Sensory motor issues and insurance

Heather - posted on 01/14/2012

One of the best pieces of advice I can give you is to train yourself to help him. I went to seminars and read books about my son's disorders I learned some of the ins and outs and it has heled me help him and advocate for him. when he reaches school you will need to be an advocate to get him the hel phe needs. Many teachers, though they want very much to be good teachers, simply don't have the training to deal with all the different issues their student face, not their fault. You need to understand how to help them be better teachers to YOUr child.

Melody - posted on 01/14/2012

When my daughter was young she was on the states longterm care program and so got all her services free of charge.

Check your state laws. I am in AZ and they recently passed a law stating insurance companies HAVE to pay for services for autism. Does your child have any diagnosis?

I realize now, with the enconomy being so bad that it is harder than ever for children to get a diagnosis, and that in AZ they are only covering all services for children they deem will need care beyond their childhood.

This is a shame cuz every dollar spend on our kids in childhood makes it LESS likely they will need the longterm care.

YOU are the advocate, you have to research, make calls and be the squeeky wheel. You have to get exceptions on your insurance, have your business contact the insurance company and hassel them and DONT give up..

Katherine - posted on 01/13/2012

Ok a lot of people ARE helping you lol.

Kim - posted on 01/13/2012

It will be a good thing to wait a year. We didn't with our son, and regretted it... gives him a little more time to "mature". Keep a little pressure on the school district to give you help, you may be suprised. Also, once he is in Kindergarten, they are required by law to do a new evaluation if you request it. It is an IDEA law. I would reccommend reading up on it before he starts Kindergarten. It is an amazing resource. Best of luck with the insurance company, we have had our own challenges with them too. Just keep plugging away, it will get better.

Michelle - posted on 01/13/2012

We actually already tried going to child find. That was our first stop over a year ago now. They said that his case wasn't severe enough to warrant their services (turns out you have to fall below the 4th percentile in their tests and he was slightly over). What they basically said was come back when he's in kindergarten if he gets worse. We do end up getting another year of preschool because his birthday is 10 days past the cutoff to be 5. I don't know if that's a good or bad thing. But I guess due to funding issues your kid has to be pretty bad to warrant services. That was also an excellent thought though.

Kim - posted on 01/13/2012

Michelle, please check with your local school district special education department. They are required by federal law to have a process to identify children in the community who will need additional assistance prior to their enrollment in school. They may have additional resources your child would be eligible for at little or no cost to you. It's worth a try. I am guessing he will start Kindergarten next year, and I would ask the school to provide a full evaluation for him based on his delays in speech and fine motor skills. I hope this is helpful.

Michelle - posted on 01/13/2012

That is definitely something to think about. He's been through several evaluations and observations. All I've gotten so far is the sensory motor issues with delays in speech and fine motor skills. So we did OT for 6 months and that's done wonders for him. Now we're doing the whole food group thing and are on the wait list for more speech hoping for more progress. But I will definitely keep that in mind as we go forward. I'm bummed but not surprised about your insurance difficulties. Thanks for giving me something to think about.

Heather - posted on 01/13/2012

Hi and welcome. I love this group and this site. My insurance would not cover most things for my son's aspergers. I had to apply for Medicaide to cover many of the things he needed, case management, in home assistance, you need a good diagnosis though. Have you had your child formally evaluated? If not I would definitely look into it or if it was a long time ago or he was very little maybe youcould have it done again. My son's issue presented as ADHD until he reached middle school at which time things went totally haywire. He was then reevaluated and found to have adhd AND aspergers.

Michelle - posted on 01/12/2012

Thanks for trying. I actually saw some posts that really make me think that this site will be helpful. The insurance is just a constant pain in my butt. But I suppose I'll figure out how to get what I need soon enough. I have a long road ahead of me. My son is only 4. Thanks again.

Sharlene - posted on 01/12/2012

I treid to find a sensory community I saw you were a member of one and Im guessing you tried them all out lol ,there's other autism and deveolpmental delays communities as well . I cant really help you to find a insurance course Im not states if that's where your from lol. I dont know if I was much help at all sorry LMAF.

Sharlene - posted on 01/12/2012

Michelle ,that's fine you can join any community you want .The health insurance that my family have does cover te precentage of the cost but we have to pay for the other half usually .But then tax time and we do get that money back anyway . And try out other communities on he I know I have seen a sensory community I will try to find it for you lol