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Mom of 1

Jessica - posted on 12/02/2008 ( 4 moms have responded )

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I am a mom of a 4 year old boy. He is delayed in his developmental milestones... all of them the last assessment we had about a year ago said he was with in the 6months to 1 year old range. We have been back and fourth with doctors and specialists and not one can tell me what is causing it or if its something he will come out of. They have all teseted him out and its like they have given up on him and see him every 6+ months to see how he is progressing. I have grown in the last 4 years to hate doctors they make you feel like you are stupid! I Have started him on the GFCF diet. I read that it could help autistic children and delayed children, so far I have seen some changes in him, but wether they are a coincadence or not I am unsure.... But I figure the people with the degrees haven't gotten me any where its my turn to help my child! Having a child with special needs is very challenging and an emptional rollercoaster, I am glad that I have my friends Jodi and Sam and My Aunt Tammy..... They pick me up when I am feeling lost and hopeless and all I want to do is cry. Some day I hope to hear the name "MOM" from my son and to see him walk. Those are our goals....small but they will be BIG when accomplished.

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4 Comments

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Tammy - posted on 12/03/2008

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I live in Missouri, and my son had some of the challenges you are facing now. When he was 3 years old, he started in the public schools in the "Early childhood Special Education program". Basically that gave him pre-school 5 mornings a week, with speech therapy, Occupational therapy and lots of social practice. Call your local school district and have him tested. Raising a child with special needs is a marathon instead of a sprint. But so is life. Hang in there :)

Kylie - posted on 12/03/2008

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oh and your specialist should be able to put you into the community service therapy centre. they have ot, hearing, dieticians, pal's program,you name it and it is free and they are brilliant even organising with schools etc what is needed for that child and preparation for school etc i live in dubbo which is a country town but the services here for our children are fantastic

Kylie - posted on 12/03/2008

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i also have jordan (5) on the fish oil efalex a teaspoon a day in a drink it has been great too with eye level and improvement on concentration brain function my sons team sware by it and i have researched it and only postive things can come from it. it has even improved the constipation that i have battled with since he was a baby. also there is a book called FED UP it is written by a mum and principal who after seeing these kids and her own studied diet and nutrition and by trying these particular diets you can isolate the foods that effect our kids. and it is so easy which was a heaven class one for me seeing everything else is usually a nightmare with this crap.

Keta - posted on 12/02/2008

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Where abouts do you live EG: Australia. My son had developmental delays and was on programs through the Disability services also attending a developmental unit at the primary school. If you are in Australia there is help out there. Is he having any therapy or are the doctors not treating his ailment whilst evaluating the best posible help for him.



Makes my blood boil when these kids are pushed to the side, we got my so early 2-3 he started at the developmental unit when he was 3 and he is now in grade 4 at school on a modified program and through the special education unit.



In this unit he got every therapy you could think of also had the disability service come and do therapies in the house. The only time I have seen a peadiatrician with my son is when I need them to write something. Found them a complete waste of time.



Good Luck , never give up , don't be sad girl we have beautiful children.

Check out the oprah site heap of info there for america

Keta

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