What help, if any, have you found? ps please tell us where in the world you are.

Kerry - posted on 10/17/2008 ( 5 moms have responded )

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I have struggled for years with my son. I had no idea what i could do to help or deal with his differences, until he was at least 10, and by then it was too late for much help to work and the bad habits i had gotten into to help cope with him, were ingrained.
I am in regional queensland basically the outback where there is not much help available, and i was the one to visit the paediatrician with loads of information for her to look at (she actually liked this idea as she hadnt dealt with autism before).
There are some great ideas out there and early training for mum, dad and the siblings is the way to go to hlep prevent the growing bad habits such as giving in etc.
Australians need to read the information available online and visit child health clinics and mental health. Perhaps find some friendly childrens councelling service in your area that can help with suggestions.

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Kerry - posted on 10/25/2008

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hi Jesse, I feel for you, having done things the hard way myself. There have been numerous australians who could afford it, moving to the usa, esp canada, where there are much better programs and intervention happening. Not being in a position to do that, I am one of the parents with a child diagnosed, in the area of qld i live. And that took years to get anyone to see what i was looking at. Classic autism in the high range with adhd and learning disorder. Owww.
Its gotten easier to acess information and the little bit of help available in australia, but more funding needs to be available for interventions. Stick with the waiting line for diagnosis and help in your state because it will be a lot of use in the future! try things that you hear about, and see what works for you.
We made a sensory program up for our son and his fear of frogs. we got frogs in a tank and each day his father would bring a new frog home from work and ask son to put it in the tank. from the small amount of touching the frog we moved to son moving frogs around the tank then letting them go outside. longer and longer time each time. It was hard and we perevered. he now loves frogs and will leave the lights on outside the house at night so the frogs can catch insects!

Wendy - posted on 10/23/2008

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Are you familiar with the breakthrough from Jennie Garth, an actress here in America? She has improved her sons symptoms by removing gluten(wheat) from his diet. She has written a book on this, and has been on many talk shows. It sounds like she has opened up a whole new world of hope for parents of children with many types of brain disorders. My son has ADHD and Bipolar disorder, we are adding Omega 3 to our daily diet for concentration and working on removing the gluten.

Jessie - posted on 10/17/2008

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I just found out today, from our EI coordinator, that we live in one of the worst states for autism resources. We can't get sensory therapy equipment, we can't get ABA paid for, its a 6-12 month wait for a diagnosis or to get into therapy. Its horrible :(

Kerry - posted on 10/17/2008

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Read any of Tony Atwoods books he was a big help in understanding what was happening. And the most useful thing he ever said that i heard was the kids are doing something in a strange way not to hurt or embarass parents but because they dont know a better way!
That helped with a lot of the behaviours of my kids. My daughter used to pick up the little girl from up the road, and shake her. It took me a while to figure out that she was trying to say hello Jody its good to see you!. Once i realized this i could say Tiesha when we see our friends we dont shake them like a milkshake, we say hello its good to see you! Worked like a charm!

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