New to ASD.. could use some advice

Kimringenbach - posted on 09/02/2016 ( 2 moms have responded )




My son (27 months) was given an ASD diagnosis this week. The doesn't talk (he hums, says "da" "ba" "ma" and "heh") he will rarely point, doesn't always answer to his name. He hand stims, has sensory issues and little joint-play. Little to no imaginative play. He runs everywhere, doesn't look where he's going and will run from me in public (though he's getting a bit better.)

We do have him in speech therapy once a week, and occupational therapy twice a week. Early Intervention will be coming to the house twice a month for 1hr each. I'm just wondering what else can I do? We don't know anyone else where we live and have no family for support. I can't really afford to put him in day care for socialization. When I try to set up play dates, most folks ignore me or are too busy. I am just very sad for him. He is very loving and extremely happy and the light of my life. I hate to think about the hard life he's going to have to live (even if he doesn't look at it that way.)

I also am extremely worried that he may never talk. Speech therapy is just 30 minutes a week where they take turns playing various games with the therapist. Is this normal? Should there be something more? I know he's at a crucial age and I want to do all that I can for him. (We looked into ABA but it's not affordable, was quoted $2200/mo and isn't covered by any insurance here.)


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Merimcd - posted on 02/23/2017




If you are being trained by the specialist and use what they teach you, that is more helpful than the small time they are with the specialist. I always had the behaviorist help with the hard stuff like helping to teach potty training, safety, going to the store, and similar. He is very young so you can observe and see what you feel he needs to work on more. Play skills are hard and they can teach you how to help him and motivate him to see other children can be fun too. That takes a lot of time and a special kid that can follow directions to be a good role model for him to play with. I was lucky to borrow a friends child to help model playing like taking turns, asking to play, etc. My son still needs help but is motivated by being around his peers which was not the case when he was younger. Making more positive experiences has helped us to motivate him because he remembers his past of hard work but most cases it was worth the discomfort because he usually got something he wanted from it, ie ball, tickles, go to place he likes, etc. There are a lot of online stuff that might help for topics your interested in. Wish you could get more ABA but you might find you do not like it or you can do a lot of that on your own. Maybe find students that are in that field who are willing to sit or find mommy group that have children with special needs. That helped me a lot to find friends for him to play with when he was little.

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