Social Security Benefits for Autism?

[deleted account] ( 17 moms have responded )

My friend is attending the University of Montana to become a SPED Teacher. She has heard recently that there are Social Security Benefits for Parents who have a child diagnosed with Autism. Are any of you receiving SS benefits? Do you know about this or have you heard anything about it?
Thanks
Suzanne

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Stephanie - posted on 11/03/2010

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I have filed for SSI for my 7 year old with Asperger's and was denied. We were told that his condition DOES NOT have an effect on his daily life to the extent that he can not function. This was based on a short visit with a doctor of their choosing. His IEP at school says different so you can bet I'm fighting it. As I explained to them at SS I'm not looking for a hand out I'm looking for just a little help so I can provide my son with what he NEEDS and any little bit helps. I wish you all luck but don't give up the fight for it.

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Whitney - posted on 11/08/2010

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It is worth the chance. Go ahead and apply. My son got approved and he just turned 3. The money is very useful b/c there are not a lot of dr's who know about autism so we use his to pay for the dr visits his insurance doesn't pay for. You can use it to pay for therapy, diapers, wipes, stuff u need to order online for your child, and accommodations. It is useful if u get it.

Stephanie - posted on 11/07/2010

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The day that I posted my comment about the SSI I got a phone call that he is now approved. And the same day got a phone call that his ABA therapy is approved as well. All and all it's been pretty good news for my son this past couple of days.

Sandy - posted on 11/06/2010

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I applied for my twins and was approved within a month. I am in the process of applying for my recently diagnosed 16 yr old son.

KRISTEN - posted on 11/05/2010

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My son receives ssi for his learning disability.He was just diagnosed with Aspergers about 1 1/2 years ago.I handed them the paperwork & they didn't stop the payments.Give it a shot.If they deny it,try applying due to his learning disability.

Amber - posted on 11/05/2010

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I applied for my son back in January and he was approved about 2 months later (and got back payment from the day I applied). I never had any problem with it. I made copies off all his medical records from birth to the day we applied and mailed them all in ($22 in postage worth). I've never had to report monthly. I just need to report if anything changes. His neurologist told us about it the day he was diagnosed but I felt bad applying it felt like I was gaining from his disability. Then my husband left and we had no choice. It really helps make up the difference.It's a lot of paperwork but worth it in the end.

Julie - posted on 11/05/2010

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My son has ADHD, ODD & PDD. I applied and was denied 3 times, even though he has lost me more jobs than I've kept. I hired an attorney. He didn't get paid until he won our case, which he did after I brought him 2 file boxes of school records, doctors note, IEPs, report cards, progress reports, etc. SS owed me back to the date of my first application. I believe my son got awarded $19,000 and the attorney charged about $2,000. The attorney part was quite easy. SS's paperwork on the other hand sucked! I also get a monthly benefit, but is based on income & assets so if you are "worth" too much, you won't qualify. Good luck!!

Florida - posted on 11/04/2010

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I live in Canada, so things are different (I'm assuming you live in the United States...) But here, we have what we call Assistance for Children with Severe Disabilities, which is I think a branch of ODSP (Ontario Disability) and a tax credit that helps monthly. Autism and Global developmental delays are covered.

Megan - posted on 11/04/2010

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We were told that we qualified for non-cash services. I have not yet accessed them but apparently it involves maid services and respite care. We have not actually attempted to file for SS though, we were told that we would not qualify so not to bother.

Christi - posted on 11/04/2010

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I tried for six months to get SSI for my son and we were rejected. Not because we make too much, because we are well below the poverty line, but because our cars were worth too much and my husband had too much in his bank account. It is not a guaranteed thing, and if you have any other means of finances like inheritance or money in saving, it will count against you and disqualify you.

DANICA - posted on 11/03/2010

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My son receives benefits from SSI as well. He's diagnosed Aspergers. Once you apply, know that whatever your child receives is going to be based on your monthly income. You will have to report monthly so be prepared. Otherwise it's really worth it.

Susie - posted on 11/03/2010

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Everyone I know who applies for SSI gets denied and have to file for an appeal. After the appeal they are approved. It cant hurt to try. Like Stephanie says its not a handout but it will help provide your child with the extra attention they need. Good luck with everything.

Heidi - posted on 11/03/2010

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I applied for SS benefits for my son and he was deemed eligible with one visit from the doctor of their choice. So definitley apply and if denied, appeal! Good luck!

Erica - posted on 11/02/2010

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We are getting ready to file the paperwork on SS Benefits. I will let you know how it goes.

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