Question on PDD - newly diagnosed

Tanya - posted on 11/01/2009 ( 3 moms have responded )

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My 4yr old has just been diagnosed with PDD, we have known for a long time that he wasn't developing normally and he has been at a speech therapist for last 2 yrs. Specialists have decided recently that its not a delay but PDD. He also has Low mucsle tone and flexible joints. Is this mucsle tone typical of ASD or is it a separate issue?

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3 Comments

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Brenda - posted on 11/02/2009

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PDD is a delay dx, I have had some dr. say it stands for Pervasive Developement Delay or Disorder. Get you son in as much therapy as possible for the PDD.

My son also had low muscle tone and flexible joints. We did nothing extra except have the extra therapies, such as OT, speech, and behavioral. He is now 13 and very cordinated and healthy. This doesn't mean that all children will come out this way. His neurologist wanted to test him for mitochondrial disease, which required them taking a biopsy of his leg muscle, which might not have been conclusive for a dx. Needless to say I did alot of research before I came to the conclusion that he was not taking a biopsy from my son. What I am saying is research, research, research and then do what you feel is right for your child. In my opinion I would have been doing more harm to my child if I had done everything that my drs. wanted me to do. Meds can mess up children more than they already are and I was determined to not have my son on meds if at all possible. I went the natural way as much as possible, even that was trial and error, but we do the best Drs. are not God they have lots of knowledge, its still up to us parents to determine what is and is not good for our children.

Good Luck and God Bless :)

Renee - posted on 11/01/2009

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Many children on the ASD spectrum have low muscle tone but it is not exclusive of autism. My son does not have low muscle tone but he is extremely flexible and his diagnosis is mild to moderate autism. I think low muscle tone can be a separate issue for any child. Perhaps a professional will jump on here and confirm this.

Dori - posted on 11/01/2009

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Depending on the severity of the Hypotonia (low muscle tone) it may be a separate concern. However, Hypotonia is assosciated with ASD and many children in early intervention programs or school-age programs receive school-based services such as OT/PT to address several issues directly related to low muscle tone. Hypotonia is caused by differences in brain function. The brain does not send the correct balance of messages to the tendons and muscles, leading to this feeling of looseness. This looseness can affect the quality of a child's movements. Occupational Therapy and Physical Therapy evaluations or assessments may need to be conducted to help these providers to specifically design programs to meet your child's needs.