Lydia - posted on 11/01/2008 ( 4 moms have responded )
Hi my name is Lydia and my son Tony has Moebius Syndrome. What we do know about the rare syndrome is limited and at the moment we are not aware of any cases that include autism, but my son is so far behind physically and mentally that I am beginning to wonder if he may be the first. There are many limitations that Tony has including physical movement limitations (he wasn't able to sit up until he was 9 months and still can't put himself in that position), speech delays (he can say da..da, but that is about it). We do not know what the extent of his mental limitations are because the doctors are not willing to test until he is older, he just turned 1 in September. We do know that he will do somethings that are out of the ordinary and it makes both me and my husband think autism. For example, he will be staring at the ceiling and all of a sudden start "laughing" hysterically, but there is no stimulus there for him to laugh at. Also at times he is very hard to control if he goes into crying fits. We are just wondering if anyone could give us advice on this...
We also have a 3 year old that does not have special needs and we have not had to deal with any of these things before so we worry that maybe we could be doing more for him if in fact he is autistic. Thanks in advance to those that can help us and I hope to talk to some of you soon.