My son Braydon

Eileen - posted on 08/03/2011 ( 1 mom has responded )

26

4

1

Hi, I am a married 36yr old mom of 3, My youngest, 7, has autism, of coarse ADHD & epilepsy (absence seizures) When I had Braydon I breast feed & pumped, went back to my full time job & privacy was an issue & I began using formula. At 4mos old he became seriously ill, after a week local hospital was clueless & sent him to childrens hospital were it took another 3 weeks for cultures to grow a bacteria yersisinia (its been a long time since spelling that:() During that time, he had every vein blown, so pic lines were in his neck & top of head, belly was 44 cm, no eatting etc. 9 days into living in 2 hospitals when I asked if he would live, I was told "Your son is very ill, we dont know if he will survive" The bacteria that grew stunned drs, last seen in early 1900's, it wiped town after town out of all their babies & elderly. Discovered their was a dead fox in our reservoir & no one noticed, by the time we gave Disease Control a water sample, they could tell it was just treated b4 brought it in. Then Braydon went thro tons of meds, test & had fluid repeatedly drained with no luck, they opted for bowel surgery, this was the last resort, he had a 50/50 chance to survive. Surgery found his bowels full of puss from the fight he put up, all went well removing it, after being on ventilator, day by day he improved...I never left his side for the 49 days he was there, I slept on his floor, any where I could, 200 miles from home. Once home a month he stop breathing & turning blue. He was having siezures due to severe acid reflux, once that was treated he continued having seizures, life flighted for over 18 seizures in one day. He had to wear a apnea monitor for almost a yr. He spent more time in the hospital that 1st year than at home. Him & I have a special bond. Then at 2 yrs old, a come to my home therapist thought he had autism, I canceled her returning bc I didnt believe her & was mad. Took him to ped & complained abt it, ped sent us to childrens to be tested over & over. They agreed. Now 5 yrs later, his health is typical of any little boy. He is highly functional autistic & at his end of yr IEP, they said he was"phenomenal academically" The problem is his behavior, he yells, hits, hurts other kids, car rides are a nightmare, he only wants me to do things for him, pees all over house, and on and on..Since December, when he is mad he says to me "I will shoot you up to god" lately he says it a lot, to everyone. He quit a while but started up last month, threatened bsc & she wanted him admitted into a hospital (another long story) There is so much I want to explain, I guess little by little. It is very hard on my husband, 15 yr old daughter & 11 yr old son & me. We are in every program available & have a bsc here & waiting for TSS (again)...Anymore I have so many dif ups & downs in one day with him, that I feel defeated...I live in the country & have understanding friends. But I want to be with other moms in my boat, to talk to & would like to help with anything I have experienced with Braydon..I dont always time to get on but thought this is a start. I hope to make new friendships & find hope again...TY Eileen

MOST HELPFUL POSTS

Nicki - posted on 08/03/2011

3

3

1

Eileen, Your story is deeply touching. You've been through such a long battle just to keep your son alive in the beginning. I really admire you and you do need friendship and support. I'm only new on this site and not sure if my son as ASD or not, though some of your issues with Braydon sound similar to my son. (Especially the overly dramatic comments about shooting you up to god!) When my son was 3 he was angry for being put in time out and shouted "I just want to be deaded!" It's quite a laugh in hindsight, but gives you the heebies when you hear it. You fear they will become pyschopaths you hear about on the news... But we also see the amazing goodness in our boys too. How kind my son is to our cat, to his sister (at times!). I know the answers - stay calm, be fair. But I always struggle to stay calm in the line of intense anger from my son. I hope you are able to find support on these boards!

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

1 Comment

View replies by

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms