Just starting Abilify and clonidine

[deleted account] ( 15 moms have responded )

Finally bit the bullet and saw someone for help.(ADHD, aggression towards himself and tics) Our son has autism, sensory integration, ocd, and now vocal tics. We will be starting abilify and clonidine. Just wanting some feedback on how these meds did for your children and what side affects to look for.

Thanks

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Tamera - posted on 08/16/2009

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My son is 7 yrs old, diagnosed with seizures, autism, ocd, bipolar disorder, and adhd. He is currently taking Abilify ( among others) 4 mg morning 4 mg night. It has done amazing things for him. He used to be violent and moody. i have tried other mood stabilizers on him and nothing helped. Abilify has not given him any side effects either.

Beth - posted on 08/18/2009

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Quoting Melissa:

Just starting Abilify and clonidine

Finally bit the bullet and saw someone for help.(ADHD, aggression towards himself and tics) Our son has autism, sensory integration, ocd, and now vocal tics. We will be starting abilify and clonidine. Just wanting some feedback on how these meds did for your children and what side affects to look for.
Thanks



I work with autistic children and have seen huge differences  specifically contirbuted to the use of abilify. There were less tics and less SIB  with both kids who began taking it. THe change did not happen right away and geadual increases were needed as the abilify leveled of in theor systems. Good luck and bless you.

Christine - posted on 08/16/2009

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My son is 10 and has adhd, aggression towards himself and others, asperger's syn. and depression. We have him on adderall xr and abilify and prozac. Medication alone is not enough. We also have a weekly therapy session with a child counselor and she teaches him coping mechanisms and how to control his aggression. The medication seems to help him take control. It is important that he sees improvements as his own victories. When he has a growth spurt and the meds need adjusting you can really tell. It is equally important that he realizes how the meds help him maintain control. Read everything you can about the meds and get a pharmacist you like and pick their brain for info. Don't be afraid of medicines but make sure you have the correct doctor prescribe them. A pediatrician is not really the right doctor to prescribe unless they specialize, a child psychiatrist is best. But no one knows the drugs and their behavior better than a good pharmacist so talk to everyone. Knowledge is the best weapon when your fighting for you child's future.

Carisa - posted on 08/12/2009

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I have some experience with Clonodine and Abilify. The Abilify did not work as well as Repridal (non generic) but there are less long term side affects. My son feels hungry often but I used his Autism to my advantage, He eats meals at 8am, 12pm, and 5pm. He has a snack at 3pm. This helps him to regulate what his brain is telling him. His brain says he is hungry but his belly is not. Abilify has been great for my sons sensory issues. He went from sleeping naked on the berber carpet with half a dozen blankets on him to sleeping in his bed with pjs and 1 blanket. My son is sensory seeking. It has also helped so much with his anxiety. The abilify makes my son tired but he handles being tired much better. He is also more loving and sweet.



I have not seen much improvement in my other sons stuttering. He is on Focalin for ADHD and it has caused the stutter. He has been on it for a month. It does make him really tired



Even though your son vomited after taking the abilify, I wouldnt change when you give it to him. His belly will need time to adjust to it. He is on a very small dose. The abilify pills are so small, you may have better luck with those.

Alisha - posted on 08/19/2009

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my daughter has PDD NOS, ODD and sensory integration and has been on clonidine for 6 months now and just recently started abilify. I have found that she sleeps better and has been able to manage her meltdowns better as well. I have not incountered any bad side effects on these meds as of yet.

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[deleted account]

My 13 year old has been dx with autism, adhd and early onset bi-polar. He has always been very active, sleeps only a few hours a night, and is just slightly verbal. He has been in behavior programs at school as well as at home for the past 4 years. We have tried several meds with Dylan, but everything he takes has a paradoxical or the opposite affect. If the doc says a med will make him sleepy, you can bet it will hype him up, etc. So, our choice of medications is limited. He was on Stratterra for the adhd, but it stopped having any affect so the doc put him on risperdone and klonapin and depakote for mood swings. I was not happy about the decision, but it worked for a little while, too. Now that he is 13 +1/2, puberty has arrived and he is completely out of control. Bouncing of the walls-litterally, SIB, hurting me and his brother and the staff at school, throwing furniture. It's non stop. He's like a whirling dervish. He doesn't sleep at night. We're exhausted and at our wit's end, yet she won't change anything. Has anyone else's son or daughter had the opposite reaction to the Abilify than intended? I have heard good things and would really like to try it. His teacher, behaviorist and pediatrician all say his meds need to be adjusted for the jump start on puberty anyway...He is a twin, yet physically he is 2 years ahead of his brother. Thanks for any help or advise.

Kathy - posted on 03/26/2012

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My 6 year old diagnosed with autism has been on abilify for almost a year. We had to take him off as he started to show some bad side effects I.e. severe facial tics, seizures. It came on suddenly and are getting numerous tests (EEG, cat scan) just to make sure it's not something else. The abilify worked while he was on it but the side effects far outweigh the positive. Best of luck to you.

[deleted account]

Braden has seen an OT private and school since 1 1/2. We have done brushing and compressing programs for the skin sensory. Beckman oral motor program for mouth sensitivity, Theraputic listening for Auditory problems, We are now more in a home program. We have tramplines and blow up mattress for jumping. I have a swing that can go in his bedroom doorway....... that kind of stuff. The 2 meds came because she didnt want to stick him on a stimulant for the hyperactivity because of the tics, so she wanted to start him on the clonidine for the calming and tics and the abilify because he was starting to get more anxious and when he got upset would hit himself. I found he was just beginning to get angry more often. The clonidine did well and just that pill has done a lot of calming. I find he doesnt require so much jumping and pounding. Although the vocal tics are still there. I gave him his first dose of Abilify this morning at 6:30 and he was super still and quiet and then vomited at 12:30. I am thinking of backing off on the dose by at least half and switching it to a night dose. I need to do some more research I guess. His OCD is more like putting things that belong in groups. Cars go in 1 pile ect.. If you place something somewhere then that's where it goes from now on.....he'll straighten crooked things, he is really big on the same routinue. He used to be really rigid about things like he only drank in the blue cup at my mom's house and the red one here etc, but that is so much better. I think when he started school he eased up on being so rigid about routines. Is your son on the abilify and the clonidine at night time ??

Michele - posted on 08/12/2009

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Andrew has sensory issues also. I have him in OT for them. How do you treat them? If your son doesn't have meldowns or behaviors then why the 2 meds? What kind of OCD? My son gets stuck on ideas, compulsions and repetitive behaviors. Up on his curled toes, smelling his hands, wanting showers all day, BM messes, cracking fingers, picking bottom, verbal noises, claps, stomps, echos, eyes blinking and rolling, motor delays. PANDAS is hard to treat and diagnose. Check out this link http://www.pandasnetwork.org/index.html . We have done steroids, anibiotics, and meds for he symptoms.

[deleted account]

Braden is 7 and has Autism and Sensory Integration disorder. He has some OCD but nothing really severe just little things that make us shake our head and laugh. We lovingly call him MONK. But he really isnt that bad, he just likes things a little orderly. He was diagnosed since 1 1/2 and has been in lots of different therapies. We started with the tics only this past year and he did have a strep infection and the tics seem to go away after the strep infection was over. What type of signs and testing do they do to diagnosis PANDAS? Our pediatrician did not want to start meds on him so my sister works at a clinic and the nurse practioner for a psych dr saw him and started the meds. She will probably see him monthly to follow up.

Michele - posted on 08/11/2009

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We still give only the half of the .01 mg Am and PM. I am not kidding he has fallen asleep like a rock at the pool or in the car after getting it in the AM. It really is calming though. On the Abilify we started 2.5 mg in a pill. He wanted to eat often. Like he was always hungry. Still he will ask for like 2 cheeseburgers. I just let him eat often but healthy, not sweets. Somtimes it is annoying cause I think we just had dinner but then I remember the med side effects and let him eat again. My son is on a 3 week dose of steroids for possible neuro inflammtion from PANDAS. He had symptoms since strep at age 1. He gets really bad tics and behaviors and compulsions after he is sick. I think the inflammation is causing the AS symptoms. He also has sensory issues and we get OT for them. How old is your son? How long has he had his symptoms? What type Dr. is doing the meds? By he way in about three monhs it stopped working as well. Now we are up to 15 and that is a high dose. I have heard Risperdal has all the same side effects but has been approved in kids with autism and abilify has not. Maybe we will switch to risperdal soon. I hate meds but don't know how to manage life without them with the constant tantrums.

[deleted account]

We started Clonidine (pill) last night because It does have some sleepy side effects. She thought it would help with the tics, calming and sleep. We are starting on 0.1mg and she had us half it. I think i am gonna give the clonidine one more night before i start the abilify to make sure I know which side effect comes from which med. The Dr. did want to start him on Risperdal but I too was worried so she gave us a liquid abilify and we will start with 2mg. We will monitor his blood sugars at home. I already did one this morning to get his normal before we start the abilify. When your son started abilify did he just start eating alot or did the med slow his metabolism down? How quickly did the meds start wearing off and you would have to increase the dose?



****Thanks for everyone sharing their stories.

Michele - posted on 08/11/2009

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Hi. My son has AS and OCD symptoms and tics so we have something in common! Yes we have been on Abilify for a year and a half. The Clonidine we started in June. We started the Abilify on such a low dose 2.5 mg but for us it kept losing its affect. At first he was so much calmer and less tics and better attention. Slowly we crept the dose up. Now we are up to 15 mg and he is 7 and 50lbs. He has gained weight on it but he was small to begin with. Also it helps with falling to sleep. Then we added Clonidine since the moods were getting bad again. Psych wanted us to do Risperdal instead with Clonidine but I only wanted to make one change at a time. It gets very confusing when doing multiple meds. I would like to get him off the antipsych meds because of the long term side effects such as tardative dyskenesia and diabetes. Risperdal is approved for Autism though but also has bad side effects longterm. My son still has behavior meltdowns on the meds and tics and anxiety so then I wonder if the behaviors are caused by the meds? Keep a medicine log/symptoms it really helps the Dr's. Good luck. Clonidine made him very tired are you doing a pill or a patch?

[deleted account]

My son has been on clonidine for almost a year. It helps most of the time with the ticks, but we have found that most of all not eating eggs and dairy is the biggest help. All kids are different but it is easier than to medicate. Hope all works out. By the way clonidine made my son gain weight to watch out for that.

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