Hope - posted on 01/02/2011 ( 8 moms have responded )
I'm wondering if any of the biomedical treatments might work on my son. He is not diagnosed mild aspergers, but in my heart I know he is. I have had him tested by psychologists and psychiatrists numerous times only to be brushed off. ADHD (inattentive) is all they came up with and this is after I bugged them to no end. I've been doing much research and I know in my heart he has a mild case of aspergers. Perhaps too little to be detected on their scales. He also has eosinophilic disorders that we are not treating at this time. We tried and 7 endoscopies later came up with nil. But that is a gut thing and delayed onset food allergy that never goes away until you remove the culprit so that sounds like it would be related to autism. So I have a strong hunch it is what it is. Would any of these treatments help a mild asperger's case such as him? I am having major battles with him at home daily. It is unbearable. We cannot go on like this. His father has had it also and finally agrees that it is something more. Many times I feel like just leaving. I love my kids but I can't deal with it anymore. That is how bad it has gotten. I can't even stop thinking about him and what his future will be like for a second. I don't want to be around people or take him out anymore. He will not behave out in public--it's horrible. He used to be a straight a student in kindg. and 1st, but now just one a and the rest c's and c-'s and one d. I think his teacher is just more precise now and the others were just overlooking a lot. this is 2nd grade and you have to do more now. Anyway, we had his blood tested ELISA. He came up high on Wheat-4, Milk-4 and eggs-3. He was a 2 on soy and 1's for chicken, and a few other stuff. Well, I about had a breakdown this week trying to cook for the family with all of this stuff. We cleaned out the kitchen and started reading recipies shopping, you name it. It's impossible to do. I even started rotating. Again, Breakdown! It's only been a week! He goes back to school Monday and I have no idea what to give him. Would it be ok if I just did Wheat, milk and eggs free? Do I have to do it all or nothing? I mean no soy, no rice, he came up with quite a few 1's.
Also, do you think HBOT would work for him, being mild asperger's at worst? If we get a diagnosis? Or do you have to be more on the other end of the spectrum in order for improvements to show? If I could just get him to change his behavior and be a little more aware of his environment.
Also, do you think I should look into a DAN dr? Would they help someone barely on the spectrum?
I'm so confused. I don't know what to do. I have been up until the wee hours of the night, almost every night just getting info. I'm really getting myself sick over this. I just keep thinking about the window of opportunity shutting on us--he's 8 yrs old what if it's too late? Early intervention is key. I tried and the doctors just brushed me off, even my husband was not on board until recently. Please let me know what you think, even if you think I don't want to hear it. Be honest. Anything to help? Treatment wise?