SSI FOR AUTISTIC CHILDREN
Gail - posted on 03/17/2013
Katherine, this is an old thread that you dug up.
I am not sure what sort of assistance you are looking for ? If you income qualify (and it sure sounds like you do), your son can get SSI. Depending on his age, you might get benefits, too.
Finally, ifhis father ever worked, then your son would qualify for "child" disability benefits (SSDI) on his father's work record, since Dad has passed on.
Hope this helps.
Katherine - posted on 03/14/2013
Hi, I'm Katherine, an only parent of my 'Asperger's' son Elijah since his father died when he was 9. I've been through hell. I weathered 'Job-like' circumstances for years and years seeking a grant in order to get to a career with some foundation and it never happened and I've tried hundreds of ways. Social Security had promised Elijah benefits for life whether or not he worked due to his autism. As soon as he turned 16, they stopped the SSI which left us to move in w a cousin and pulled the rug out from my career prep. I teach piano, but that was never enough and not always reliable. Over dozens of times we lived w little food, vitamins and forget proper fitting cloths or extra educational needs like school supplies being fully met. I am a hero. My son has consistently been an Honor student and we have survived.....barely. I've been fighting Social Security ever since and they have been torture. I was told on several occasions by SS that Elijah was not only entitled to life benefits, but that I should receive them as a truly single parent. Never happened. If anyone really gets that I could not leave my son alone at home while I pursue work full-time without disastrous results!!!!!! Yet what are we to do when we go without nearly enough help for years on end?
We had to move to Florida from our home in California and I am suffering homesickness beyond the pale. I feel like I live on another planet here on the Gulf Cost. The population overwhelms Elijah and everything he knew was back home in CA. We want to move to Pasadena so he can attend College and I can get a job that fits my skills set and we can't afford housing, move cost, or the few months of financial aid I would need to get back on my feet and support us. WE ARE ALONE. I am well educated and an awesome investment, but no one cares. I though maybe WOMEN would as many many men have been heartless. Its been an eye-opener for sure. Is there any help for us or do I just give up? Its been years and we've lost nearly everything without the hurricane. Although we've been through one. And an earthquake and loss of house, business, his father, and credit destroyed. Here is my phone if anyone out there cares. Katie @ 831-521-5458
MzMiko - posted on 07/15/2012
I tried 2 receive ssi 4 my 2yr old son, I was denied due 2 me making 2 much $$$. . .If I'm a single parent of course I'm going 2 work not just 4 myself, but definitely 4 my son . .if some1 can help me with places 2 receive funding (assistinance with my child in Mich, it will be greatly appreciated. )
Suzi - posted on 06/30/2009
i just found out I could even apply for SSI! I have a 5 year old with PDD-NOS, a 10 year old with severe ADHD and post traumatic stress disorder, and a 16 year old with Aspergers and social anxiety disorder. No one ever mentioned SSI to me until I got a letter from the insurance carrier saying they had a company that could help me through the paperwork. I am so hopeful that we can get it. Is there an average amount people get? I have 6 kids, all adopted, many with special needs, my hubby is the onlyone working and the therapy and special schools and counseling trips are getting expensive just in gas for my truck! My husband makes a decent living, but it is tight cause there are so many of us!
Deana - posted on 06/29/2009
My son is 3 and was diagnosed with Autism 2 x already since he was a 1 1/2 yrs. the 1st diagnose was in April 2008 and the second one was just in Feb. 2009 after his 1st diagnosis I was told to put a claim into SSI for him do to I had to leave my job and be home with him and my husband is the only one wrking at the time but now has been laid off for 1 yr almost now but anyway..Our son was in EI at the time we had applied for him and now he is in a specially school setting for his needs..We got accepted really easy maybe bout 4-6 mnths after if that might have been sooner but I do know I made sure I had all documents from everyone and anyone who was involved with my son from dr.,therapist you name it i had it so they had no reason to say there wasn't enough medical eveidence I made sure I was one Step ahead of them at all times so they would not have no road bumps...but i also in in Rhode Island so it might be little different standards for SSI stay strong and keep fighting don't stop...Good Luck!!!!
LeeAnn - posted on 06/29/2009
My daghter is 2 1/2, and was diagnosed with Autism in March 2009. After her diagnosis, we set up her appointment to apply for SSI. She was approved very quickly...By the end of the month. I was surprised that she got approved so quickly. I was told that they have 120 days to process the claim and make a ruling. She had already been enrolled in early intervention services, and attending a special needs school. I don't know if this helped her or not, but I think so. We live in Arkansas, and were told that if we waited too long, they would most likely deny her claim, siting that we didn't really need the money...which we do. My husband is the only one working, and putting himself through school, and we have a 14 month old as well. I hope that you have better luck soon!
Denita - posted on 06/27/2009
I was approved the first time I applied. Granted I had information up the ying yang. Speech, Audio, IEP, Doctor, Psychologist, you name it, I had it. It wasn't very hard for us, but where I live in Cali, there is a special school just for autistic children.
Alisha - posted on 06/24/2009
my 6 yr old daughters SSI is pending, waiting for a medical decision. My cousin rikki was approved for her 3 yr old after less than 6 weeks. I understand it is based on financial need of caregiver as well as medical necessity, higher functioning children are more likely to be denighed
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