Denise - posted on 01/09/2013 ( 3 moms have responded )
I am trying to prepare myself. We made it through day 1 of Ella's diagnostic and pretty much all of the specialists today had the same things to say:
1) it is VERY likely she is on the spectrum somewhere
2) she is likely pretty high functioning
3) therefore her prognosis will be "good"
4) but she is still likely going to get the diagnosis tomorrow...
So I am wondering if anyone out there has any thoughts on what that diagnosis means or meant when you got it... I feel sort of out of my det=pth trying to understand what it will mean for her in the big picture and really when I try looking stuff up OF COURSE the night before the diagnosis is given all I find are the hard stories that are bringing me to tears..
So while I am not saying that all I want to hear is the positive stuff i am just wondering if anyone out there has some small things that they learnt going through the process...
I guess I am just feeling really alone....and scared for her.. even though I keep telling myself its not like tomorrow they wave a wand and suddenly everything she is-- the sweet, focused and driven little girl I adore goes away.. its hard not feeling like somewhere in there they ARE going to take a part of that away... that there are a lot of things that will not happen/be the same for her as for other kids, including her sister...
maybe I need to just log off and stop thinking?