Tracy - posted on 10/18/2009 ( 3 moms have responded )
I read Dusty Williams post and the responses. I live in Ohio and began ECOT ( a public on line school) with my 15 year old son Andrew this year. He is on an IEP through this school. Andrew was diagnosed with PDD-NOS when he was 3. At that time we began an ABA program, CF/GF diet, we did secretin injections along with many other programs. He continued his ABA program until the 2nd grade but we kept our consultant and therapist to continue to work on problem areas and for tutoring. He was involved in many sports and cub scouts. He thrived, academically he was at grade level with no modifications, socially he had many friends was invited to birthday parties and social events. by the end of fourth grade he had quit everything but basketball. coaches would not give him play time and he got teased if he messed up. My husband coached his basketball team and he excelled at this sport. By the end of the six grade his friends stopped hanging out with him and no longer talked to him at school. we tried everything we could to help him make new friends but he did not meet with success. In seventh grade when he went to the Junior high the teasing got so bad that he end up on Home bound instruction through the school district. we worked really hard with the school district and and CITE services (a community organization under MRDD) and our therapist to develop an IEP that would help him be successful socially. We started the 8th grade year confident that it was going to be a good year. It was a disaster, The school district did not follow through with their end of the IEP and Andrew had a complete set back. He again ended up on home bound instruction. This year when we began ECOT he is a lot happier, we have no meltdowns and I like the flexibility. The down side is he is still socially disconnected. I see a real need for these guys to socially connect, but it seems to be a real feat at this age. It is not an age where you can call moms for play days. They have to do it for themselves. The problem with Andrew is that he has tried so hard and met with disappointment that he doesn't want to try anymore. I tried to talk him into going to a support group but he says that he doesn't want to go, and that he would not be able to tell others how he feels. He is becoming more socially anxious all the time and only wants to stay in his room and play video games. I am working on getting him signed up for rec basketball and trying to get him interested in something new. If anyone has any specific ideas please post.