Support for dianosis

Samantha - posted on 06/20/2012 ( 3 moms have responded )

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Ok so, I have four kids, three boys aged 3, 9 and 11 and a girl aged 7. So hello to you all! My name is Samantha.

I have my second eldest who is 9, his name is Jake and he is a colourful loving child.
So, we do not yet have a diagnosis, it could be a mixture of different disorders most likely as the doctor suggested.

ADHD is one of them, and we are going though hospital tests and appointments to see if he has focal epilepsy.
He suffers night terrors, has dyslexia and is very stressed at school
His teacher is a traditional type, and despite doctors letters and such she continues to what I would more or less call bully him, calls him a naughty and difficult child.
So we have been advised by the doctor to pull him out shortly if it continues.

anyway. we are going through MRI scans and EEG and other things. It has been a scary expierience for us all, and I have to say I am terrified as to what the future brings.
Will he have a normal life? Can he do everyday things?
He is so dependant on me. Not that it should matter, i help him how i can. And love him with all my heart. There is no support here in gorey. And i feel alienated, on top of medical costs and everything else. I can feel myself as a mother cracking slowly but surely.

You are all in your own here, with your own problems.
His behaviour is over the top, over emotional, lashes out at me and his siblings. his older sibling gets bullied and feels a lot of responsibility and stress due to my other sons behaviour in school.
Some of the behviour such as hand flapping which is an autism symptom. Screaming at no one there. Freaking out and running away as if I am going to hurt him. Which i wouldnt in my life. then he falls asleep for ten minutes and remembers nothing.

Dealing with it for years now.
As I said, it is hard on all of us.

On top of having trouble with my youngests jaw and my own health problems.

Just want to meet like minded people to talk to, as I can feel the isolation. and stress mounting. thanks :)

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Samantha - posted on 06/22/2012

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Thanks for replying!
Jake has a strong dislike for change, resulting with disruptive behavior. I think if he does have it, then it would be in the high functioning range. Eye contact avoidance and so forth. Small signs, but it could be something completely different. Which is why I am so stressed about it. The eeg, and MRI are about all we have now. The episodes (as we are not completely sure if it is epilepsy) are random and sporadic, not frequent. But one to two flip outs a week on average extremely similar to a night terror, but a day terror, or sometimes what seems to be a focal seizure, where just eyelids flutter and quiet and unresponsive for a few seconds.. We had to video some of it to be analysed. And at this moment it is trial and error. No further tests apart from sleep deprived EEG. Back for MRI results Thurs.

My youngest's Jaw, he fell when he was about 2, onto his chin ( we had thought it was just a small bang, whilst a sore knock I put it down to an average knock), and his speech is quite slurred and has a prominent lisp. And it looks like we need to look into it further, as I think he may have damaged his Jaw. His mouth hangs open a lot. And I feel terrible. You can never be too careful.

So that is it basically.
Thanks again x

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Sharlene - posted on 06/22/2012

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Can I ask has he done a sleep study, My oldest son has autism and use to have seizure's as well where They did a sleep study and EGG and one side of his brain was to active ,god does that make sense.sorry. lol . Good luck with the MRI too.take care

Sharlene - posted on 06/21/2012

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Has the doctors recommended more testing with the Neurological side of it, Youre right the hand flapping is a sign of autism but does he have anything else that resembles any other signs with autism besides the hand flapping, With the seizures, How many has he had and is he on meds for it and have they suggested to get his behavior assessed ,May I ask whats wrong with your youngests jaw.

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