Tenex treatment for Aspergers

Rosella - posted on 10/04/2012 ( 2 moms have responded )

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My son was just diagnoised with Aspergers and he is 8 years old he is heavy and they prescribed 1mg of Tenex. I did not want to use medication as treatment. I just want help and advice and support for him at school and home. My son does not sleep well he moans and tosses and turns and he talks in his sleep, if he is not doing that he cries. He has had night terrors since he was young although now he only has one or two through out the year. I am scared as I read that the medication can cause low blood pressure. I have been trying to get help from doctors and school dictrict since he was 3yrs. old the only help I got was a mental health counslor through Kaiser Permentae and then speech therapy through school. I want support for him and for his siblings and his father and I. I don't feel that medication is the right answer and I am wondering if I am doing the right thing by allowing the doctor to prescribe him Tenex. Am I doing the right thing. The doctor wrote a note to his school asking them to do what I have been asking all along but it took me having an emotional breakdown for someone to listen to me. I don't want disability check, I don't want drugs for him I want support for him and for his siblings to understand that it is not his fault how he responds and reacts sometimes and why he does things the way he does them. I want support for myself and my husband so we know how to best support him and his siblings. I feel lost!

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Rosella - posted on 10/04/2012

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Thank you Tina he starts his medication tonight and I was stressing but you have relieved some of that and I thank you for sharing with me. I have developed Anxiety due to my sons behaviors in the car, in public, in the house because he get so loud I know everyone around us hears. I mean I should'nt let people bother me but they do. I am so upset with the lack of help from our community and school district. i have been working with people with disabilities since i was 18yrs. old and I am 38yrs. old now, I never thought it would be this difficult to get support for my child. I feel the school district has done him wrong by keeping supports from him and not listening to me. The evaluator for Autism for my son's school district is on the board of directors at my work and she gave me her name and number to give to his school and told me to have them send him to her. Well I did and they have done nothing. My son's doctor gave me a note to give to his school to send him to her for evaluation through the school. As i know he needs diagnoised through the doctor and the school to get supports all around the board. But 5 years of frustration and nobody listening to me and having to watch him and his siblings and myself and husband struggle for answers from where ever we could find them. It just shows that there is something wrong with the school system. I got a letter in my son's back pack two days ago stating the counslor wants to pull him and a few other students out for a small group to teach them about proper behavior in classroom. I was so upset I called the doctor and was crying I had it someone was going to listen to me and they were gonna do it now. That is how I got the appointment today. I spoke with my sons teacher she said my sons fidgits in his chair all day he can't sit still. Well and the counslor is going to teach him how to sit still, i want to be there for that. Well I am just relieved I actually got heard and my son's doctor met with him and did some test and saw that he has to have his hands doing something at all times, usually change in his hands he plays with or his lego's. Today it was change. I am relieved but I am scared and still frustrated with the school. I thought because I have work with people with disabilities I would be ok but I am finding out it is not that simple when it is your child, I see now what many parents stuggle to make the simplest decisions to make sure they are the right ones and in the best intrest of their child. the fear of what I do today is it going to harm him tommorow. Idk its alot and I am glad I got help today for him and glad i found this circle of moms to ramble on to...... Thank you agian Tina and I wish you and your family the best of luck.

Tina - posted on 10/04/2012

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Rosella I feel your pain I really do my son too is 8 years old..My son has Aspergers ADHD and Intermitten explosive disorder..So a lot more comes with this than just Aspergers so my son has some different symptoms and may be intesified. I have been trying to do the best for my son since 3 as well really knowing that we had some underlining issues. and i suspected before then but was not for sure. My son has been on tenex and it was more so for his ADHD its suppose to help with ADHD. My son never had problems with blood pressure. my son also moans and dreams.He talks out loud in sleep at times.Its really hard i dont feel like we get the support we need and i really dont think they get what they need and who does it hurt. I get fustrsted because people are not on the same page..I m going to look into diet and no toxins more i hear that that helps. Just know that when we have special needs children we do the best we can and i guess we are always trying to find better ways. But always know there are people out in the world that are doing the same thing and you are doing ur best.. And u have to keep talking and voicing til things get done or until u get help for ur family and son.Good luck to u and ur family.

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