Introducing myself...

Geralyn - posted on 12/01/2010 ( 187 moms have responded )

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Hi everyone! I have the distinct pleasure of being assigned as the administrator of this community. I do not have a child with autism, but I do have a background in advocating on behalf of children of all ages who have autism or a related diagnosis. This is a large community with over 83,000 members, unified in raising concerns, sharing experiences, and learning more about autism related disabilities. The incidence of autism related disabilities is staggering, and the causes are unclear at best. The range of symptoms varies from child to child. Each child is truly unique and must be viewed in that light. Each of you brings an important perspective to our community, and I look forward to continued meaningful dialogue about issues affecting you, your child or children, and your family as a whole.

- Geralyn

MOST HELPFUL POSTS

Amy - posted on 02/19/2014

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Hi Mara,
Sorry but I do not have any knowledge on any of the meds. My son hasn't had to take anything. I have thought about finding a group as well, but I feel the same as you as far as being nervous. I feel my son belongs in a different class/setting, but in our school district there are very few options. I do love his school and his teachers though. They are great and I know he is in good hands. I was trying to find a way to send you a private message to share some more information with you. I do not see the option to do that on this site. If by chance you know how to, feel free to message me!

Rachel - posted on 10/15/2013

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Hi Marcy Jo, my name is Rachel, I live in Devon in England, and at the moment my 19 year old spends most of his time on his own, in his room, doing his "thang" as he calls it, he is happy as he can be in his own way, I have tried on numerous occasions to encourage his mixing but to be honest his answer is this "if I want to go out and mix as you so call it mother I would" LOL , I have been dealing with the G-Man on my own without solace or just conversation with someone in the same situation up until about 2/3 months ago when a group of lovely mums and dads set up on facebook a closed group called the A team they are smart and loving and you can let off steam without being judged, do they have a group in Northern VA where you can join to talk ??? If not maybe you can set one up, they also meet with each other and children are welcome xx Sorry if I haven't answered your question I wouldn't know how to as I haven't exactly been able to get my son to mix am afraid xx

Seeta - posted on 09/22/2013

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Hi , my name is Seeta i'm 29 yrs old, I have two sons,Turk 5 yrs, and Mohammed is almost 3,he has been diagnosed with PDD.NOS ,speech delay, I LOVE them so much, I try my best to be the perfect Mom for them , my husband is great person , he is working hard with me , I still need a lot of help on how to adapt to this new situation and how can I help my son to reach his potentials. Thank you :)

Megan - posted on 06/14/2013

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Hi. I am new here. My darling daughter is 16 years old. She was diagnosed at age 3 with classic autism, but now seems somewhere between Aspergers and PDD NOS. So far she has attended mainstream schools (and done very well), but is having more and more anxiety and depression. An unusual feature of her situation is that she is extremely social, loves parties and hanging out. Unfortunately, her shaky social skills often leave her with no friends.

April - posted on 08/02/2012

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Hi everyone,
I am new to the circle and excited to chat w/ other moms :)
I have a 9 year old son w/ Asperger's and ADHD, and a 7 year old daughter not on the spectrum. I am thankful each day for the opportunity to parent a child on and off the spectrum as they really bring out the best in each other :)
My son goes to an ABA school and I would be happy to share experiences w/ that
We are also gluten free (which at least in our case has been extremely helpful w/ Devin's meltdowns) and I am happy to share any knowledge/recipes/good brands I have come across. Hope everyone is having a great week :)
April

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Shahira - posted on 09/03/2014

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Hi everyone! I'm Erna. My eldest daughter Aurora has aspergers. She is eight years old. She can count easily with objects, understand before and after numbers but having prolems with addition and subtaction. She does the addition counting tallies but I she really doesn't get it. Does anybody know how can I make it easier for her?

Laura - posted on 07/07/2014

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Scary. I know. My son has chewed and almost swallowed a nut in its shell with shards of the shell. Chewy foods - jerky, dried unsweetened mango, fruit or gym chews. Chewing gum does not stay in your gut for 10 years as I heard as a child, so if swallowed it beats alternatives. I've dispensed whipped cream straight into his mouth if I needed something to help him. Spicy foods may also give him the input he craves. If it's cold and hard that he enjoys, ice! Get a snow cone maker too. Make sure he's not compensating for painful reflux by getting the usual Ped checkup as completely as possible. Parents pf neuro typical kids worry about concussions; take it in stride since kids will always be kids. Hope that you can begin to reason with your child more when older.

Marcia - posted on 07/02/2014

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Hi Cynthia,
I have a 22 year old son who was just diagnosed this week with what was before called Asperger's and now is only known as High Functioning Autism. Even though I have known this fact for years it was still held out hope that I may be wrong. Now that we have a diagnosis I am planing on contacting IABA (The Institute for Applied Behavioral Analysis), they have a lot of resources, including job training and employment, etc.
This information was given to us by the doctor that diagnosed him.
You may want to contact them, not sure if they are near where you live. I hope this is helpful to you.

-Marcia

Lidia - posted on 05/21/2014

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Hello, my name is lidia and i have 9 year old son who has aspergers.my concearn is that he still puts everything in mouth .what can buy t help him . Yesterday afternoon he end up choking on a quater it became loged in his throath .. help!!!!

Cynthia - posted on 05/03/2014

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Hello Geralyn,

Thanks for your role here. Incredibly generous of you.

I am working to connect with moms who have asperger adult children. I was deligted to find this site. Relief to know there's a place I can share.

When I initially did a search on google...I found many posts of mothers who didn't find out their child had aspergers till later, that's me...but when I joined up here and clicked on the Austims/Aspergers link... I couldn't seem to find them so I could respond. Any suggestions ?

Thanks, Cynthia

Julia - posted on 03/31/2014

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I have a12 year old he,s been acting up since he was three no doctor won,t give me a diagnose his behavior is out of control I,m looking for advise

Lisa - posted on 03/14/2014

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My name is lisa and i am the grandmother. My grandson has not been officially diagnosed. He has some of the "characterisics" of autism. My question, " where to start"? What are some thimgs i can do to help him with speech? He will look at me for a short amount of time when i count, are there learning tools i can use? Any suggestions greatly apreciated! Thank you...

Johanna - posted on 03/14/2014

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Hi,
My son is 12 and was diagnosed with ADHD from the age if 9! His primary years and now secondary school years have been so challenging and hard for him and a massive strain on the family. Schools and teachers really do not have the understanding or patience with kids they have to actually spend time teaching and getting to know the child and their specific needs if your child struggles with work or needs any special attention they do not want to know we have had a terrible time with school and funding it's really hard to get any understanding or support! My son is regularly pulled out of lessons and put into isolation with no support he is now labeled as a trouble maker and aggressive! There is a real lack if understanding and support for children that learn differently! Mainstream school is so old fashioned and needs a massive shake up to enable all kids to access the curriculum and to achieve their individual potential! My son is really struggling to fit in & make friends at school and trying to have any relationship with his teachers is a real strain as he finds it hard to ask for help & so gets labeled as disruptive!! It's time for change we must fight for our kids and their rights!

Allison - posted on 03/07/2014

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Hello
My name is Allison! I have two little boys ages 6 & 7, going on 15;). I'm a single mother (divorced), and been having difficulties with having my oldest:(
I've known from birth that something may be "off", although the drs like to diagnose "mood disorders", I'm not so sure about that with the ongoing rocking, meltdowns, self injuring, school (math & writing) issues, frustration, repeating his own words after saying them, over stimulated, obsessed with horses and drawing his entire life, writing backwards and much more:(.
The boys and I love being outdoors as much as possible, however, my eldest is now fearful of most everything (people taking his horses, bugs, walking, etc.), we camp, swim, fish, wander, do art projects, read, etc!

Nice to meet all of you! I look forward to discussing knowledge!

Mara - posted on 02/19/2014

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Thank you Amy! My son is begging to be homeschooled and I don't blame him. He doesn't belong in the level system even though his grades have gone up and he seems to be controlling himself better. I am so new to this....do you or anyone on here go to a support group? I am thinking of finding one but am nervous. Also his Dr wants me to try ADHD meds....with high functioning autism are those still helpful...some people have said no.

Amy - posted on 02/18/2014

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Hi Mara,

I live in Texas as well. I am in North Texas. I understand how hard it is to get your child what he deserves and needs. My son was diagnosed in Kindergarten. When he started first grade is when I had to start fighting to get him the help he needs. I know how frustrating and stressful it is and parents should not have to go through this. After a year of hell and a million ARD meetings I finally got some help. He is now in a different school. I wish you the best and hope it gets better.

Amy - posted on 02/18/2014

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Hello,

My name is Amy and I am new to this group. I have a ten your old son who is Autistic. He's very sweet and is my angel. I'm here to hear stories, share stories and help others if and when I can. I live in Texas and am a single mother.

Brenda - posted on 02/10/2014

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Hello Everyone ,

My name is Brenda & I'm new to this group . My almost 11 year old son was diagnosed with Asperger's 3 years ago. My adult BF also is Asperger's . I'm mostly here to learn more & help my family . Willing to share whatever I can. I currently live in Southeastern Texas .

Jamie Leary - posted on 01/30/2014

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Hello.... My name is Jamie and I am a mother of 4 children (20, 17, 8, and 3). My one and only boy Is the 3 yr old and he has been referred to a child find service to be tested for autism. I have noticed things he has done even since birth and though it took awhile to get my husband aboard, we are her. His pediatrician agreed with the things that we saw and agreed to give us a referal. We have been waiting in next Friday for 3 months and now that it is here we are a bit nervous. I have enjoyed reading all the different stories and look forward to having such wonderful women to interact with. If no one has told you today, thanks for posting on here this community is awesome.

Mara - posted on 01/29/2014

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My son is 5 years old and started kindergarten in august. Let's just say it hasn't gone well at all. We just this week received a diagnosis of autism and ADHD. We have been fighting for his right to be mainstreamed with an aide but have lost already. He is now in a social skills program and earning his right to be with general education threw a leveling system. My heart is sad that he is isolated all day and is rewarded with PE, ARt,Music,or recess based on behavior. My husband and I are worried we aren't making the right choice by going along with this. Homeschooling seems to be the only other option left. Has anyone's child benefited from a similar program? He is verbal, seeks out friendship, way above average intelligence......but shuts down, has trouble controlling his frustration and energy levels, and breaks down when he can't please adults or kids, and classroom noises and loud noises seem to be painful to him. We live in Texas....any advice would be helpful.

Renata - posted on 01/17/2014

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You right the spanking does not help, however talk 2 your son teachers & ask them 2 be watchful of any bullying from the other kids. Also ask her 2 tell your son 2 stop when he annoy other kids bcas autistic kids social skills are low. & the way the may attempt 2 play r start a convo may be rude 2 other kids....Teach your son the best you can how to interact with other kids by doing role play with him or reading books about other autistic kids overcoming some of there obstacle s

William - posted on 01/10/2014

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I am truly sorry I didn't see a father with autism board but I do have a wonderful diagnosed autistic son that is 7 year old and I am feed up with the spanking and I have stopped due to know results. He has recently been getting picked on at school and would love to get some info on how to get him to either defend himself or how to not put himself in a situation that make other children to pick on him. Oh and lol I am a first time visitor

Rosann - posted on 12/23/2013

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where in Virginia, my step daughter lives in Virginia Beach, we just found out about the diagnosis. We live in another State.

Rosann - posted on 12/23/2013

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So happy to find you. My step daughter just turned 30 and has been diagnosied with Aspbergers. She has terrible rage issues, social disconnect and doesn't appear to love anyone. She is out of state and we are not sure how to deal with her behavior, we would love to find a support group. I have of course more to say but want to be sure you have an active site.

Laurie - posted on 12/02/2013

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I'm Laurie, my daughter, 5 years old, was diagnosed with Aspergers. We just started school this year and it has been anything but a wonderful experience. We've had to fight the district to get her services. She is constantly getting yellow and red light days, which is not boosting her moral. She is starting to hate school and it's not really her fault. She is overwhelmed and overstimulated. She doesn't have a social network she can rely on there, and breaks down quite easily. I'm at a loss, I don't know what to do. I love my baby girl and want only the best experiences for her.

Ilene - posted on 11/05/2013

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I'm Ilene, mom to a 9 year old Aspie son. Looking for support of people who understand and don't tell me "take your conversations elsewhere and not on a public board" Ugh. So annoyed. Feeling like I want to scream but don't know where.

Motherofq - posted on 10/23/2013

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I have a 4 year old son with pdd-nos. He has speec delay and has some behaviors that if I didn't have other people telling me they were due to him having something wrong, I might just think he was an extremely willful overly sejsitive child. Because thats what this diagnosis looks like for him. He can't control hisself easily , but yet its not adhd, since he can sit still usually, he just can't stop interrupting and "raising hell". He needs everythingto be specific ways or he freaks out, and life is fullnof twists snd turns, so he freaks out a lot. This ends up in agression, screaming, throwing. So, its interesting to see how similar all these kids are. Thanks for listening.

Marcy Jo - posted on 10/16/2013

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Rachel,
Thank you so much for taking the time to talk to me. Taylor does the same thing as your son, stays in his room & plays video games. But, he goes to regular school with kids that don't know or have aspergers. So, at school he's trying to fit in and make friends & he really wants a girlfriend. I'm scared it will never happen! He's starting to harbour a lot of anger, cause he doesn't know why he can't make friends easily. Thank you so much! Any ideas?
Marcy Jo

Marcy Jo - posted on 10/14/2013

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Hi, my name is Marcy Jo. I am a stepmother of a 16 year son with Aspergers. I have been in his life since he was two. I am a teacher who is currently on disability for Graves disease. I'm married to a man that works many hours as a store director at Harris Teeter. We currently live in Northern VA, but are moving back to where my stepson lives, in Charlotte North Carolina. If you see him, you would not think anything is wrong. He is a handsome 16 year old boy. His Aspergers makes it difficult for him to fit in certain social situations. I am looking for groups, ideas, activities to get him involved in where he can meet long term good friends that would understand & appreciate his differences. Any help or suggestions would be greatly appreciated. I also hope to meet other women who may be experiencing what I'm going through.

Crystal - posted on 09/30/2013

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Crystal morrow I have two sons the oldest has ADHD and aspergers he is 8 and his brother is 5 it is hard sometimes

Nicole - posted on 09/23/2013

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Hi there!! I'd love to volunteer my time to help out with whatever you need. I, myself, have a goal of forming a non profit organization for parents who have newly autism diagnosed children who don't know where to turn. I was put in a horrible place after learning of my sons diagnosis, and was given and offered no help from doctors and specialists. I've made it my goal for no parents to have to go through what I went through and would love to volunteer my time making the process for autism parents to run as smoothly and non overwhelming as possible. Please email me and let me know if you have room for me to help in any way!! Nicolefur@gmail.com

Nichole - posted on 09/17/2013

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Hi. My is nichole im 29 year old wit three kids alyssa is 8 christopher is 9 and my little one damian is 2 i love them very much i have been a single mom for a long time alyssa has grown up wit autism she so happy and smart in so many ways but sometimes its hard when she dnt wanna do anything and the other kids do how do i work around everyone to make them happy

Rebecca - posted on 09/16/2013

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My son has PDD-NOS and sensory integration disorder. He was diagnosed before he was two. He stopped talking and had repetitive behaviors, arm flapping, spinning in circles, long drawn out tantrums with no apparent trigger. He has accomplished alot with intense early intervention and daily therapy that I followed through with every single day. Now he sees a psychiatry resident that thought he had disruptive behavior disorder and the attending says their is nothing wrong with him and that I am exaggerating his behaviors and even sent DHR to my house because she thought I was exaggerating. She only saw him once and did this. Every day is different sometimes every five minutes is different. After investigation by DHR including interviews of witnesses to his behaviors they said I have nothing to worry about. I am in the process of finding a new doctor. Since DHR came out that doctor won't even return my calls. How can a doctor even come to a conclusion after one visit especially to this extreme. I am so angry because DHR could be helping a child that is in need due to neglect or abuse and not investigating things that don't need investigating. All the doctor had to do was ask me to bring caregivers or something to talk to. I feel this just caused me more stress that I already have to deal with.

Cheyenne - posted on 09/01/2013

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Hi Nicole, I'm not sure if your question was directed towards me or not, but the play I'm writing has the child start at around 8 and grow to be around 17. If you were asking me and would like to help, please click on the link to my question and you'll see where other mothers have responded. Thanks! :)

Cheyenne - posted on 08/09/2013

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Hi everyone! I'm seventeen and currently writing a play, (in hopes of directing it at the end of the year), about a child with autism. I've come here in hopes of finding inspiration and those willing to answer a few questions or share some stories with me. If you want to help, the link is: http://www.circleofmoms.com/autismasperg...
I would LOVE for my play to develop from real stories and not just what I can read from a medical book. Thank you so much for being so strong!

[deleted account]

If you have never had a child with Autism you will never know how deep the wounds go but thanks for assisting in our world!

Laura - posted on 06/20/2013

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I'm Laura and very new to being around children with autism. My husband and I have taken in three children who belong to a friend while she tries to figure out living arraignments. I have been told very little about their routine (if any) and likes. Anyone have tips on how I can help these children learn our rules and routine?

Laura Lynn - posted on 05/31/2013

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Hi. My name is Laura. My husband and I have 5 wonderful children 3 boys and 2 girls. Our oldest son Isaac was diagnosed last year with autism. It has been hard to swallow. We are makings at by day but I would love to have a friend to talk to who knows the daily struggles you have with an autistic child. And to know I'm not alone in this fight.

Rae - posted on 03/23/2013

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Hello Ladies, Im new, my name is Rae & I have a 9yr old son (Ryan) with PDD-NOS & Severe Sensory Processing Disorder...possibly ADHD as well. I have 3 other older NT children. Since July 2012 Ryan has been experiencing severe aggression/ rages for unknown reasons. They happen sporadically throughout the day. It can last from seconds to hours. I've been keeping a daily log of weather, food he eats, his activity etc etc & I still can't figure out what triggers it. He can go days w/o any episodes but then suddenly it comes on. On April 4th he's going for an EEG to see if his brain has any seizure activity. This is so frustrating & depressing. It's nice to have a forum like this to express yourself. I'll check in throughout the week to update you all. That's all for now-- God Bless & take care :)

Jamie - posted on 02/26/2013

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Hi, I'm a mom of two boys, 8 and 10. My 10 year old, has recently been diagnosed as PDD-NOS, and now, possibly Klinefelter's Syndrome. I'm thankful to finally get a diagnosis, because we knew he needed help, and now our insurance will cover the therapies he needs. I'm upset, though. Every new piece of information makes me sad.

And it's my opportunity to learn and grow. I want to do what I can to make his life better and wallowing in being sad doesn't help us.

This community was highly recommended to me by three different people when we discussed autism, so I had to come check it out. I'm looking forward to exploring and learning here.

Jamie

Joan - posted on 02/19/2013

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My grandson is 3 1/2 he has been diagnosed with autism. I live away and only see him twice a month. His parents are divorced and neither one has time or inclination to do meaningful activities with him . He goes to a special needs class 3 hours a day. Are there any activities I can do to help him when he is with me?

Jan - posted on 01/21/2013

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Hi, I'm a mother of 3 from BC canada, my oldest is 9 and he has been diagnosed with SPD, ADHD, and PDD-NOS. my 4 year old DD is NT and my 2 year old DD has SPD symptoms and is awaiting ASD assessment. if you want more background I write my ramblings here http://velcroandvideogames.wordpress.com...

Tracey - posted on 01/16/2013

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Thank u! Still trying to take it all in......accept it......and wonder if he will be a "normal" little boy. Because to me and everyone else he's totally fine........just a little delayed

Brittany M - posted on 01/14/2013

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about 2 years old officially. I know its a rough road, so if u ever want to talk let me know.

Brittany M - posted on 01/13/2013

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hi! awesome look forward to talking more with you and others who understand

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