Tip toe walking...

Janna - posted on 01/11/2011 ( 20 moms have responded )

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My Son who is almost 6 has been walking on his tip toes since he was 2. I saw a Doctor and they want to put cast's on his feet. Anyone out there that had the same problems and what did you do. Thank you ;0)

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Megan - posted on 01/18/2011

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I have walked on my toes my entire life. Other than occasional teasing and nurses at school constantly calling me to their office to watch me walk, it never caused me any trouble. Once my heels started to hurt and I had to learn some exercises to stretch my Achilles tendons (stand on a step and push my heel down below the step as much as i could, trade off each foot after a min for 10-20 min). I think they tend to blow it all out of proportion sometimes, it usually isn't that big of a deal but it isn't "normal" so they try to force people to be more normal.

Connie - posted on 01/18/2011

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They put casts on my son's feet when he was 3 (and just before he was diagnosed with autism) for the same reason. It stretched the tendons so he wouldn't walk up on his toes. It did work somewhat but he basically came down from his toes as he got older and heavier. I can't say if he would've come down without the casts though. It was not a pleasant experience for us. It took about 5 adults to hold him down to put the casts on. Due to his struggling, they put them on with his foot squeezed together some. He got the casts wet (as little boys running outside will do) and with the foot squeezed and then wet, the skin inside the squeezed together part basically died (turned black and fell off when they took the casts off) and his feet we RAW from being wet. He could hardly walk for about a month after they came off. Took a long time to heal. Good luck.

Barb - posted on 01/18/2011

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Janna, My son, Billy will be 9 next month and he still toe walks! The pediatrician knows of our asperger's diagnosis and our really intense sensory processing disorder stuff. He doesn't see it having any real physical affects and we're just starting on additional occupational therapy outside of what we get at school...which is mostly for handwriting and motor coordination and not really his sensory stuff. This OT will be specifically for the sensory.

Right now, we have so many bigger fish to fry, that I have stopped worrying about the tip toe walking. We're having so much trouble w/ 3rd grade and socializing and anger management....I've tabled the tip toes for a while.

We remind him to walk on his whole foot and we notice that he tends to tip toe walk more when he's having a moment or stimming. We also notice it more in certain shoes and not at all in boots. We wonder if it's the way his shoes feel on his feet...Who knows.

Aspie kids have so many sensory processing issues that it could be b/c of something related to sensory. You might look more into sensory processing disorder and see what you find out.

Good Luck!
Barb

Megan - posted on 01/18/2011

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BTW I am 29 and my doctor now says theres nothing wrong with it, I just have to buy shoes a bit more often than others because I wear them out faster. And, being a girl, it made learning to walk in heels that much easier, they were actually the first shoes I really felt comfortable in and used the heel of.

Lynn - posted on 01/18/2011

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My son told me tonight he often does walk on tip toes when he is barefoot because he is going from room to room and there are different rugs,carpets and wooden floors,it's all a bit too much for him. Also,he finds the seams of his socks rub less for some reason if he is on tiptoes,I guess it makes sense to him.I will have to invest in seam free socks this week and see if it helps at all and see if we can do something about the flooring issue too.

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Lisa - posted on 11/11/2013

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My son is 11 and still toe walks, constantly. He has been cast twice and had botox injections. Neither of these worked. Maybe for a week or two and then he is right back up again. With him, it is a sensory issue. Until he decides to put them down...... I have been worried about what this will do to his anatomy. But the head of orthopedics at the hospital where he receives his care does not. Have tried to get a second opinon/referral, but so far have been unable.
Buying shoes is a big problem. The only kind of shoes he has been able to wear for years are Crocs. But, now that he is in those pre teen years, he wants something like what the other boys are wearing.

Nicole - posted on 04/18/2013

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At the age of 8 I was seen at Shriner s Hospital in St. Louis for tippy toe walking, but I was seen also for a diagnosis of something called Nail Patella Syndrome. It is a genetic disease that was handed down from my dad. It affects the spine, bones, hips, muscles, and it gets worse for the diagnosed as they get older. I was put into casts for 9 months and then fitted for braces to wear for another year. I no longer wear braces and I do not walk on my toes. But now my daughter who is free fro the NPS diagnosis but is tippy toe walking all the time. I'm concerned for my two boys now as well because they were both diagnosed with NPS. My 3 year old is knock kneed pretty severely, so much so that he sees a specialist who will be bracing him next year. My 1 year old has a hip that is splayed out and he trips constantly. the casts are a good idea while he is young and yes it pay be uncomfortable but he may thank you in the future.

Deedee - posted on 11/28/2012

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My son is now 4 and he started walking at 1 and walked on his toes when he turn 4 the doctor consider casting both legs. It was hard because my son has Autism so casting his legs was not easy so they had to put him to sleep all three times. It had been 4 months and he walk on his flat now but still has to where leg braces. He doing really good..

Bridgette - posted on 01/20/2011

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I too have a son with asperger's and a first indication was his walking on his toes, this is just my experince and I agree with other's, you must seek out second opinion's and not give uo until you are comfortable with the verdict/diagnosis, I try to remember with my son, he has so many abilities, many more than his DIS-ability, I count my blessing's, knowing there is ALWAYS, someone worse off than us..best of luck, dont stress

Jennifer - posted on 01/18/2011

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Shoes on don't do much here!! Our 15 year old daughter has tip-toe walked since she started walking, dr's never listen about it, but as far as shoes go, she still tip-toe's in them and ends up with holes in the shoes right where her big toe is at!! Constantly having to buy new shoes!! And forget flip-flops, she goes throught 3-4 pairs of them every summer!!

Victoria - posted on 01/18/2011

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One of the things we were told to do was always keep shoes on because it is much harder to toe walk with shoes on. Also see if there are seems in his socks that could be a sensory issue. We had to remove all tags from clothing and socks with seems or my son would have a hissy fit

Barb - posted on 01/18/2011

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I hadn't thought about the floors....we've always had combinations of wood, tile, carpet, area rugs...Hmmm...I'll have to "tune into" that a little more. Also notice it outside if he's barefoot....esp. when he goes from the concrete patio to the grass!

Kari - posted on 01/18/2011

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My son who is 8 and has Asperger's continues to sporadically toe walk, however it is not the only way he walks and he has not had any problems physically. We don’t draw attention to this and just take it as something he always does. Unless we have problems we are just going to leave it alone, however every parent knows what is best for their own child.

Brandi - posted on 01/18/2011

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My oldest Matty does that and has since he started walking. He was diagnosed with Autism middle of Last year.. He attend OT/PT to help him try to focus on not doing it..To walk normal it just a sensory problem

Penny - posted on 01/18/2011

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As a therapist, I think several mom's hit the nail on the head. The heel cords will get tight if the child doesn't stretch them out so in some cases serial casting or splints are the best bet, but if you don't follow up with stretching-which is best done through purposeful activity it will be a recurring problem. I know it sounds like therapy mumbo jumbo, but I've been doing this 25 years so I have seen a lot! Good luck!

Anne Marie - posted on 01/18/2011

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My son was diagnosed with Asperger's at the age of four. For us, his toe-walking was the first sign that something was amiss. We took him to a pediatric orthopedic surgeon when he was just under four years of age. They did serial castings and then night splints and we began what would be 7 years of PT and OT. He has extremely tight heel cords which get slightly better with treatments but always go back to -15 or -20 degrees without. Twice we considered surgery but were told the second time that they were no longer recommending this for young children as they sometimes over-corrected the problem and that would be even harder to fix. At age 9, we tried Botox injections followed by serial castings, and night braces and bi-weekly PT, but he only got to 90 degrees and our insurance ran out by early-mid summer so we kind of gave up. I think our PT gave up on us as well and "graduated" him and suggested trying more "real life" sports and activities instead. So he is taking fencing lessons which requires a lot of sort of "squatting" for the En Garde position and footwork that really works out his heel cords. He could barely walk after the first several classes he was so extended. I want to start him in martial arts too and maybe more yoga as I think those activities would also help. The toe-walking is worse when he is excited or anxious. I get so frustrated and I tend to nag him about it and push down on his shoulders gently. It makes it hard for him to do simple things like stand on one foot to put on pants or reach his feet to tie his shoes and on, and on. And I worry that he will be teased and my heart will break.

Lynn - posted on 01/18/2011

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My 13 year old and has always walked on tiptoes but for him it is a symtom of his Aspergers syndrome,my 21 month old is doing the same and being assessed. There are so many different reasons for this, for some kids it is just a habit, if you are not comfortable with your doctors opinion,seek a second or third until you are happy you are doing the right thing.

Kim - posted on 01/18/2011

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My son also did the same thing and they casted him. His muscles stretched in a few months and I think by it being forced to stay at that angle helped because I noticed after the casts came off, he didn't walk on his toes nearly as much and after a while not at all.Good luck.Casting is a good idea because there is the risk if they keep doing it the muscles will shrink and then Plantar Fasciitis could settle in and that is very painful.

Annette - posted on 01/18/2011

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my daughter is now 23 and still walks on tip toes and she has no problems

Sarah - posted on 01/12/2011

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My son is also a toe walker and he has worn SMO's or foot plates since he began walking to try and keep him from doing it. The toe walking is just another way of sensory seeking, but can become serious when they are not physically capable of putting their heel down. If the tendons are not kept in normal position they may have to be cut later. SMOs or AFOs force the foot to stay in a more normal postion without inhibiting mobility much. We have been working with an orthopedist on the whole ordeal.

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