Everyday I feel very alone in my child's (5 years old) undiagnosed Asperger's realm (he is diagnosed ADHD at this time). I am a mother of 3 fine little men, 10 weeks, 4 years, and 5 years old. My 5 year old started showing signs of Asperger's back in March (or at least that's when I started noticing that he was different). I previously worked for a facility for special needs (mainly Cerebral Palsy), but having a son that is different that what most people call normal has changed my perspective and outlook even more! Learning to look outside of the box at everything!!! So honestly I'm looking for any insight on Asperger's and how to cope with this from the parental side.

Lisa - posted on 08/23/2012

hi everyone my son is 4 in October diagnosed with autism on June 26th 2012.. overal delays and severe delays in speech and receptive communication... I have another son :) a year old in September! We live in Ontario Canada...

Shandonna Wynice - posted on 08/10/2012

Today I was told my little girl has autism she is three years old and the love of my life. I knew something was off but praying it was not this. Because I know the world can be a mean place I don't want to see her hurt by her peers. And true be told I'am really am lost I have a great place I'm taking her and I'm trusting God that she will get the help she needs and that she will be ok.

Maria Theresa - posted on 08/10/2012

Can i just say...Thank you Geralyn for your support..xx

MommieandMe - posted on 08/07/2012

Hi everyone my son is 3 he was diagnosed with Autism in June .

Jennifer - posted on 08/06/2012

Hello everyone. I have 5 children ranging in age from 18 years old to 16 months. One of my 16 month old twins was just diagnosed PDD-NOS. I have known in my gut he was on the spectrum since he was about 4 months old. He has been receiving early intervention services since he was 6 months old. It was a relief to finally have the official diagnosis but now I am overwhelmed with next steps. I am happy to find this group as I really want to connect with others who are experiencing something similar.

Kim - posted on 08/04/2012

What a coincidence, my son is 8 and a big boy with pdd~nos, adhd, and impulse control disorder, We do have a pool in the back yard and even that doesnt get him out of the house, trial and error, ive learned, we recently had him in tae-kwon-doe which turned into a disaster. Now he wants to give up, so sad. My advice is to just keep pushing..

Karen - posted on 08/04/2012

i cant stop pulling my hair, depressed ...

Karen - posted on 08/04/2012

hi im new here please let me know any theraphies for my aspie son, hes five years old, hes more aggresive now and hes sad all the time. he just started kinder in special day class i have so much qs.. is he secure there? can i place a recorder on my kid to make sure hes ok? i trust no one and i seen videos really horrible :( my kid is my son and i need him to be happy in order to continue my life because i feel i am not doing my job as a mom and i feel depressed and sad. he has no brothers or sisters, no neighbors, no cousins no friends

karenromero1987@gmail.com

April - posted on 08/02/2012

Hi everyone,
I am new to the circle and excited to chat w/ other moms :)
I have a 9 year old son w/ Asperger's and ADHD, and a 7 year old daughter not on the spectrum. I am thankful each day for the opportunity to parent a child on and off the spectrum as they really bring out the best in each other :)
My son goes to an ABA school and I would be happy to share experiences w/ that
We are also gluten free (which at least in our case has been extremely helpful w/ Devin's meltdowns) and I am happy to share any knowledge/recipes/good brands I have come across. Hope everyone is having a great week :)
April

Debbie - posted on 08/01/2012

Hi Geralyn,

I am Debbie. I just joined the group today. My little girl has significant behavior issues that we are learning to cope with and also hopefully nip in the bud. We are just starting ABA therapy within the next month. Keeping our fingers crossed that it will help. It's nice to find a place where others who understand and know what we are going through hang out.

I find it very difficult dealing with relatives and friends who don't understand the situation fully, and just seem to think we are "bad parents" and offer "discipline advice". I hope to learn from you all and share anything I learn along the way.

Brenda Jean - posted on 07/30/2012

Hi Geralyn! I have a grandson with autism and I have just signed up for this community. Jacob was diagnosed 2 years ago and what Jacob and his parents have gone through have brought me out of retirement (25 years in Early Childhood teacher/Director/Center Owner) to become a Special Needs Family Life Coach. I also volunteer with adults through United Cerebral Palsy and am acquiring a good knowledge base concerning families and special needs.

However, it is still, at times, unknown territory for us in our journey with Jacob. It is good to hear from others about their experiences and how they cope!

Goldie - posted on 07/18/2012

hi! im from singapore, i have a son turning 3 this november and a baby girl just turned 9 mths. 3 days ago my son was diagnosed with autism.. im still overwhelmed now and still in the this-must-be-a-bad-dream phase. so... but i have to face it and learn about the world of autism.. so that i can go "into" my son's world... so anyone with any advice? :) i will never get over it but i have to learn to deal with it... so ..... its comforting to know that am not alone..

Danielle - posted on 07/16/2012

Hello my name is Danielle and I have a 3 yr.old son and a 6mth old daughter. My son was diagnosed with the Autism Spectrum disorder. I am glad I found this group because I am needing help on understanding what this disorder will bring to us and how to deal with this. It's very overwhleming!!!

Danielle

Pauline - posted on 07/15/2012

I came in search for encouragement and it lead me here. My name is Pauline and I have 3 children. My oldest, Donovan, is 8 with Aspergers...he is a joy but on the other hand hard to encourage. My middle is Ayanna, 7, no diagnosis...just high spirited. And my youngest, "Doogie", is 3y9m and the most energetic of them all.

This is a much needed exploration into Autistic groups. I live out in the wheat fields of Eastern Washington and have difficulty finding activities (Special needs or other wise) for my children to do and I look forward to reading, trying, and implementing any idea/suggestions that I find here.

My son is very over-weight and it doesn't help that he is very tall! He is 8, 4'8" tall, and is 130lbs. The last check up with his doctor in June revealed that he is at a 32% BMI. With your Autistic child, which physical activity do you find keeps thier interest? We take all 3 kids to the park, kick a ball around and climb on toys but Donovan wants to sit. The activity that he loves the most is going to the pool but that is not always an option.

Thank you for reading.

Bernadette - posted on 07/13/2012

Hi Geralyn, I am a wife of an asperger syndrome sufferer and need some friends, so i have turned to your forum for that help. I am lonely and can feel very isolated in my relationship. I hope someome in the community will respond and new friendship of moms that have the same problems can be made. thanks

Emma - posted on 07/04/2012

Hi, my name is Emma and I'm from England. How Old is your son?
My son will be 4 on Saturday. He has hypotonia and GDD. He sat unaided at 9 month, crawled at 14 month and stand and furniture cruises at 18 months.
I'm just waiting for him to speak some words xx

Deirdre - posted on 07/03/2012

Hi Geralyn,

I am the mother of beautiful 4 year old twins. A typically developing princess and a prince with special needs. In April 2010 he was diagnosed with autism. Since he was diagnosed with pvl (periventricular luekamalcia) cp at age one, we had assumed this was the cause of his developmental delays. We subsequently learned a large percentage of the children with his form of cp are also on the autism spectrum. It is strange that prior to his diagnosis of autism I would often refer to some of his behavior as his "autism moments." I am furious that the Early Intervention workers did not pick up on this behavior when I would make the comments to them about his behavior. In April of this month, I met a boy in his Early Intervention play group who had been diagnosed with autism at 18 months. He is a few months older than my son and he looks and acts perfectly normal. His parents stated it was the ABA therapy that helped him make the necessary break throughs. My son is still waiting to start an ABA program. He will be almost 5 when he begins ABA, how much benefit will he get? He is completely non-verbal. I would be thrilled if he eventually speaks at the level of a 2 or 3 year old.

Leslie - posted on 06/25/2012

Nice to meet you!

Samantha - posted on 06/20/2012

Hi all! sharing the love xoxo

Katherine - posted on 05/08/2012

Congratulations lol!

Jennifer - posted on 05/08/2012

Nice to meet you! I am new. So new this is my first post!!! Yay! :)

Julie - posted on 05/07/2012

Hi,

I am a mom of a 16 yr old g and a7 yr old b, whom happens to have Aspergers. We are a newly diagnosed family and I am a little lost with trying to take in all the information. I am looking for a group in which I can discuss and share ideas as well as challanges. I am looking forward to gaining great insight and hopefully some friends here in this community.

Thank you, -

Julie

Marj - posted on 05/01/2012

Hello Im Marj and Im from Japan. I have a son who is 8yrs old and who was diagnosed to have a high functional austism. Im so thankful that I could be a part of this group. Anybody here who resides in Japan (Ota,Gunma in particular)?

Abbigail - posted on 03/27/2012

Hi my name is Abbigail. I am a mother of one and his name is Devaughn and at birth due to lost of oxygen to his brain he now has HYPOTONIA ( low muscle tone).My son is now yrs old And doesn't walk ,talk,sit or stand .we live in the Bahamas and he needs a lot of therapy.He is very smart and always happy!

Sharee - posted on 02/24/2012

hi everyone, i have 4 children my boys are 7 and 1yrs, my girls are 5 and 3yrs. my oldest son has just been refferred to specialists to be assessed for ADHD and autism. i always new my son was "different" i am just coming here to hopefully make some new friends :) and be able to get advice and talk to people that understand my situation. we have daily meltdowns in this household and at school especailly if there is any change at all to his daily routine. they consist of flapping arms and running and humming also banging his ears with his hands and, now as he is older hitting, bitting and scratching if you mention needles to him he will even bang his head against whatever is around him. like i said before i have always knowen he was not the norm but really did struggle with trying to get other people to see that it wasnt that he is just a naughty child or that he just had bad parents. i have to say that i am both relieved but terrified at him getting assessed. i been told that it will be done within 3 months so i guess its just a waiting game now. we already have routines in place and are teaching him ways to deal with emotions and meltdowns he is under a behaviour and development teacher at school as well as reading recovery. his teacher last year has a daughter who is autistic and she was the one that has really help me to get him assessed. any advice would be great, thanks so much

Sana - posted on 02/12/2012

hi i am new to this group, my name is sana and i have a 4 year son with autism, it would be nice to share our experiences and give each other advise on the every day battles which we have to face my son is non vebal and well he loves his meltdowns he can go on for up to 3-4 hours any advice on how to stay sane coz i am going mad

Susan - posted on 02/12/2012

Hi my name is Susan. I have an 11 year old with Aspergers. Dealing with the daily meltdowns and frustrations can be overwhelming at times. Thanks for the support and help we all need.