When do you find rest for your soul?

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LeeAnn - posted on 06/17/2009

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I am so glad that I added this website! I don't get out that much, and none of the people that I usually see are dealing with this. I don't have other moms that I get together with, and my friends from high school and I don't talk much, or see each other at all. To tell the truth, the friends that I do see, either have grown kids, or no kids yet, but are very understanding, and just awesome in general. It is nice to know that I can talk to other moms in the same position as I am. Thanks for all the kind words and advice!

LeeAnn - posted on 06/16/2009

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My daughter likes OT now, she used to cry a lot, but now she looks forward to swinging. She loves to swing, or rock. I am hoping that things will start looking up, and I will be able to start up a support group for our area. I am sure that there are some other moms who could help with the workload.

Amy - posted on 06/16/2009

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Mason hates OT--lol. I haven't found many autistic children that like it. However-- I did ask for a change in ot therapists and found one that wasn't quite so pushy with him-- he seems to respond much better to her. He also goes to an autism program through the school district-- they have the support group and play dates between all of us, and also-- we try to help each other out with sitters-- since we all know how hard it is to find one that can understand an autistic childs needs and be able to handle them-- we switch off, which also means-- FREE SITTER!!! Totally understand the money situation, especially with the therapies and all...

LeeAnn - posted on 06/16/2009

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She attends Forrester Davis Development Center. This is a center for DD children, and also a daycare for non DD children. They also do work with adults with DD, and it is a very good school. They intigrate the children, so that children learn to be more understanding of others with struggles. I actually worked at the school while I was pregnant with her, and love the teacher. I only have the trouble with her OT.

Nidia - posted on 06/16/2009

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LeeAnn is your daughter is a special education class? Or only goes for the OT/PT? Both of my girls are in a Autism Structured Preschool class, 12:5 ratio... so we have a class list of parents who add their name and email addresses if they want to do a mini support group.



One of my daughters classes, we all email each other links and updates, my other daughter not as much.



Ask the teacher, and type up a letter and just put your name, and email and phone number and ask her to place in their backpacks... and if any parents are willing to include themselves in the classroom list they can do so. If not, well you tried.



Thank you Amy... definitely we need ot recharge our batteries... we arent energizer bunnies you know. ;) But we are Super Moms!

LeeAnn - posted on 06/16/2009

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I would love to be able to get out of the house on days like that!! I am stuck at home. My husband and I only have 1 car, and it is all we can do to pay for the things we have to have. He is in college, and working so that we won't have to struggle so much later, but it totally sucks right now!

Amy - posted on 06/16/2009

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I love Nidia's answer! I think all of of have the "why me" days! It is hard to cope with those... I just try to get out of the house on those days-- Find a sitter and go shopping, have a drink, go to a movie... SOMETHING! They take alot of care and time from us, and we need recharge sometimes....

LeeAnn - posted on 06/16/2009

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ok, thanks I will try this! I am not allowed to ask about the other children at her school, because of privacy laws. I would never dream of insulting someone, or their child, but would like to get to know about other parent's dealings with this, and what they have done, and maybe help someone who is new to the game.

Nidia - posted on 06/16/2009

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Google the Autism Society of America, or Talk about Curing Autism websites and they have links to local support groups in your city.



Also Cafemom has a AAPA group with lots of members and you can click on the link to your city to see if they have any fellow moms who get together in your city.



Most of my ASD mommy friends are from the girls school.

LeeAnn - posted on 06/16/2009

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I wish there were more moms here with children on the spectrum. I am sure that there are, but there isn't a support group yet, and I don't have the time or resources yet to start one. I am looking into this, but with a 14 month old at home, it is hard enough to maintain a somewhat normal life, whatever that is!

Nidia - posted on 06/16/2009

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This is a great question. On the worst days probably in the shower, where you can find me curled in the fetal position in the tub crying, and whining of who did I screw over, or who was I mean to, and karma now bit me in the butt.



And when my self pity is over, I will sit down at my computer, with a glass of wine and blog about my day and feel a lot better. Blogging, alcohol and Lexapro are your friends.



I love my girls and seeing them smile at me and hug me, and now hearing I love you from my non verbal 4 year old makes me ashamed for my negative attittude.



I do a once a week or bimonthly breakfast with my other ASD mommies... it feels good to talk about it, and hear other peoples situation. I am grateful for many things and I like to step back into reality.



Good luck momma... our kids need us and we must remain strong for them and us.

LeeAnn - posted on 06/15/2009

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I agree with Kristie. At first, it was hard to look at our situation as a gift from God. It has been a long and difficult road, but God has helped guide us all the way. My daughter is a beautiful, smart, funny little angel, and I know that God chose me to be her mommy for a reason. I couldn't love her more if there were anything different about her. She has meltdowns, and tantrums, but she also has sweet little moments where she starts singing at the top of her lungs, and grins at me while running up to me to squeeze me into a big hug. Those moments are my saving grace. When I watch her with her younger sister, and they are laughing and smiling at each other, it takes my breath away, knowing that I am lucky enough to experience all of this first hand.

Roshonda - posted on 06/14/2009

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I want to know the answer to this question ! Its been a while since I had a why us day, but I am having one now I just want some peace and not the constant run around with therapies and services!!!!!!

Kristie - posted on 06/13/2009

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Remembering that God placed these children in our lives for a reason. I believe we are stronger for them and have more compassion towards people. When my daughter has had a horrible day and has taken it out on me because I am the only one that makes her feel safe, I take deep breaths and remember that. It is hard to do at times, but allows me to refocus.

Charmaine - posted on 06/13/2009

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At 8pm when my kids go to bed I either read, watch a totally mindless tv show (which is why i love reality tv) or scrapbook. It unwinds me from a day of melt downs, slow downs, doctor and therapy appointments. It really helps that I have forced myself to make time for myself to maintain my sanity.

Michelle - posted on 06/13/2009

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in the little moments....they are there.....i find when my son does something really sweet that i can be grateful for, that is rest for me....just a bit of reassurance goes a long way sometimes....!

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