possible austistic diagnosis soon

Vickie - posted on 08/23/2009 ( 9 moms have responded )

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Hi, I'm new to this circle. I have a 5 year old son with learning difficulties, and I think he could possibly have autism or aspergers. I'm having alot of trouble getting anyone to listen to me, particularly health professionals. My son has been under speech therapy for a long time, and has communication skills that are about 18 months behind where he should be. He tries to interact with other kids of his age, but can get a bit overwhelmed in large groups and retreats to play by himself. He also runs backwards and forwards all the time with no real purpose, and although he does play with his toys, his concentration span is limited so he goes back to the running again. He also walks on his toes. There are alot of other issues-these are the main things. What I want to know is does this sound familiar to anyone or am I just being completely nuerotic? I have an appointment with the CDC on tuesday, but I feel like the doctors treat me like an overbearing mum! Any input would be appreciated.

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Diana - posted on 08/25/2009

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Contact your school or a developmental pediatrician to get your child evaluated for autism. The sooner you get the diagnosis the sooner you can get the services you need to help your son reach his full potential. Best of luck.

Vickie - posted on 08/25/2009

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Hi Veros

Carter is being referred to the educational psychologist for further assessment, which is the next step. Referral only went in today so will be a little while coming through. I went to the appointment today with a huge list of things to discuss, and, after talking to Carter, doctor has given the initial diagnosis of autistic spectrum disorder. He did say to us that the Ed Psych would be able to tell us how far along the spectrum Carter is, but, as he has been seeing Carter for a while now, he thinks we are looking more at Autism more than anything else. Obviously we know that this is just an initial diagnosis based on other reports from school, HV, etc and from our comments, so we are anxious to get to the Psych and find out more. I am just relieved to be getting more help now. It is a real weight off my shoulders, i can tell u!

Veros - posted on 08/25/2009

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Hello:



If you can I would suggest a Pediatric Neurologist or Educational Behaviorist/Psychologist evaluate your child. Unfortunately many doctors continue to be reluctant to evaluate or diagnosis a child. Remember "Autistic like" behavior does not always guarantee a diagnosis. Many behaviors overlap with other diagnosis such as ADd/ADHD, Anxiety, etc. Depending on where you are located your school district psychologist can evaluate your child, at your request, for free. Good Luck.

Vickie - posted on 08/25/2009

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Hi guys, thanks for all your comments. We had our paediatric appointment this morning, and we now have a diagnosis of ASD. We are being referred back to the educational psych, speech therapy and occupational therapy. Its such a relief to finally be listened to and know that I am not mad and not a neurotic mum. The doctor has put a diagnosis of autism on all the correspondance to the relevent people so that we can get the help for Carter sooner rather than later. Hes also put Carter on the list for formal assessment which has a long waiting list but we can get lots of help in between hopefully. feel like a huge weight has been lifted off my shoulders. Can finally get things moving. Rest assured, I will definitely be using my voice now! Carte needs me to push things on lots more now, so I will.

Barbara - posted on 08/23/2009

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YOU are the expert when it comes to your child. What you are seeing are signs that his mind is not operating as most five year old boys. Now is the critical time to help him. A good DAN doctor would be helpful for they work primarily with nutrition. I have to tell you that the biggest mistake I ever made was to administer drugs. When it comes to anything on the autism spectrum, nutrition is your answer. If you can find a nutrition response tester you will have found a priceless treasure. If not, then see if you can find a DAN doctor. Administer seaweed extracts (I know of a powerful one) which will bring the omega's along with a whole host of other nutrients needed. The seaweed extract will cross the blood brain barrier and allow the mind to heal. How much healing no one can say. Above all, never, ever give your child pop, partially hydrogenated oils, process sugars, sugar substitutes, processed foods, fast foods, dairy or wheat flour. As he heals he may be able to tolerate some dairy and some wheat flour but not in the healing process. Put as much whole live food in front of him that he will eat. He should naturally crave those foods his body needs. By whole live food, I mean raw veggies and fruits. He may tolerate rice milk and I am sure that he could eat the Ezekiel Bread. With a good diet and whole live supplements like the seaweed extract, you will see great changes.
I have a son who has severe autism. He is now 32 years old. He has always liked whole live foods and we always gave him a pretty good diet. In his teens when he became self injurious I relented to drugs. That was the biggest mistake I ever made. It was the DAN doctors who helped me get him off of drugs, but they did their damage and we are still paying for it. He is so much better now, but we have a ways to go. Some of the damage may never be reversed. It was nutrition that gave his body what it needed to heal both from the drugs and the autism. He has come so far and we look forward to seeing more healing even though he was 22 when we began the live whole food diet (which every human needs to follow) and 25 when we found the seaweed extract. So I encourage you in your quest. Keep looking. Keep advocating. Don't use drugs.

Brenda - posted on 08/23/2009

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The key here is not what the dx turns out to be but what extra help he will get when he is dx, what does the school system offer that they are not already doing and what can you get for him outside of school. Good luck and yes I would have to say just from your discription, your son may be autistic. God Bless

Lori - posted on 08/23/2009

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Your welcome, Vickie and that does sound like a really good idea, cause its better to get a second opinion.. My 11 yr old is going through the same thing that your 5 yr old is and if you ever need someone just to chat with I am always there for you. Here is my email if you want to keep in touch somewhere other than on here: chwbjwbmlfljw@msn.com

Vickie - posted on 08/23/2009

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Thanks Lori, but I'm actually in the UK, so we dont have the same kind of system here. I do know of a Child clinical psych at the CDC that we are going to. She specialises in learning difficulties so I am going to ask the paediatrician to refer us to her. I hope thats the right thing to do.

Lori - posted on 08/23/2009

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talk to the school and see if they can do autism testing on him or try to find a autism speciality place to get him tested.. if your here in minnesota, call up the fraser center an if you want the number let me know, my 11 yr old goes to one of the fraser sites.

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