Medications for kids with aspergers???

Mary - posted on 09/20/2010 ( 25 moms have responded )

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I hate that I'm having to consider medications, but I am. I feel like I'm at my wit's end... and can't take much more. Nathan has started not wanting to go to school again... hits, kicks, etc. at his TSS... has swung at peers. He doesn't like to leave the house on weekends.. it's a struggle to get him ready to go to the store no matter what. He's having some mild problems with going to bed... and it equals out to me usually staying in his room until he falls asleep. I just don't know what to do anymore. So I'm looking for ideas ... what types of medications are there for this sort of thing... and what are your experiences with them..

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Dianne - posted on 09/24/2010

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Hi :) First off let me give you a cyber hug and tell you that you are not alone. I know most days I tend to feel alone in this as I am the primary caregiver for my 10 y/o Aspergers/ADHD/ODD twins. Our twins are on Dexidrine and Rispiridone. A mix of the 2 medications . They do help, but in the case of my children I am still pulling out my hair almost daily. We tried the melatonin for the children, but daughter became mentally hooked on them. Could not sleep (in her mind) without them. My husband said enough is enough and took them off them. We are now using diiluted Lavendar oil, sprayed on thier bedding, pillows, and anywhere they spend much time. It seems to help thier sleeping. Son hates it, but daughter loves to spray it. I hope my post has helped you. At least let you know that you are not the only one who is going through the same things you are with your son.

Mary - posted on 09/20/2010

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Talk to your Dr. about using melatonin for sleep. its non prescription and some kids and adults do well on it. Risperdal has helped us with the way Alex would fight us on going to school and with anxiety with others. We are still trying to find something that will help him focuse better without being in lala land. I will not tolerate that. Have you tried behavior theripy with sinsery? My so ndoes good with touch and soft words when hes upset. Good luck

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Michele - posted on 08/10/2011

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My son is now 9 we have been using meds since age 6 for aggressive behaviors and opposition from OCD, aspergers and tourettes. Now he is on risperdal and intuniv and Prozac. He has compulsions and trouble with regression and emotional regulation. We are still needing to up Prozac for the stuck fixations that cause meltdowns. Less destructive behaviors though and tantrums. It is still a work in progress. The tics seem better controlled.

Jaymi - posted on 08/10/2011

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My 8 year old Elijah has mod to severe autism. We have struggled with terrible aggression with him 1-2 years ago. He was getting sent home from school for hitting teachers and kids, kicked me in the head twice knocking me out, threw his 1year old baby brother across the room by the neck, as well as constant lesser behavior. Anyway, we tried 6-7 different meds including risperdal. They would work for a bit, then we would have to increase the dose. Eventually we would switch to a new one. About a year and a half ago, his dr. started him on Seroquel, It has a sedative property to it, so it also helps with sleep. He takes a lesser dose at breakfast and lunch and then a higher dose before bed. I don't know if it was just the Seroquel, or changing to a special needs school, or just him getting older and more able to reason, but he is an entirely different child now. He is doing pretty well in school, talking more often (which was very rare before), and his aggression is minimal now. He still is destructive with things at times, but I would much rather him tear up a book than hit one of my other kids. Don't get me wrong. It didn't cure him or anything, but he is 1000% better than a year and a half ago.

KELLEY - posted on 08/09/2011

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The Intuniv made my daughter so sick from the side effects..Bad stomach ache and upset and on the potty all day .

Kimberly - posted on 08/08/2011

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My son was "officially" diagnosed in May of this year with PDD-nos, and mood disorder-nos. Even before the diagnosis he was put on Abilify due to violent outburst. We tried prozac and aderall but he became so violent he tried to seriously hurt other children. The abilify has been amazing and it work for my son. We haven't had a violent outburst in months, and his moods are not so unpredictable. He sleeps better, he isn't has scared to be away from me, and socially he seems to be getting better when interacting with other children. We still have situations he can't handle yet, school and large group situations. Then the regular day to day challenges. We are looking forward to working to a place where you can't tell he is different, and where he feels more comfortable in certain situations. All kids are different and while this medication may work for some it doesn't for others. For us it was a process of elimination. Talk to your doctor about what might work best for your son.

Jenny - posted on 08/06/2011

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We have started Prozac to help with anxiety issues. You are not alone, ane we too struggled with this decision for a couple of years. We don't see it as a magic pill, just something to help him on his journey.

Karen - posted on 06/16/2011

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My 9 year old daughter has Aspergers/ADHD. She takes Concerta in the morning and started taking Ritalin in the early afternoon a few months ago. It has helped tremendously with focus during school and homework. I have noticed a huge difference.

Jennifer - posted on 06/16/2011

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My daughter has asberger...but looking through this forum doesnt seen to be many girls with it. She is on nothing but really needs something as she is very bad.Sometimes I dont know where to turn......

Michele - posted on 12/09/2010

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My son has aspergers with ADHD tics and ocd and mood disorder and we have him on risperdal and intuniv and prozac. A couple months ago we added vyvanse for the adhd but he has gotten really emotional and more explosive. Daily meltdowns have returned. I am trying to get him off the vyvanse. We have tried every adhd stimulant out there and they all made him worse. His ADHD is so bad that the intuniv is not enough. Any ideas?

CHris - posted on 09/28/2010

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Hi, I put my daughter on Welbutrin three years ago and I find this helped us dramatically when we were in your position. It isn't recommended for kids but she was 13 at the time and we'd tried some other meds before that we weren't happy with. This was the magic bullet for her.

Sarah - posted on 09/28/2010

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My son has been on all kinds of different meds in the last 4 years. He was on Risperidone for 3 years, and it was very sedating for him. In my opinion, it really didn't do much for him. He has been on Tenex for some of his tics. About a year ago I got the developmental pediatrician at the autism center to switch him from Risperidone to Abilify. Right now he has not had a violent episode in 4 months, where he used to have them every few weeks. He is currently on 7.5mg abilify, 1mg tenex and 20mg of prozac in the morning and 5mg abilify and 1mg tenex in the evening.

right now he is at a special school for children with emotional and/or legal issues who cannot be properly served by the local school. There are small class sizes ( like 12 kids) with a teacher and aide in each classroom. They have the training to restrain and seclude, if needed, but I don't think they have used more than a few minutes of seclusion for my son in 2 years. They prefer to have a staff member walk to with a child until they calm down. The juvenile court /probation officers are regular visitors in the school, and I think it is a good thing. They also have daily therapy group. My son is just weeks away from being able to start transition back to the mainstream school. When they feel he has done what he needs to do ( not have any aggresive episodes for 9 weeks) they will arrange for him to go to the local HS for half a day. If he does well for 9 weeks, they will allow him to go back full time.

Sarah - posted on 09/28/2010

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Hi Angela, my son also was secluded at school, he was also bullyed we are putting him a new school which we were worried about the change thing that he does not like, but hearing you say that it helped gives me hope, thanks Sarah

Krista - posted on 09/28/2010

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Medications can be a very effective tool in a balanced approach to helping any child with a special need. My son was diagnosed with AS with ADHD in March of 2007, but we suspected he had it way before his “official” diagnosis. He was placed on Vyvanse after his dad left, and this helped him balance out at school. He did not use it during the summer and is currently doing well without it this school year.
In addition to medication, I have focused on social skills training. Using social stories, social skill building and counseling, my son has learned to be successful in a variety of situations. He struggles daily with basic interactions, but we deal with them as they happen. I work closely with his school to ensure that his needs are being met, and that we address small behaviors as they happen. It is very easy to find social stories that are already made on the internet, just Google social stories and there will be a wealth of information.
Social skills training are a bit more involved and take gaining the parenting skills to help your child. I use the Boys Town Model of care. It can be obtained by going to their website and looking for Common Sense Parenting. There are other models out there, and many are good, I just personally like Boys Town and have been using it since before he was even born (I work with at-risk youth as my profession).
My point is that there are resources out there to help create an approach for your child that addresses their physical (medication), emotional (social stories) and behavioral (social skills) weaknesses. I wish you the best of luck! God Bless

Christina - posted on 09/28/2010

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Wow...I was surprised to see all of the different answers! My step son who has been diagnosed w/ Asperger's takes Focalin, which I love for him! He doesn't take Melatonin on a regular basis, but will take it if he is having trouble getting to sleep. My biological son (Tourette's Syndrome) is 5 and has been taking meds for about 2 years now :-/ I know that is *extremely* early, but he has so many things going on besides the Tourette's (i.e. ADHD, OCD, ODD, PTSD and Anxiety). He is currently taking Intuniv, Vyvanse (love!), Risperidone twice daily and Melatonin. I would like to get him off of at least one of the meds, but they are not harming him and he is doing very well. He is still a very hyper little guy even w/ all the meds, but better than before :)

As for my step son w/ Asperger's...I personally think that he needs to be on some type of anti-depressant as he just seems unhappy or too happy...there is no in between. But...he is *surviving* and able to cope on just the Focalin. We tried the Focalin w/ my child and he became very aggressive.

Angela - posted on 09/28/2010

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Melatonin saved us from sleepless nights. Our ASD son would stay up until 2am/wake up at 6am and then of course would not be able to concentrate at school which led to him getting into trouble. The only time our son violently didn't want to attend school was because he was being sent to seclusion and being treated very roughly by an aide. We didn't find this out until much later(apparently they weren't required to report to us that seclusion/restraints were being used) and am happy to report that once we switched schools, the struggle ended. I strongly recommend trying melatonin for sleep and see if that doesn't help with the morning attitude. Good luck to us all. : )

Jane - posted on 09/28/2010

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My son is Asperger's/ADHD. He takes Focalin XR 15mg. He does really well on it. Few tantrums at school, and it doesn't make him a zombie!

Sarah - posted on 09/27/2010

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My son does the same, we dont get the violence but does not want to go to school or bed without us sitting with him, scared of being in the house on his own, wont go in lifts or planes it does stop your lifes but he cant help it I know, we were offered risperdome but I am a bit worried about it, weight gain sleepyness etc but if it helps him should we do it ??, its very hard decission to make and I am totally with you about medication but does it suit everyone ??, keep me posted good luck with your decission Sarah

Joanna - posted on 09/27/2010

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HI my name is Joanna Gomez and I have a 10 yr old son with Aspergers. The Doctor put him on 10mg of Prozac and it has helped him so much with his Anxiety. Before he started taking the meds, he was spitting, kicking and hitting teachers he would lock him self in his room and he hated for people to look at him. Now he is doing great. The meds didn't seems to have any major side effects on him. When he first started taking it he would get really sleepy so I gave it to him at night before bed so he wouldn't feel the side effects during school. Hope this is helpful. Good luck :)

Kris - posted on 09/26/2010

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My son is 12 and has full blown Autism. He takes Ativan 3 to 4 times a day, and to sleep at night he is on Catapress, without this we would never get any sleep.

Anna - posted on 09/26/2010

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My grandson is on intuniv as well as the risperdone, and the two of them combined as done a great job. At first it made him very sleepy so now we give the intuniv at night. What a difference it has made.

Michelle - posted on 09/23/2010

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I give my son Melatonin, it's very mild but it works fantastic to help him relax enough in order to fall asleep of his own accord.

Mary - posted on 09/22/2010

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I really feel like the doctors are pushing the Intuniv, I was kind of scared to try it?

Donna - posted on 09/21/2010

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I started my son on Intuniv. It seems to help. I had trouble at first with him sleeping a lot, but now that he has been on it for a while, it has really started to work. I too had problems with him changing activities or going to school. I tried other medicines before, but I did not want him to take any. Other meds that we tried turned him into a zombie. I did not like that, that was the reason I did not want him on meds. It just got to the point we had to do something. I am very thankful we tried Intuniv....

Jodi - posted on 09/21/2010

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My son, David has also had luck with Risperidone. I hate the fact that he is on medicine. I even took him to a homopathic doctor to see what I could do besides medicine. But in David's case, she actually thought the medicine was best. He is also ADHD and is Focalin and Straterra. But I know what you mean, David hates school and fights every morning. he is better once the medicine starts to take affect, but i would love to hear how other mothers handle coxing these kids to school.

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